Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 When I had a CT scan done my platelets dropped and never recovered. My Oncologist said that the CT scan had nothing to do with it but I read different. He had my CT scan from another Oncologist that I go to but wanted to have one done for him so I had two done in 6 months time. I won't let them do another in the future unless they provide sufficient evidence it is necessary. My Oncologist tells me a number of things that are opposite from what I read. I think he lies to me for his own convenience. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I have had about 6 CT-Scans since December 2000 ( re so far successful colon cancer surgery and intermittent chemo post- surgery). I was to have another CT Scan in about 2003, but refused after several discussions with my oncologist regarding MY concerns about excessive radiation exposure. Since I already had a quiet Stage 0 CLL, I worried about what another Scan would do to it --- wake it up to become aggressive perhaps? Now my oncologist(s) are talking about it being time for another Scan, either CT Scan or PET-Scan. I've asked this question before, but ---- is one type Scan less risky re radiation than the other ? I welcome any and all information on this topic. Are there any radiology docs out there reading this? --Thanks, ----Bill, dx'd CLL 1996 The dangers of CT scans >I agree that CT scans can expose the patient to > substantial levels of radiation. An abdominal CT > scan, for example, is the equivalent of 400 chest > X-rays, or 333 round-trip flights from LA to New York, > all in a few seconds. > > However, sometimes they are medically necessary. > However, doctors need to know the dangers, and > certainly the patient must be informed of the risks > and benefits. > > I've avoided most CT scans, though I had one (turned > out to be unnecessary after the fact) when a chest > X-ray showed a spot on my lung. > > --- minolfa <rapaccini.carlo@...> wrote: > >> >> >> >> http://www.medscape.com/viewarticle/545569?src=mp >> >> >> >> From The Hastings Center Report >> >> Carcinogenic Diagnosis >> Posted 10/18/2006 >> >> e Fugh-Berman >> >> " If a diagnostic procedure increases cancer risk, >> should patients be >> informed of that risk? Apparently not, at least for >> one procedure >> performed more than 150,000 times a day in the >> United States.[1] CT >> scans use multiple x-rays to create >> three-dimensional images that >> are diagnostically useful but expose people to far >> more radiation >> than conventional x-rays. In fact, one CT scan >> exposes a patient to >> the lower range of radiation received by some >> Nagasaki bombing >> survivors. Up to one in a thousand patients will >> develop cancer from >> this exposure.[2] Sixty million CT scans a year will >> thus cause >> cancer in thousands of people. Yet most consent >> forms are silent >> about this. >> >> The cancer-causing effects of CT scans are routinely >> discussed in >> the medical literature, and some researchers have >> worried about the >> long-term effects, especially in children, who have >> more dividing >> cells to disrupt and more time to develop cancer. >> Others trivialize >> the risk, arguing that the benefits are worth it. >> Yet patients >> undergoing CT scans are informed of the much rarer >> risks of serious >> complications and deaths (one in 400,000) caused by >> injection of >> iodinated contrast material. Serious allergic >> reactions are dramatic >> and almost immediate, but most people will survive >> even severe >> allergic reactions, especially when they take place >> in a health care >> facility. Cancers may take decades to manifest, but >> can be >> devastating. And that an effect is delayed is hardly >> justification >> for not mentioning it; informed consent for cancer >> treatment >> includes discussion of the long-term risks of >> inducing new cancers. " >> >> >> >> >> >> >> >> > > > > > ________________________________________________________________________________\ ____ > We have the perfect Group for you. Check out the handy changes to > Groups > (http://) > > > > Let's keep the list UNCLUTTERED!!! > > To do ANY HOUSEKEEPING business such as changing the way you get mail, > please go to mygoups or mail me at > scott_fs@.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Bill, Tell them you want a MRI scan instead of CT or PET scan. I did just that. The MRI scan was scheduled, but when I showed up at the Imaging Center they were still trying to persuade me to do a CT scan instead. They set up a conference call with my PCP, onc and radiologist while I was lying on the MRI platform! I stuck to my guns and finally they gave up and did the MRI. After all this hassle, the MRI gave a good picture of my lymph nodes, spleen and liver. They didn't even have to bother to apply a contrast agent. What one has to keep in mind is that medical decisions aren't always dictated by the patient's benefit. Sometimes convention and the doctor's convenience are given higher priority. If you've done your homework and know what you're doing, don't be afraid to be hardnosed! Andy The dangers of CT scans >I agree that CT scans can expose the patient to > substantial levels of radiation. An abdominal CT > scan, for example, is the equivalent of 400 chest > X-rays, or 333 round-trip flights from LA to New York, > all in a few seconds. > > However, sometimes they are medically necessary. > However, doctors need to know the dangers, and > certainly the patient must be informed of the risks > and benefits. > > I've avoided most CT scans, though I had one (turned > out to be unnecessary after the fact) when a chest > X-ray showed a spot on my lung. > > --- minolfa <rapaccini.carlo@...