Re: 1 year thyroid cancer survivor due to have another test in June

April 24, 2009

> Would professionals ever say it was cancer just to guard their own decisions?

Let's hope not. But I do not think they are willing to look at evidence that

their treatment protocols do not really heal very much. Many people in this

group have been through the same problems you are having. They have found that

iodine and Armour thyroid are the best healing regimen for them. I hope some of

them will respond.

Dorothy

April 24, 2009

Hi Heidi,I am not sure why you want to do the test, but maybe you don't have to. I have tortured myself in the past for tests that ended up not really showing me much, or showing me what I knew all along. I think you may be able to do more research on the subject first and then work with someone who knows about the protocol and you wouldn't have to put yourself through a month of hell. I don't know how I would survive a month with no thyroid, no hormones and no iodine!!! Is that even possible?

Best of luck,RobinOn Thu, Apr 23, 2009 at 2:25 PM, Heidi <bzgirl@...> wrote:

Hello,

I am Heidi, a 43 year old, 1 year thyroid cancer survivor (at least I think so). I say that because now my husband has put some doubt in me about the whole ordeal. Would professionals ever say it was cancer just to guard their own decisions?

Last year my regular physician noticed the lump on the right side of my neck that I knew was there for a period of a few months. Only the right side was enlarged. He sent me to a surgeon, and it went fast from there.

I had the ultrasound, the FNA (not once, but twice because it was inconclusive, so was the second). They were worried about cancer. My doctor wanted to remove the whole thyroid because cancer was suspect. Now I have no thyroid and have had one round of RAI. After my thyroid was sent to the lab, results said I had follicular carcinoma. They removed the whole thyroid to prevent spread of cancer. I seem to be doing well on Synthroid and take no other supplements at this time.

Sometimes I regret having the surgery (or at least the whole surgery) and am truly scared about going through 4 weeks (I say 4 weeks because it is about that including time after the test until I can start eating normal) of Iodine deficiency just for a test. I believe I am to go off of the Synthroid at this time as well. I have placed a call to the doctor because I am not real sure of exactly what I am to have done other than the small dose of RAI for the uptake scan. Last year I had the large does too.

My main concern at this time is the period spent off of what my body really needs. I don't want to harm my body by being purposely difficient. It greatly effects my moods, water and weight gain, muscle tension, joint stiffness. I don't want to go through this again during Spring/Summer just when I really needed the change in weather to help my depression. Maybe it sounds selfish, but I don't want to use up most of my " good time " in the year and not be able to be of use or fully functional or enjoy it.

Heidi

April 25, 2009

Hi hon

Not sure what good taking you off thyroid hormones for a whole month will do, if

you have no thyroid at all it sounds quite detramental to me. But I am not a Dr.

If I were you I would discuss the problems your body might have without a supply

of thyroid hormones for that time, the escalating TSH which will follow and once

the supply of T4 you actually have in your body is exhausted what will happen

then? The half life is fairly long but even I wouldn't like to be off thyroid

hormones that length of time and I have a small bit of thyroid left.

I would ask them questions about going very hypo and the possible problems

associated with that during the time off synthroid.

Good luck

lotsa luv

Dawnx

April 25, 2009

Dear Heidi,Have you thought of having a thermography done on your thyroid in your normal status. It might answer the question without going thru the month off thyroid medicine. My doctor insisted that I stay consistent with thyroid meds once going on them because missing them could impact my heart and she wasn't willing to put me on them if I wasn't going to stay consistent in taking them. At the time, I was on no meds or supplements. Hard to believe these days.... Pam

On Sat, Apr 25, 2009 at 3:32 PM, stfluffybrain <stfluffybrain@...> wrote:

Hi hon

Not sure what good taking you off thyroid hormones for a whole month will do, if you have no thyroid at all it sounds quite detramental to me. But I am not a Dr.

If I were you I would discuss the problems your body might have without a supply of thyroid hormones for that time, the escalating TSH which will follow and once the supply of T4 you actually have in your body is exhausted what will happen then? The half life is fairly long but even I wouldn't like to be off thyroid hormones that length of time and I have a small bit of thyroid left.

