fwd: research study: Familial Lymphoproliferative Disorders

[Guest guest]

Forwarding information from the webmagic list. ~ Karl

Hi everyone,

I hope everyone is doing well. I want to share some information about a

research study that you can join at Sloan-Kettering.

Yesterday afternoon I went over the final details of a research study

offered by Sloan-Kettering over the phone with Christie, a research

assistant of the team conducting this study. Presently, there is no genetic

test to determine if a familial link exists in the diagnosis of lymphoma or

lymphoproliferative disorders (Hodgkin's Disease, Non-Hodgkin's Lymphoma,

leukemia, multiple myeloma, and other similar diseases) but the hope of this

study is that the information gathered may lead to such a genetic test.

Interestingly, genetic tests do exist for other cancers but not for

lymphoproliferative disorders. So, let's hope this study leads to come

helpful answers.

I answered a couple of simple questions about my medical and family history

over the phone and then, now all I need to do is wait for the simple cheek

swab kit that they're going to send me in a few weeks. Because my blood

(following the allo SCT) reflects my donor's genetic heritage and not my

own, a sample of my cheek cells, which still maintain my own unique genetic

material, must be used. Isn't that pretty cool?

This research study is free and can be done entirely via the phone and mail.

Sloan-Kettering pays the entire bill and one doesn't have to be a patient of

Sloan-Kettering in order to participate in this study. Patients of lymphoma

and other blood cancers as well as their parents and siblings are eligible

(regardless of medical hospital or institution) to participate in this

research study.

I told Christie, the research assistant, that I'd spread the word about this

study in the hope that others may consider participating. She said that you

can call her at 212-434-5112 for any questions or inquiries. You can learn

more about this research study which is named, " Ascertainment of Families

for Genetic Studies of Familial Lymphoproliferative Disorders, " at

http://www.mskcc.org/mskcc/html/2270.cfm?IRBNO=00-069

Please tell others about this study as well. The more, the merrier.

Thanks!

--------------------

Duane

27/Male

DX 11/2003 Stage 2A NSHD: 6 cycles ABVD and radiation; Remission

DX 8/2005 Relapsed Stage 1A NSHD: Auto SCT; Remission

DX 1/2007 with Relapsed NSHD after splenectomy: 3 cycles of antibody SGN-30

and chemotherapy GND (GVD) Phase II clinical trial; Remission

8-9/2007: Allo SCT w/cytoxan, fludarabine, ATG, and TBI

10/2007: PET scan negative

http://journalofaprizefighter.blogspot.com