Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 This is from Dominie Bush, for anyone who is not on her mailing list. Dom has a page on her site devoted to this topic. You can find the information in its entirity here: http://www.fms-help.com/XMRV.htm XMRV RETROVIRUS 11/19/09 - FROM DOM: The recent finding by medical researchers of the XMRV (retrovirus) in the blood and plasma of FMS/CFIDS/ME patients is a quantum leap forward in understanding this baffling disease. By knowing the cause, there is hope to find a cure for these disabling neuro-immune disorders. I will try to keep this page as up to date as possible - exciting new information is arriving daily! There is no "cure" for XMRV yet, but a blood test is now available. (See link below.) One main benefit of finding XMRV is that it proves we are not hypochondriacs or malingerers - we are sick!! From what I have read, there are only 3 known retroviruses - XMRV, AIDS, and leukemia. The triggers for XMRV are vaccinations, genetics, and stress. There's much more info below - see articles and videos! Dr. Klimas stated that if she had to pick, she would rather have HIV, because so much funding has gone into that illness that the patients are doing considerably better than the debilitated CFIDS patients! Also see my page about CFIDS and AIDS. Right now there are no solutions - I have heard of ampligen and acyclovir being mentioned as possible treatments, but ampligen has horrific side effects (destroys the liver) and costs $15,000-$25,000 per year. Massive doses of acyclovir is toxic to the kidneys. We may want to wait until something better is found to help us. Meanwhile, I am using many safe and helpful things to stay functional that aren't expensive or dangerous. You may want to fill out the Whittemore- volunteer questionnaire (link below) so they can learn more about people like us. From a reader-- XMRV has now been found in the PLASMA of 95% of those with ME/ CFIDS vs. 67% in the blood and also found in Fibromyalgia (which I believe are one in the same).We are very close to treatment that really works for this devastating illness!! Check out the Q & A from the research team that found this Retrovirus (XMRV)! Quote Link to comment Share on other sites More sharing options...
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