Re: New study by Dr Myhill proves ME/CFS is physical

[Guest guest]

Hi Mo

Thanks for your detailed reply. Sheila has sent me lots of useful info

and support too and I will arrange to have the saliva test done as

soon as I can. My daughter is back in Bristol so I will discuss with

her and maybe get her home for a few days and get as much testing done

as possible including the full thyroid profile and other tests Sheila

recommended. I will call her GP tomorrow or write and request all the

other tests.

Her ferritin level was 25 ng/mL (*U 13-150)

TSH 1.72 mIU/L (*U0.35-4.5)

The r est of the tests were :Full blood count, glucose, estimated

glomerular filtratio, bone, creatinine & Urea and elecroly, liver

function & bone.

Her sleep is up the creek so that may point to adrenal probs.

Her basal temperature has consistently been below 36.6

Having support and practical info like this gets me back on track as I

get muddled and stressed about trying to sort things out and I also

anticipate resistance from the GP, which I haven't had yet, but I

still feel awkward. Hopefully I will get better with practice! My

daughter is too fatigued to pursue anything for herself yet but at

least she has some hope of getting sorted out now. We are both

learning a lot! By the way, Dr Peatfield's book arrived today so I had

better go and make a start on reading it.....

Thanks again

Jo

>

> Yes Jo I agree with you that it is very important that your daughter

> gets her ferritin up.

> Apart from anything else, if she does prove to need thyroid hormone

> it will not work well for her if her ferritin is too low.

> The glandular fever will have whacked her adrenals and, as you say,

> she was under stress before that which will have weakened the

> adrenals and then the glandular fever will have tipped the balance.

> The NHS will be unlikely to do the testing she needs, certainly as

> far as the adrenals are concerned.

> What you want is an Adrenal Stress Profile from Genova Diagnostics

> which costs £70. This will show the precise state of her adrenals at

> four points in the day i.e. 8 am, noon, 4 pm and midnight. The test

> the NHS does only gives a snapshot at one point in the day and this

> is no good because cortisol has a daily rhythm, being highest at 8 am

> and gradually sloping downwards throughout the course of the day and

> night as melatonin rises to enable sleep. Then when melatonin lowers

> in the morning, cortisol rises and so it goes on...

> So having this snapshot picture does not give enough information. A

> person's cortisol level might be fine at 8 am but not at the other

> times. This test is worth its weight in gold Jo and I would not

> hesitate in getting it done asap.

> You need a full thyroid panel as well and you may be able to get this

> from the NHS. If not, you can ask the GP if you can have the blood

> drawn by the practice and then send it off to the same lab. Usually

> the NHS will do the TSH and the FT4 but you also want the FT3 and

> antibodies. The FT3 cost me £18 a little while ago at a private lab

> so it is doable if you cannot get the full panel from the hospital or

> GP.

> Oops I just noticed you said that you had thyroid results already. So

> if you post those with the ranges, we can help you understand them a

> bit better.

> Dr Peatfield will sort her out, of that I am sure and he will want to

> see an adrenal saliva test result and a thyroid panel so it makes

> sense to them them now if you can.

>

> Mo

>

[Guest guest]

Hi

My doctor follows Myhill's protocol for treating fatigue. I have

found her comprehensive approach beneficial. Although I am hypothyroid

and adrenally fatigued there were definitely other illnesses that Dr

Myhill's approach helped me uncover and which contributed to my poor

health. I would recommend reading her book available for free on her

website.

http://www.drmyhill.co.uk/article.cfm?id=362

[Guest guest]

Hi Y'all,

I firmly believe Fibromylagia & CFS/ME is nothing more than symptoms

of Adrenal & Thyroid issues.

With low Cortisol & Thyroid Hormones of course EVERY system & organ

in body is affected. Including ATP & cellular respiration.

I was DXed with BOTH. I had VERY bad Fibro & CFS (sleeping up to 18

hours a day. Was on high dose painkillers for many years too.

Now that Adrenals & Thyroid are treated I dont have Fibro anymore, I

dont need any painkillers, I sleep 8-10 hours, brain now functions &

I'm not exhausted/short of breath etc..

Still need to lose weight & want more energy but have only cleared

RT3 recently so expect that to improve soon.

Lethal Lee

----------------------------------------------------------------

>

> Thank you so much for this post - I keep falling asleep for at

> least one day a week and at least once a week to a fortnight I get > massive

muscle and joint pain over my whole body, plus lots of

> random cold and infection symptoms, which all tests turn out

> negative for.

> What's your worry about 5HTP and what is the seratonin syndrome? I

> haven't heard this phrase before.

> V. interesting, thank you

> x

>

[Edit Abbrev Mod]

[Guest guest]

Thanks ,

I have downloaded it, but think it is one that deserves printing off when I have the time to file it properly.