> wrote: > >> >> >> >> http://www.medscape.com/viewarticle/545569?src=mp >> >> >> >> From The Hastings Center Report >> >> Carcinogenic Diagnosis >> Posted 10/18/2006 >> >> e Fugh-Berman >> >> " If a diagnostic procedure increases cancer risk, >> should patients be >> informed of that risk? Apparently not, at least for >> one procedure >> performed more than 150,000 times a day in the >> United States.[1] CT >> scans use multiple x-rays to create >> three-dimensional images that >> are diagnostically useful but expose people to far >> more radiation >> than conventional x-rays. In fact, one CT scan >> exposes a patient to >> the lower range of radiation received by some >> Nagasaki bombing >> survivors. Up to one in a thousand patients will >> develop cancer from >> this exposure.[2] Sixty million CT scans a year will >> thus cause >> cancer in thousands of people. Yet most consent >> forms are silent >> about this. >> >> The cancer-causing effects of CT scans are routinely >> discussed in >> the medical literature, and some researchers have >> worried about the >> long-term effects, especially in children, who have >> more dividing >> cells to disrupt and more time to develop cancer. >> Others trivialize >> the risk, arguing that the benefits are worth it. >> Yet patients >> undergoing CT scans are informed of the much rarer >> risks of serious >> complications and deaths (one in 400,000) caused by >> injection of >> iodinated contrast material. Serious allergic >> reactions are dramatic >> and almost immediate, but most people will survive >> even severe >> allergic reactions, especially when they take place >> in a health care >> facility. Cancers may take decades to manifest, but >> can be >> devastating. And that an effect is delayed is hardly >> justification >> for not mentioning it; informed consent for cancer >> treatment >> includes discussion of the long-term risks of >> inducing new cancers. " >> >> >> >> >> >> >> >> > > > > > __________________________________________________________ > We have the perfect Group for you. Check out the handy changes to > Groups > (http://) > > > > Let's keep the list UNCLUTTERED!!! > > To do ANY HOUSEKEEPING business such as changing the way you get mail, > please go to mygoups or mail me at > scott_fs@.... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Congratulations on you becoming part of your own health care. I've demanded (and received) MRIs instead of CT scans for CLL-related abdominal scans. I was concerned with enlarging abdominal nodes, so I had an MRI twice in 2006. The pathologist apparently had absolutely no problems detecting node location and size. I'd ask your oncologist and/or radiologist if you could have an MRI instead of a CT scan. PET scans may also be a possibility. This type of scan looks for higher-than-usual glucose metabolism, thus spotting areas of fast growth, such as cancer. I don't know if it is as good for understanding tumor location and size. Things to ask your oncologist. CT scans are sometimes necessary, such is acute trauma cases. For some reason, CT scans are easier to do and the machines are more available. I had to make an appointment for my scan. To be honest, I would pay out of my own pocket the difference in cost, if any, just to protect my own body. My opinion is that routine CT scans at diagnosis (which I unfortunately had) is not justified at all, and the risks outweigh the benefits. --- O'Donnell <wodonnell1@...> wrote: > I have had about 6 CT-Scans since December 2000 ( re > so far successful colon > cancer surgery and intermittent chemo post- > surgery). I was to have another > CT Scan in about 2003, but refused after several > discussions with my > oncologist regarding MY concerns about excessive > radiation exposure. Since > I already had a quiet Stage 0 CLL, I worried about > what another Scan would > do to it --- wake it up to become aggressive > perhaps? Now my oncologist(s) > are talking about it being time for another Scan, > either CT Scan or > PET-Scan. I've asked this question before, but ---- > is one type Scan less > risky re radiation than the other ? I welcome any > and all information on > this topic. Are there any radiology docs out there > reading this? > --Thanks, > ----Bill, dx'd CLL 1996 > The dangers of CT scans > > > >I agree that CT scans can expose the patient to > > substantial levels of radiation. An abdominal CT > > scan, for example, is the equivalent of 400 chest > > X-rays, or 333 round-trip flights from LA to New > York, > > all in a few seconds. > > > > However, sometimes they are medically necessary. > > However, doctors need to know the dangers, and > > certainly the patient must be informed of the > risks > > and benefits. > > > > I've avoided most CT scans, though I had one > (turned > > out to be unnecessary after the fact) when a chest > > X-ray showed a spot on my lung. > > > > --- minolfa <rapaccini.carlo@...> wrote: > > > >> > >> > >> > >> > http://www.medscape.com/viewarticle/545569?src=mp > >> ________________________________________________________________________________\ ____ Cheap Talk? Check out Messenger's low PC-to-Phone call rates (http://voice.