I would ask them questions about going very hypo and the possible problems associated with that during the time off synthroid.

Good luck

lotsa luv

Dawnx

April 25, 2009

Heidi - I am assuming they are doing the "annual RAI scan". This may require that you go off medication for 6 weeks and do a low iodine diet for 2 weeks. I have to say that these are the most asinine things to do to a thyroid cancer patient. I did this 3 times and had RAI ablation 3 times - 100 mCi's, 150 mCi's and 250 mCi's. They almost killed me. Each time I ascended into hell from hypo being off thyroid meds. You can read my story on my website www.naturalthyroidchoices.com Did they do a thyroglobulin level when your TSH is suppressed (less than .1)? I use this as a marker. If it rises while suppressed then you need to worry but if it stays low then you are fine. They scare you with the recurrence thing. What helps the body is high doses of Lugol's Iodine. It normalizes cell cycles and creates death in abnormal cells. Taking 50 mgs of Iodoral (pill form of Lugol's) is what brought my markers down when RAI failed. I am now 3 years on this protocol after refusing to do external beam radiation. I am 4 years past my last RAI and doing well but as you will read in my blog / story it has been a long and hard journey to get well.

1 year thyroid cancer survivor due to have another test in June

Hello,I am Heidi, a 43 year old, 1 year thyroid cancer survivor (at least I think so). I say that because now my husband has put some doubt in me about the whole ordeal. Would professionals ever say it was cancer just to guard their own decisions?Last year my regular physician noticed the lump on the right side of my neck that I knew was there for a period of a few months. Only the right side was enlarged. He sent me to a surgeon, and it went fast from there.I had the ultrasound, the FNA (not once, but twice because it was inconclusive, so was the second). They were worried about cancer. My doctor wanted to remove the whole thyroid because cancer was suspect. Now I have no thyroid and have had one round of RAI. After my thyroid was sent to the lab, results said I had follicular carcinoma. They removed the whole thyroid to prevent spread of cancer. I seem to be doing well on Synthroid and take no other supplements at this time.Sometimes I regret having the surgery (or at least the whole surgery) and am truly scared about going through 4 weeks (I say 4 weeks because it is about that including time after the test until I can start eating normal) of Iodine deficiency just for a test. I believe I am to go off of the Synthroid at this time as well. I have placed a call to the doctor because I am not real sure of exactly what I am to have done other than the small dose of RAI for the uptake scan. Last year I had the large does too.My main concern at this time is the period spent off of what my body really needs. I don't want to harm my body by being purposely difficient. It greatly effects my moods, water and weight gain, muscle tension, joint stiffness. I don't want to go through this again during Spring/Summer just when I really needed the change in weather to help my depression. Maybe it sounds selfish, but I don't want to use up most of my "good time" in the year and not be able to be of use or fully functional or enjoy it.Heidi

April 26, 2009

I remember when I was on Levothyroxine and the doc took me off for a month or 6

weeks then starting to build me back up. He said it was because my dose was out

of whack. Yah I believe that one. About a month into it I took him by the lapels

with tears streaming down my face telling him " YOU WILL PUT ME BACK ON MY

THYROID " He did. I did get a little better.

I never got as better as I was after starting thyroid the first time when my

thyroid went bad years before. Sigh. But taking Levo or synthriod made my heart

pound and pulse close to 100. He was taking me off to try to get my pulse down.

Years later I just quit taking any thyroid. It was not really helping me and

still making my heart pound too hard and fast. I did not have the emotional

problems I had the first time. I was taking Atomodine but had to quit that too

after about 3/4 bottle. Heart/chest pain again. So far I am not having that on

the Iodoral. And Yes my weight has gone up since going off the thyroid. Sigh.

I have felt much more energy on the Iodoral and I think my brain is more clear /

sharper. I was having serious brain fog. Not sure if it was the stuff I was

taking for the cancer I had or the lack of Iodine.

Maggie

Re: 1 year thyroid cancer survivor due to have another test in

June