Val

I would recommend reading her book available for free on herwebsite.http://www.drmyhill.co.uk/article.cfm?id=362

[Guest guest]

Hi Jo,

Your

daughter needs some elemental iron such as Ferrous Sulphate or Ferrous

Glutomate (200 mcgs daily with food) and also she should take high dose vitamin

C (3/4000mgs daily) to stop constipation with iron. She might even need more

vitamin C. This ferritin level is very low and is probably the cause of some of

her symptoms and lack of energy. If her GP refuses to prescribe these, you can

get these supplements at a good health food store.

If her

sleep is up the creek, this could be an indication that she is putting out too

much cortisol at night, so it will be interesting to see her ASI profile.

Luv -

Sheila

Her ferritin level was 25 ng/mL (*U 13-150)

TSH 1.72 mIU/L (*U0.35-4.5)

Her sleep is up the creek so that may point to adrenal probs.

Her basal temperature has consistently been below 36.6

[Guest guest]

Hi Y'all,

I firmly believe Fibromylagia & CFS/ME is nothing more than symptoms

of Adrenal & Thyroid issues.

With low Cortisol & Thyroid Hormones of course EVERY system & organ

in body is affected. Including ATP & cellular respiration.

I was DXed with BOTH. I had VERY bad Fibro & CFS (sleeping up to 18

hours a day. Was on high dose painkillers for many years too.

Now that Adrenals & Thyroid are treated I dont have Fibro anymore, I

dont need any painkillers, I sleep 8-10 hours, brain now functions &

I'm not exhausted/short of breath etc..

Still need to lose weight & want more energy but have only cleared

RT3 recently so expect that to improve soon.

Lethal Lee

----------------------------------------------------------------

>

> Thank you so much for this post - I keep falling asleep for at least

> one day a week and at least once a week to a fortnight I get massive

> muscle and joint pain over my whole body, plus lots of random cold

and

> infection symptoms, which all tests turn out negative for.

>

> What's your worry about 5HTP and what is the seratonin syndrome? I

> haven't heard this phrase before.

> V. interesting, thank you

> x

>

[Edit Abbrev Mod]

[Guest guest]

Hi,

My lovely daughter in law was diagnosed with ME and suffered for

years. She then stopped the contraceptive pill as they wanted a baby (

safely arrived earlier this week) as soon as she stopped the pill she

felt better and hasn't relapsed .

ME is a bag diagnosis which really means 'I know you're ill but I

haven't a clue!'

Subject: Re: New study by Dr Myhill proves

ME/CFS is physical

>

> We had a talk at our local M E group recently from the woman in charge

> of NHS M E services in our area.

>

> Miriam

>

Hi Miriam

That' an absolutely typical reaction of somebody who works in the NHS

and why nobody gets better from ME/CFS if they rely on the NHS in fact

they will be made worse if they are put on an exercise program if they

have underfunctioning mitochondria as Dr Myhill writes.

Its just an appalling situation but I do everything I can to at least

raise awareness and if at least one person is helped it will be worth

it.

BW

Pam

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

Jo ~ My TSH was exactly the same as your daughters when Dr Peatfield

diagnosed me so pay no attention if they tell you that your

daughter's is 'normal' as TSH can be in range and the FT4 and FT3 not

in optimum positions.

And I am not sure about this but I think a young person like your

daughter should have more robust levels of the Frees than an older

person. Maybe someone else could comment?

She may well have high cortisol at night keeping her awake and that

can be helped by Phosphytal Serine (sp?) taken at bed time as it

lowers cortisol as does zinc I believe. She would need to get the ASI

done before taking anything to lower high cortisol in the evening as

the ASI will tell you precisely what the situation is.

I appreciate your discomfort with the GP. I am the same, I have to

steel myself to go to see mine but, like I said, you do have options

so you are not totally relying on his support and goodwill. But it

sure would be nice if we could get it

Mo

> Thanks for your detailed reply. Sheila has sent me lots of useful

info

> and support too and I will arrange to have the saliva test done as

> soon as I can. My daughter is back in Bristol so I will discuss with

> her and maybe get her home for a few days and get as much testing

done

> as possible including the full thyroid profile and other tests

Sheila

> recommended. I will call her GP tomorrow or write and request all

the

> other tests.

>

> Her ferritin level was 25 ng/mL (*U 13-150)

> TSH 1.72 mIU/L (*U0.35-4.5)

>

> The r est of the tests were :Full blood count, glucose, estimated

> glomerular filtratio, bone, creatinine & Urea and elecroly, liver

> function & bone.

>

> Her sleep is up the creek so that may point to adrenal probs.