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 If you believe your oncologist is lying to you, you might confront him/her on this, or find an oncologist you have confidence in. --- twosteprav <twosteprav@...> wrote: > When I had a CT scan done my platelets dropped and > never recovered. My > Oncologist said that the CT scan had nothing to do > with it but I read > different. > > He had my CT scan from another Oncologist that I go > to but wanted to > have one done for him so I had two done in 6 months > time. I won't let > them do another in the future unless they provide > sufficient evidence > it is necessary. > > My Oncologist tells me a number of things that are > opposite from what I > read. I think he lies to me for his own convenience. > > > ________________________________________________________________________________\ ____ Access over 1 million songs - Music Unlimited (http://music./unlimited) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 I agree that everybody needs to become part of your own health care. For the vaccine trial that is currently starting with Genitope, they will not allow a MRI for some reason. I asked them to change, but will not. My only recourse is to get the first CT scan on intro to the study and then withdraw before they finish since they want another one at the end of the study. There is a very good book out there that I am sure some of you have read. " The Patient from Hell " . This group is also very helpful in this as well. " S. " <scott_fs@...> wrote: Congratulations on you becoming part of your own health care. I've demanded (and received) MRIs instead of CT scans for CLL-related abdominal scans. I was concerned with enlarging abdominal nodes, so I had an MRI twice in 2006. The pathologist apparently had absolutely no problems detecting node location and size. I'd ask your oncologist and/or radiologist if you could have an MRI instead of a CT scan. PET scans may also be a possibility. This type of scan looks for higher-than-usual glucose metabolism, thus spotting areas of fast growth, such as cancer. I don't know if it is as good for understanding tumor location and size. Things to ask your oncologist. CT scans are sometimes necessary, such is acute trauma cases. For some reason, CT scans are easier to do and the machines are more available. I had to make an appointment for my scan. To be honest, I would pay out of my own pocket the difference in cost, if any, just to protect my own body. My opinion is that routine CT scans at diagnosis (which I unfortunately had) is not justified at all, and the risks outweigh the benefits. --- O'Donnell <wodonnell1@...> wrote: > I have had about 6 CT-Scans since December 2000 ( re > so far successful colon > cancer surgery and intermittent chemo post- > surgery). I was to have another > CT Scan in about 2003, but refused after several > discussions with my > oncologist regarding MY concerns about excessive > radiation exposure. Since > I already had a quiet Stage 0 CLL, I worried about > what another Scan would > do to it --- wake it up to become aggressive > perhaps? Now my oncologist(s) > are talking about it being time for another Scan, > either CT Scan or > PET-Scan. I've asked this question before, but ---- > is one type Scan less > risky re radiation than the other ? I welcome any > and all information on > this topic. Are there any radiology docs out there > reading this? > --Thanks, > ----Bill, dx'd CLL 1996 > The dangers of CT scans > > > >I agree that CT scans can expose the patient to > > substantial levels of radiation. An abdominal CT > > scan, for example, is the equivalent of 400 chest > > X-rays, or 333 round-trip flights from LA to New > York, > > all in a few seconds. > > > > However, sometimes they are medically necessary. > > However, doctors need to know the dangers, and > > certainly the patient must be informed of the > risks > > and benefits. > > > > I've avoided most CT scans, though I had one > (turned > > out to be unnecessary after the fact) when a chest > > X-ray showed a spot on my lung. > > > > --- minolfa <rapaccini.carlo@...> wrote: > > > >> > >> > >> > >> > http://www.medscape.com/viewarticle/545569?src=mp > >> __________________________________________________________ Cheap Talk? Check out Messenger's low PC-to-Phone call rates (http://voice.) --------------------------------- Access over 1 million songs - Music Unlimited Try it today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Hi , Risks of CT may not be trivial, but they can be overstated. For one perspective on this, see: http://www.lymphomation.org/ct.htm#risks ~ Karl The dangers of CT scans > > > >I agree that CT scans can expose the patient to > > substantial levels of radiation. An abdominal CT > > scan, for example, is the equivalent of 400 chest > > X-rays, or 333 round-trip flights from LA to New > York, > > all in a few seconds. > > > > However, sometimes they are medically necessary. > > However, doctors need to know the dangers, and > > certainly the patient must be informed of the > risks > > and benefits. > > > > I've avoided most CT scans, though I had one > (turned > > out to be unnecessary after the fact) when a chest > > X-ray showed a spot on my lung. > > > > --- minolfa <rapaccini.carlo@...