Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 July 13, 2010 Quick Links Forward This Issue About Us Donate Now Join 4,166 fans for information and support Not a CFIDSLink subscriber? It's free. XMRV UpdateDate: Thursday, July 15, 2010Time: 12:00 PM - 1:30 PM EDTRegistration: https://www1.gotomeeting.com/register/702564801 During this program you'll hear from two experts about the latest research into the association between XMRV, a newly discovered human retrovirus, and CFS. Racaniello, PhD, a virology professor at Columbia University and host of the popular "This Week in Virology" podcast and Virology Blog, will update us on what is known about XMRV, its association with human disease (including CFS) and how research should move forward to understand its role in CFS. Lucinda Bateman, MD, an expert CFS physician, will provide an update on the latest studies of XMRV and CFS. Dr. Bateman is a clinical collaborator on a study at University of Utah led by Dr. Ila Signh, one of the co-discoverers of XMRV. She will outline seven ways in which the research on XMRV has positively impacted the field of CFS research and what we're likely to learn as studies progress. Scientific director Suzanne Vernon, PhD, will host the webinar. Suzanne earned her PhD in virology, so this promises to be a thought-provoking and informative program from all speakers. Last Chance to Add to Survey ResultsIn June we launched a Risk Factors Survey and, so far, 1,371 people have responded to it. Risk factors refer to traits, events, environments, exposures, etc. that may be more common among people with a certain condition than those who don't have it. Risk factors are not the same as causes. (See http://en.wikipedia.org/wiki/Risk_factor.) There might also be risk factors for prolonged illness (rather than onset) that are useful to query. For risk factor analyses, it is imperative to have a comparison population and many of the questions in this survey are drawn from the National Health and Nutrition Examination Survey (NHANES). Using NHANES questions allows us to compare answers to the same question from a broader population. Participation is completely voluntary and you can exit at any time. This survey has 50 questions, but it moves relatively quickly. Questions marked with asterisks on the first page are required to be answered in order to move to the next page. All responses are completely anonymous and voluntary. Results will be reported in the aggregate only. Only one response is permitted per computer. This survey will close on Friday, July 16, 2010. Our Mission:For CFS to be widely understood, diagnosable, curable and preventable. Our Strategy:To stimulate research aimed at the early detection, objective diagnosis and effective treatment of CFS through expanded public, private and commercial investment. Our Core Values:To lead with integrity, innovation and purpose. Back to top This email was sent to carlene.grimshaw@... by cfidslink@.... Email Marketing by www.cfids.org | The CFIDS Association of America | PO Box 220398 | Charlotte | NC | 28222 Quote Link to comment Share on other sites More sharing options...
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