> Her basal temperature has consistently been below 36.6

>

> Having support and practical info like this gets me back on track

as I

> get muddled and stressed about trying to sort things out and I also

> anticipate resistance from the GP, which I haven't had yet, but I

> still feel awkward. Hopefully I will get better with practice! My

> daughter is too fatigued to pursue anything for herself yet but at

> least she has some hope of getting sorted out now. We are both

> learning a lot! By the way, Dr Peatfield's book arrived today so I

had

> better go and make a start on reading it.....

> Thanks again

> Jo

>

[Edit Abbrev Mod]

[Guest guest]

Hi Pam,

Are you sure you don't have Helicobacter Pylori?

The nickel activates the urease in HP.

best wishes

Bob

>

>

>

> I don't see how they can argue about this when the test involves a

> simple blood test.

>

> I had the test done about 4 years ago and my ATP was only 1.2 and

> considered low. Also there was poor conversion of ADP-ATP at 48%

but

> the Translactor was normal.

>

> The following year I had the test to see what was blocking the

> mitochondria, its called The Translactor Study and it showed there

> was a trace of lindane plus high DNA/RNA which Dr McClaren

> considered viral. Other tests through Dr show that my SOD

> enzyme which is important in detoxifying free radicals has low

enzyme

> activity and the enzyme involved with glutatione called

Glutatithione

> Peroxidase also has poor enzyme activity. Over the past 2 years

> there has been no improvement despite me taking a ton of good

quality

> supplements including 100 mg zinc daily I am still deficient, same

> for selenium.

>

> After re-reading Andy Cutler's book on Amalgam Illness

> (www.noamalgam.com) I have come to the conclusion I am still

poisoned

> with mercury and this is behind my thyroid/adrenal/poor ATP problem

> so I am going to restart a proper chelation programme to get the

> mercury and nickel out. My red blood cell nickel has actually gone

> up over the last 2 years and is still over range but maybe that is

> because I am actively detoxifying every day especially when I use

my

> Infra Red Sauna.

>

> I don't know how psychiatrists can say I have a psychological

problem

> when all my tests point to problem including tests showing high

> levels of heavy metals which are still affecting my immune system.

>

> I firmly believe everybody is poisoned to a greater or lesser

degree

> its just some have much better detoxification systems than I do.

> Shame the NHS knows nothing about the genetic individuality of the

> detoxification system we inherit.

>

> BW

> Pam

>

[Guest guest]

Hi Lethal Lee - can you tell us how you " cleared RT3 "

please. This is a subject that really interests me.

Luv - Sheila

Still need to lose weight & want more energy but have only cleared

RT3 recently so expect that to improve soon.

Lethal Lee

----------------------------------------------------------

[Guest guest]

Hi Shiela,

I cleared RT3 by going on T3 only. It took almost 4 months.

If interested you can see my progess in these threads

Tertroxin started How /When to Increase??????

RT3_T3/message/5388

Tertroxin Week 8 Update

RT3_T3/message/6620

I got up to 150mcg Tertroxin before I finally went Hyper just before

Xmas. I then stopped/reduced for a couple of days & restarted on 80-

100mcg taken in 4-5 doses. I remain on that dosing for the time being.

Almost a month later I have now lost a few kilos & motivation/energy

is improving. I can now do light exercise such as walking too.

Prior to T3 I got up to 4 1/4 grains Aussie Armour without any

resolution of remaining Hypo symptoms. I am also on 10mg Prednisolone

for Secondary AI & 2 tabs Florinef for Hypoaldosterone.

I also have these logs if interested

Labs Part One

http://forums.realthyroidhelp.com/viewtopic.php?t=2468

Labs Part Two

http://forums.realthyroidhelp.com/viewtopic.php?t=4645

Meds & Supps

http://forums.realthyroidhelp.com/viewtopic.php?t=2418

Personal/Family/Medical History & Background

http://forums.realthyroidhelp.com/viewtopic.php?t=2419

Temp & BP's, Pupil Response, Cardiology, Hair Analysis

http://forums.realthyroidhelp.com/viewtopic.php?t=2417

This is my main thread on RTH

Newbie Frustrated & Desperate (warning this ones very long)

http://forums.realthyroidhelp.com/viewtopic.php?p=30210#30210

Lethal Lee

-----------------------------------------------------------

>

> Hi Lethal Lee - can you tell us how you " cleared RT3 " please. This

is a subject that really interests me.

>

> Luv - Sheila

>

> Still need to lose weight & want more energy but have only cleared

> RT3 recently so expect that to improve soon.

>

> Lethal Lee

> ----------------------------------------------------------

>

[Guest guest]

> I cleared RT3 by going on T3 only. It took almost 4 months.

Is that as per Dr ?

