Guest guest Posted March 10, 2000 Report Share Posted March 10, 2000 Pat I am known as the cracked mini nut in my FMS group because I make dollhouse accessories and have a cracked sense of humor so that is great news to me, without my humor I would have given up long ago!!! I have 6 1/2 cats how is that for a sense of humor. No I did not cut kitty in half, she belongs to my neighbor but lives most of the time in my house..... And I LOVE chocolate in any form!! Bad for me I know but one of life's few pleasures now!!! FlirtingSingles-Subscribeonelist ICQ 53887676 AOL and SCGal1953 From: patlinda <patlinda@...> , This is a great group and we encourage people to share their experiences. We have several other members with fibro and with lupus so hopefully, your sharing experiences can help one another. I am one of the moderators but actually this group is so supportive and compassionate there is not much work to my job. a does the hard work with looking up info on anything you have questions about - if it is out there, she will find it. We love talking about our animals and chocolate - you just can't be serious all the time. Welcome to the group. Pat At 11:01 PM 03/09/2000 -0500, you wrote: >From: " " <laura@...> > >It sounds like I can feel safe in posting so hello all, I like the good >caring groups where you do not have to worry about getting attacked. I am > 46 from SC, have Fibromalgia definitely and possible CFS, or >borderline case of Lupus also so this group sounded interesting!! > >FlirtingSingles-Subscribeonelist >ICQ 53887676 AOL and SCGal1953 > > > > ----- Original Message ----- > From: Joan > onelist > Sent: Thursday, March 09, 2000 4:14 PM > Subject: Re: [ ] Welcome - LAURA > > > From: Joan <cdx7159@...> > > Hi, , > > Let me take this opportunity to welcome you with open arms to this > wonderful group of people. This is one of the most caring, loving, > compassionate and understanding groups that you will ever find. They > have helped me thru many rought spots. Please feel free to share with us > whatever you wish to. Nobody will criticize, judge, or condemn. They > will just offer support big time and try to answer any questions that > you might have. I was on a list once where they were always fighting and > were very judgmental. I have neither the time or the inclination to > channel what little energy I do have into any kind of negativity. Once > again, WELCOME, LAURA!! > > Hugs, > Joan > > > patlinda wrote: > > > > From: patlinda <patlinda@...> > > > > Welcome to our list. We look forward to hearing from you. > > Pat > >------------------------------------------------------------------------------ > > > >------------------------------------------------------------------------------ > URL to change your membership options and read archived messages: > /group/ > RA-support website: http://www.rasupport.webprovider.com/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 , Sounds like you will fit in this group just fine. Pat At 11:51 PM 03/09/2000 -0500, you wrote: >From: " " <laura@...> > >Pat I am known as the cracked mini nut in my FMS group because I make >dollhouse accessories and have a cracked sense of humor so that is great >news to me, without my humor I would have given up long ago!!! I have 6 >1/2 cats how is that for a sense of humor. No I did not cut kitty in >half, she belongs to my neighbor but lives most of the time in my >house..... And I LOVE chocolate in any form!! Bad for me I know but one >of life's few pleasures now!!! > >FlirtingSingles-Subscribeonelist >ICQ 53887676 AOL and SCGal1953 > > > > > > From: patlinda <patlinda@...> > > , > > This is a great group and we encourage people to share their experiences. > We have several other members with fibro and with lupus so hopefully, your > sharing experiences can help one another. > > I am one of the moderators but actually this group is so supportive and > compassionate there is not much work to my job. a does the hard work > with looking up info on anything you have questions about - if it is out > there, she will find it. > > We love talking about our animals and chocolate - you just can't be > serious > all the time. > > Welcome to the group. > > Pat > > At 11:01 PM 03/09/2000 -0500, you wrote: > >From: " " <laura@...> > > > >It sounds like I can feel safe in posting so hello all, I like the good > >caring groups where you do not have to worry about getting > attacked. I am > > 46 from SC, have Fibromalgia definitely and possible CFS, or > >borderline case of Lupus also so this group sounded interesting!! > > > >FlirtingSingles-Subscribeonelist > >ICQ 53887676 AOL and SCGal1953 > > > > > > > > ----- Original Message ----- > > From: Joan > > onelist > > Sent: Thursday, March 09, 2000 4:14 PM > > Subject: Re: [ ] Welcome - LAURA > > > > > > From: Joan <cdx7159@...> > > > > Hi, , > > > > Let me take this opportunity to welcome you with open arms to > this > > wonderful group of people. This is one of the most caring, loving, > > compassionate and understanding groups that you will ever find. They > > have helped me thru many rought spots. Please feel free to share > with us > > whatever you wish to. Nobody will criticize, judge, or condemn. They > > will just offer support big time and try to answer any questions that > > you might have. I was on a list once where they were always > fighting and > > were very judgmental. I have neither the time or the inclination to > > channel what little energy I do have into any kind of negativity. Once > > again, WELCOME, LAURA!! > > > > Hugs, > > Joan > > > > > > patlinda wrote: > > > > > > From: patlinda <patlinda@...> > > > > > > Welcome to our list. We look forward to hearing from you. > > > Pat > > > > >------------------------------------------------------------------------------ > > > > > > > > >------------------------------------------------------------------------------ > > URL to change your membership options and read archived messages: > > /group/ > > RA-support website: http://www.rasupport.webprovider.com/ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Thanks Pat if I can keep up anyhow!!! FlirtingSingles-Subscribeonelist ICQ 53887676 AOL and SCGal1953 From: patlinda <patlinda@...