> wrote: > > > >> > >> > >> > >> > http://www.medscape.com/viewarticle/545569?src=mp > >> __________________________________________________________ Cheap Talk? Check out Messenger's low PC-to-Phone call rates (http://voice.) --------------------------------- Access over 1 million songs - Music Unlimited Try it today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 In a purely technical sense, there is no safe dose of radiation. So- called background radition can trigger cancers. CT scans have been linked conclusively with a small, but very real risk of cancer in patients. The commonsense message to take home, IMO is to evaluate every proposal to use ionizing radiation on you (these are high-energy sources of electro-magnetic radiation, including X-rays and other radiation used for diagnostic purposes), and make a decision with your doctor on safe alternatives that may be available. These would include MRIs and ultrasounds. I DO WANT TO STRESS, that sometimes CT scans and X-rays are vital to your health, and MAY SAVE YOUR LIFE! Just be aware, and consult with the doctor. I've argued with a number of doctors, and I've avoided MOST CT scans. However, with my latest lung cancer scare, I gave the go-ahead for a CT scan since I was in the middle of immunosuppresive chemotherapy, and I didn't want to continue with that therapy if it was going to affect another cancer. Just be aware and knowledgeable, folks. PS, it is your body, and they CANNOT perform any medical procedure on you if you are able to make an informed and rational contribution to your own care. > > Hi , > > Risks of CT may not be trivial, but they can be overstated. > For one perspective on this, see: > http://www.lymphomation.org/ct.htm#risks > > ~ Karl > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 At 06:14 PM 10/31/06, " S. " wrote: >However, with my >latest lung cancer scare, I gave the go-ahead for a CT scan since I >was in the middle of immunosuppresive chemotherapy, and I didn't >want to continue with that therapy if it was going to affect another cancer. A recent CME Medscape article on the importance of CT scans in lung cancer survival reviewed results of a large collaborative study in the October 26 issue of The New England Journal of Medicine. See the link below. Lung Cancer Survival Improved Dramatically With CT Scanning CME/CE News Author: Zosia Chustecka CME Author: Vega, MD, FAAFP Release Date: October 26, 2006 http://www.medscape.com/viewarticle/546661?src=mp SNIP........ " The current study suggests that treatment of lung cancers discovered by screening CT scans in high-risk, asymptomatic adults can significantly increase the survival rate following cancer diagnosis. Survival was augmented by prompt surgical resection among patients with stage I lung cancer. " Al Janski Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Thanks for bringing this up. It's a good question. I don't know if the study contrasted CT scans with MRIs or other screening tests. Let's just say that only a CT scan can do the job. The authors propose only involving those patients who have 'risk factors' for lung cancer (former or current smokers, etc.) in an annual CT scan. Each patient would have to make a decision if they wanted to have a CT scan to catch lung cancer early. The benefits are clear; catch the cancer early, when it is small and resectable, then you have a very good chance of surviving your cancer. I just wonder if an MRI wouldn't work as well. I'd gladly pay the difference in the cost of the scans to protect myself from the annual dose of radiation. However, if I had one or more risk factors, it is likely that the possibility of getting lung cancer is greater than by the annual exposure. On balance, I'd say, get the scan if you and your doc agree that it would be worth it. I'd still explore the possibility that an MRI would work as well or even better. > >However, with my > >latest lung cancer scare, I gave the go-ahead for a CT scan since I > >was in the middle of immunosuppresive chemotherapy, and I didn't > >want to continue with that therapy if it was going to affect another cancer. > > A recent CME Medscape article on the importance of CT scans in lung > cancer survival reviewed results of a large collaborative study in > the October 26 issue of The New England Journal of Medicine. See the > link below. > > Lung Cancer Survival Improved Dramatically With CT Scanning CME/CE > News Author: Zosia Chustecka > CME Author: Vega, MD, FAAFP > Release Date: October 26, 2006 > http://www.medscape.com/viewarticle/546661?src=mp > > SNIP........ > > " The current study suggests that treatment of lung cancers discovered > by screening CT scans in high-risk, asymptomatic adults can > significantly increase the survival rate following cancer diagnosis. > Survival was augmented by prompt surgical resection among patients > with stage I lung cancer. " > > Al Janski > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 My CT scan showed my lung has a cyst in the same spot I get pain when I am feeling ill. I guess if you have any chest pain it is best to get it checked out as it probably means something. I listen to my body before I listen to doctors. Before I was dianosed with CLL I told my doctor I thought there was something wrong with my immune system and he disagreed. A few months later the Emergeny Room found out I had CLL. The Diabetes clinic thought for sure I had cancer but couldn't figure out what kind. They thought they had discovered a new type. They gave up and never sent me to an Oncologist. When I did see an oncologist he said he could tell from my blood tests that I had had CLL for over 10 years. That is VA hospitals for you. Quote Link to comment Share on other sites More sharing options...
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