Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 Hey Mina: I am on the list too and I also live in Alabama. I live near Mobile, Alabama. Where do you live? If you're close to us, maybe we could get together. We have a support group here too. We just had a Buddy Walk last weekend. Terry Mom to Evan, 6yrs. old, Down Syndrome -------------------------------------------------------------------------- In a message dated 10/26/02 6:14:02 PM US Eastern Standard Time, mina3169@... writes: << Hi my name is mina i live in alabama and i have a 13 year old downs child i was 19 when he was born he is my life but i have many concerns about things here where i live the people look at him funny and he is very loving and likes to hugs and kiss ya ....other children pick on him so he gets very aggressive at times he has been in school since he was 16 months old the docotrs say he would never walk talk or lead a NORMAL LIFE WHAT IS A NORMAL LIFE bumps chickenpox that normal and he has had it all he is very smart YES I BRAG for the last 2 years he has went to camp for special children and he loves it but the whole time he is gone i worry everyone tells me not to the doctors told me that my josh would not live to much longer i am scared i dont sleep here in alabama it is so on 3 different times i have hasd to plan my son funeral that is the hardist thing i have ever had to do but i know in my heart josh will out live his doctors ........... thank u mina davis >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hi all, I recently joined and am probably one of the few men here. Does this disease get progressively worse? The insomnia is the worst thing for me. I guess I should add the forever headaches. A rheumatologist diagnosed me about 2 months ago. I have been having balance issues for quite some time. That is annoying because I am always hurting myself on top of the pain that I deal with all the time. Jay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 > Jay; Hi I am Heidi I know dominie we go to church together and I was her co-owner till she had to step down due to other obligations. 1. NO fibro doesn't get worse 2. Your other factors might, your balance nd headaches are considered perpetuating factors that also must be addressed too. Do you also have Multiple Chemical Sensitivities too? That can give headaches along with eye sight . If you wear glasses exams every year is a must too. Also the balance problems and headaches could also be a side effect from the medicines you are on. So welcome aboard I hope you find this board welcoming and get to learn more information to share with your doctor. Hugs Heidi > Hi all, > > I recently joined and am probably one of the few men here. Does this > disease get progressively worse? The insomnia is the worst thing for > me. I guess I should add the forever headaches. A rheumatologist > diagnosed me about 2 months ago. I have been having balance issues for > quite some time. That is annoying because I am always hurting myself > on top of the pain that I deal with all the time. > > Jay > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Hi Jay - A warm welcome to our group from us all. Good question... "Does this disease get progressively worse?" My first thoughts are Yes and No which may seem like a paradox. In my case if I do not follow (implement) certain self-tested remedies my condition gets worse. For instance (for me) improved diet means I get to feel so much better. The horrid (shooting pains) headaches I remember well. I used to have balance issues, and a strange gait. Recently, due to lung infections (brought on by multiple neighbours cigarette smoke) and smoke induced breathing problems I am having balance issues, again. It has something to do with lack of being able to draw in deep breaths. Insomnia issues are a big part of CFS/Fibromyalgia. I received this (below) from , today. It is the only question I answered on (when I got back on the Internet after about a 12-year break due to illness) and it is insomnia related. It might help you a little with your sleep issues. I just want to add that I believe we are living in very LUCKY times. All kinds of scientific insights/breakthroughs are trickling through the pipeline. Courage, belief, patience, and optimism can help to initiate the healing process. You will find a lot of great information on our site. We look forward to getting to know you. Hugs 'n Smiles Carlene Insomnia, want to go to sleep!? Can't sleep, tips? "In2uitiv" Best Answer - Chosen by Voters After the usual evening routines...hubby, and me...watch a comedy DVD. We do this five nights a week. The other two nights we watch 'Idol'. Laughter (truly) is the best medicine. During, and after the movie, we don't discuss any of the day's happenings. Or world events etc. It's what I call my blank page mind-set. I don't want to retire to bed with a page of worries in my head.We've been doing this for a couple of months. It's working out very well. It produces a happy, calm atmosphere. Hope it does the same for you.Good Luck! 3 months ago >> Hi all,> > I recently joined and am probably one of the few men here. Does this> disease get progressively worse? The insomnia is the worst thing for> me. I guess I should add the forever headaches. A rheumatologist> diagnosed me about 2 months ago. I have been having balance issues for> quite some time. That is annoying because I am always hurting myself> on top of the pain that I deal with all the time.> > Jay> Quote Link to comment Share on other sites More sharing options...
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