> , Sounds like you will fit in this group just fine. Pat At 11:51 PM 03/09/2000 -0500, you wrote: >From: " " <laura@...> > >Pat I am known as the cracked mini nut in my FMS group because I make >dollhouse accessories and have a cracked sense of humor so that is great >news to me, without my humor I would have given up long ago!!! I have 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2000 Report Share Posted May 29, 2000 Nice to see that you and your humor and wisdom are back, Pat! Hope the move wasn't too hard on you and that you are feeling very good. ----- Original Message ----- From: " patlinda " <patlinda@...> < egroups> Sent: Saturday, May 27, 2000 11:27 PM Subject: Re: [ ] I am frustration... > Donna Marie, > > First, I think you need to scream but after that I would switch doctors. > Any doctor that says 'just fibro " is not the kind of doctor you need. Fibro > is terribly painful and sometimes very difficult to treat - there is no > such thing as 'just fibro'. BTW, I do not have fibro so that is an > objective opinion. > > Pain control is essential - whether RA, Lupus or fibro and if your doctor > does not share that view - I would ditch him. > > We may not be able to eliminate pain with these diseases but there is much > that can be done to help make the pain manageable and a doctor should be > helping you do that. The antidepressant may help with the pain but it is > not a replacement for pain medication. > > Sorry you are hurting so much and hope you get some relief soon. Now your > throat probably hurts from screaming in addition to everything else - guess > I did not give the best advice. > > Welcome to the group. I hope you are finding the friendship and support > that most of us are. > > Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2000 Report Share Posted December 12, 2000 , I am glad that I finally feel better - this has been a rugged few months but it is getting better. I am optimistic about the biopsy - I have dealt with enough recently so this will be fine. It is great that you could go see your grandmother and that she is doing so well. We can learn do much from the elders around us - they have wisdom that is not available in books. Stay warm and don't get careless in the snow. Our snow is drifting so badly - the roads fill in as soon as they are plowed. The wind chills tonight are -40 to -50, a time to stay indoors. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 How are you doing? Just wanted to let you know you are being thought of. Looking forward to hearing from you wheb you are feeling up to it. I am assuming your surgery tomorrow is scheduled for early morning, right? Best of luck! Debra ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2001 Report Share Posted January 15, 2001 Tina, i can understand how you feel even though i don't have RA. When the drs told me that my beautiful blonde blue 4yr had JRA i was devasted and then when he was 5 he had to have a lung byopsy and that confirmed that he had related lung disease. is almost 12 and he has many good days and bad days. he has seen 3 different Ped. Rhuem. and the last one is the only one that has treated his JRA aggressively. Its not easy for him to live each day knowing that he is different then the other kids and kids pick on him and teachers ignore him and he gets left behind alot of the time but he surrounds himself with friends that understand and stick by him and he has me to fight for him when the school discriminates against him and he has 4 brothers that would do anything for him. He has a dad that will drop everything to be here if he needs him and great parents that adore him and moms boyfriend will give him the world. is greatful that he has what he has and we deal with the bad days the best we can. When i see i see a bright cute boy that has more courage and more strength then any person i know. I don't always deal well with his illness because it hurts me to see him hurt and i get frustrated and he and i will have our little fights about his meds and what things he should or shouldn't do but in the end we work it out. I try not to be to over protective and teach him independence cause i won't always be there for him. So basicly iam telling you its gonna be hard but your gonna do ok and everyone in this group will understand and help you anyway they can. You will learn many things here and you will cry with some of us and laugh with some of us. I think this group will become an extended family for you as it has with so many of us. Welcome to the group. I don't usually get so verbal but i have my moments when i am so greatful for this group and want to share it with all the new people. take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2001 Report Share Posted January 16, 2001 Tina, I remember being scared when they told me I had RA, I thought my life was over, I was depressed for weeks. Then when the medicine kicked in and I realized I could move again, I thought maybe I could deal with this after all. Don't give up yet, tho you might have to life your life a little differently, it still a life worth living. Judy in Texas > -----Original Message----- > From: Sprytm267@... [mailto:Sprytm267@...] > Sent: Monday, January 15, 2001 6:37 PM > egroups > Subject: [ ] Pat > > > Pat, > > I read the email you sent to Janick & just wanted to thank you for the > inspiration. I was recently diagnosed & my doc started me on Prednisone > today because my symptoms came back again once I was off the > Medrol (another > steroid). Anyway, I see him in 2 weeks to discuss " treatment > options " & I've > been depressed all day. Til now I''ve had a very active life & > I'm scared to > loose that. Your story is inspirational to me. Any suggestions on which > DMARD to start with? I'd like to be informed when I see him in > two weeks, so > all info. is greatly appreciated. > > Thanks again Pat, > Tina > > > > Quote Link to comment Share on other sites More sharing options...
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