Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 has had an influx of new members, I'm guessing because of the change in format of CLLtopics from an e-mail discussion group to a website. We've had a sudden boost of about 10% in our membership. The list has evolved over the years principally as a vehicle for me to post stuff I've gleaned from a pretty much daily perusal of a bunch of websites I've come across that address the latest developments in CLL and related subjects. I'm a evidence-based medicine guy, and that means if an idea is tested, peer-reviewed, re-tested and published in a legitimate medical journal, I'm interested in what it has to say. I cannot and will not say that sacred raindrops from Mount McKinley can't help in CLL, but I'm not going to be convinced unless I see it published in a scientific journal, and then subsequent studies demonstrate reproducible findings. Occasionally, list members will post what they find on the web, or their personal experiences, etc. These posts are certainly fine and as long as they contribute to the increase in knowledge about things CLL, I'm happy about it. One thing that seemingly has been somewhat neglected is our lobbying efforts. I'm as guilty as anyone, but I don't seem to get a heads up regarding pressing legislative business. So advocacy posts are especially welcomed. Finally, if you have any concerns about posts, ideas for bettering the group format, or just general comments, please e-mail them to me at: scott_fs@... Thanks Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.