Miriam

[Guest guest]

HI

Lethal Lee (we have another Lee on this forum who is part owner and a moderator

- so we need to make sure we know who were are writing to. I have read the

thread on the rT3 forum and your diary on the realthyroidhelp showing all

your laboratory tests, supplements, medical history, results etc etc. This

makes quite an amazing diary - and it has taken some reading through, but it

has helped me understand the situation much better. For anybody who has an rT3

problem, I would highly recommend you read these.

Luv -

Sheila

Hi Shiela,

I cleared RT3 by going on T3 only. It took almost 4 months.

If interested you can see my progess in these threads

Tertroxin started How /When to Increase??????

RT3_T3/message/5388

RT3_T3/message/6620

http://forums.realthyroidhelp.com/viewtopic.php?t=2468

http://forums.realthyroidhelp.com/viewtopic.php?t=4645

http://forums.realthyroidhelp.com/viewtopic.php?t=2418

http://forums.realthyroidhelp.com/viewtopic.php?t=2417

Newbie Frustrated & Desperate (warning this ones very long)

http://forums.realthyroidhelp.com/viewtopic.php?p=30210#30210

Lethal Lee

---------------------------------------------------------- In

[Guest guest]

>

Hi Sheila

I have just been on an NHS site that came up when I googled low

ferritin and it looks like she will need 3 x 200mg Ferrous sulphate or

glutomate daily. Would you agree? If her levels are very low, taking

one a day would take ages to raise the levels I would think.

I have now requested a repeat prescription for these tablets plus high

dose vit C and will be dropping a letter into the surgery on Monday

requesting the tests you recommended. I will also order a 24hr saliva

testing kit this weekend and will post the results when we have them.

One step at a time and we will get there.

Thanks for your info and encouragement. It makes a big difference.

Jo

Hi Jo,

>

> Your daughter needs some elemental iron such as Ferrous Sulphate or

Ferrous

> Glutomate (200 mcgs daily with food) and also she should take high dose

> vitamin C (3/4000mgs daily) to stop constipation with iron. She

might even

> need more vitamin C. This ferritin level is very low

>

> Her ferritin level was 25 ng/mL (*U 13-150)

> TSH 1.72 mIU/L (*U0.35-4.5)

>

[Guest guest]

Hi Jo -

yes, the NHS do recommend 200 mgs Ferrous Sulphate x 3 daily, but this can be

rather severe. This is why I err on the side of caution. I would tend to

split the difference and see how she gets on with two tablets daily of 200 mcgs

Ferrous Sulphate - but do remember the Vitamin C is VERY important and she must

take a high dose of this daily to stop any possible constipation, because too

much iron can cause this. If she is put on any form of thyroid hormone

replacement, she must take this at least four hours away from the iron.

Let us know

what happens with your request. I hope your GP takes all these on board.

Luv -

Sheila

I have just been on an NHS site that came up when I googled low

ferritin and it looks like she will need 3 x 200mg Ferrous sulphate or

glutomate daily. Would you agree? If her levels are very low, taking

one a day would take ages to raise the levels I would think.

[Guest guest]

Hi Sheila

Thanks for the advice.

The GP prescribed one a day as she was concerned about constipation

etc but I think she is tolerating this dose very well so I have

suggested she ups it to two. She does have a problem remembering so

the actual dose is probably less when she is not staying with me! She

is, theoretically, back at uni now but hasn't been in to workshops or

lectures yet. I think she may need to cut her losses and take time out

to get better but we are just seeing how things go just now and also

waiting to see what the tests show up.

Love, Jo

>

> Hi Jo - yes, the NHS do recommend 200 mgs Ferrous Sulphate x 3

daily, but

> this can be rather severe. This is why I err on the side of caution. I

> would tend to split the difference and see how she gets on with two

tablets

> daily of 200 mcgs Ferrous Sulphate - but do remember the Vitamin C

is VERY

> important and she must take a high dose of this daily to stop any

possible

> constipation, because too much iron can cause this. If she is put

on any

> form of thyroid hormone replacement, she must take this at least

four hours

> away from the iron.

>

> Let us know what happens with your request. I hope your GP takes all

these

> on board.

>

> Luv - Sheila

>

>

>

> I have just been on an NHS site that came up when I googled low

> ferritin and it looks like she will need 3 x 200mg Ferrous sulphate or

> glutomate daily. Would you agree? If her levels are very low, taking

> one a day would take ages to raise the levels I would think.

>

[Guest guest]

Hi

http://psy.psychiatryonline.org/cgi/content/abstract/49/4/277

Expect them to treat 's work with derision for about twenty years......maybe thirty...

The evidence is stacking up that most, if not all, psychiatric illness is down to the HPA axis......maybe, the rest is strictly vitamin B12 deficiciency ...

best wishes

Bob

>> Hi Pam, looks good :0), but we know how the psychiatrists will > react:0(> best wishes keith