Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Ok ladies, Men do not do well with just reading an article and then amazingly understanding. They are not women. What frustrates men horribly is to see there loved one in pain and they cannot fix it. Yes that is the magical word. Fix. Like with a hammer and screwdriver. They are doers. They want a solution. Like they could go get a second job and send you to some amazing doctor and you would be cured. When confronted like this they go into there "empty box" and hide. When confronted more they get angry. That is why therapy like IMAGO is so healing and gentle for both. It gives you both a voice and creates such understanding and closeness. Then you are best friends and partners working together. And yes I am a life coach for relationships. hugs, Sue > > >> >> > Hi everyone,> >> > I am brand new to the group. I have a couple of questions .How do you> > know if you have fibromyalgia, chronic fatigue syndrome or both? It seems> > like the main symptoms are the same. this is my story.About 9 years ago, I> > was told that I had CFS. I had to quit work and really slow down for a bit> > , but it went into a remission. I did well for about 7 years and then it> > begain to return. I was in deep denial because I didn't want to go through> > all that again. It started with the brain fog and progressed into joint and> > muscle pains and fatigue- all very reminiscent of the time before. that was> > when I finally went to the Dr again and they siad FMS, probably. They did> > the usual blood tests and x-rays and ruled out a bunch of stuff like lupus.> > Then, I started having neurological symptoms(burning skin, buzzing, weird> > muscle cramps like charley horses but they happen no matter what I am doing> > - not just sleeping or exercising-My Gen Pract sent me to the neurologist> > who really expected to see nerve damage based on my symptoms, but none was> > there. I also have gastrointestinal issues, dizziness and the fatigue> > lately has been awful.> > I feel like it is robbing my child of the mom he should have, becasue> > by the time I get home from work, I need to rest and on the weekends, I am> > so tired and have so much to do. Nobody at work knows what an effort I have> > to make to be there everyday and my husband just doesn't understand and gets> > frustrated becasue I am always tired and feeling icky. I am sorry to be so> > long winded and whiny. I know there are people out there much worse off> > than me. I just get frustrated, and I know y'all will understand. also, I> > ahve been able to find some meds that help some with the pain, but I still> > can't find anything to help with fatigue. Anybody got any suggestions for> > that- besides sleep (haha)> > Thanks for listening.> >> > G> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Hi Thanks, and yes. I do know that. things take a little longer for him and he learns in a different way, but he will do anything he wants to do. He is incredibly smart and loves to learn. My only worry is that he will probably also lose his hearing. As much as he relies on it and as much as he loves music, I ahte that for him. However, I have always know that God has something amazing in store for him!! I would love to hear more about your neighbor. I love hearing about successful blind people. From: Pam Horne <pmarshallnc (DOT) rr.com>Subject: Re: Re: new and frustratedDate: Friday, May 22, 2009, 9:19 AM , Was Noah born blind? My dear friend and neighbor has been blind since she was a baby. She is a teacher. She lives by herself and does practically everything the rest of us do except see. I am so impressed by her. Does your son use a computer? My friend always wants to correspond with other blind people, especially children. She has a computer with a voice application and she has a braille printer. I guess your son would be in kindergarten, so he probably does not read or write yet, but he probably will soon. Where do you live? Pam new and frustrated> > Date: Wednesday, May 20, 2009, 10:40 PM> > > > > > > > > > > > > > > > > > Hi everyone,> > I am brand new to the group. I have a couple of questions .How do you know if you have fibromyalgia, chronic fatigue syndrome or both? It seems like the main symptoms are the same. this is my story.About 9 years ago, I was told that I had CFS. I had to quit work and really slow down for a bit , but it went into a remission. I did well for about 7 years and then it begain to return. I was in deep denial because I didn't want to go through all that again. It started with the brain fog and progressed into joint and muscle pains and fatigue- all very reminiscent of the time before. that was when I finally went to the Dr again and they siad FMS, probably. They did the usual blood tests and x-rays and ruled out a bunch of stuff like lupus. Then, I started having neurological symptoms(burning skin, buzzing, weird muscle cramps like charley horses but they happen no matter what I am doing - not just sleeping or exercising-My Gen Pract> sent me to the neurologist who really expected to see nerve damage based on my symptoms, but none was there. I also have gastrointestinal issues, dizziness and the fatigue lately has been awful.> I feel like it is robbing my child of the mom he should have, becasue by the time I get home from work, I need to rest and on the weekends, I am so tired and have so much to do. Nobody at work knows what an effort I have to make to be there everyday and my husband just doesn't understand and gets frustrated becasue I am always tired and feeling icky. I am sorry to be so long winded and whiny. I know there are people out there much worse off than me. I just get frustrated, and I know y'all will understand. also, I ahve been able to find some meds that help some with the pain, but I still can't find anything to help with fatigue. Anybody got any suggestions for that- besides sleep (haha)> Thanks for listening.> > G> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Pam, That sounds about like mine. I do all the bills and budgeting, most of the house cleaning, work full time and go to school and he is mostly okay with that. then, when he hurts himself(last week he severely bruised his baby toe and the week before pulled a chest muscle) it is so hard to be sympathetic for him. He just doesn't get it. Where do you live? G> > >> >> > Hi everyone,> >> > I am brand new to the group. I have a couple of questions .How do you> > know if you have fibromyalgia, chronic fatigue syndrome or both? It seems> > like the main symptoms are the same. this is my story.About 9 years ago, I> > was told that I had CFS. I had to quit work and really slow down for a bit> > , but it went into a remission. I did well for about 7 years and then it> > begain to return. I was in deep denial because I didn't want to go through> > all that again. It started with the brain fog and progressed into joint and> > muscle pains and fatigue- all very reminiscent of the time before. that was> > when I finally went to the Dr again and they siad FMS, probably. They did> > the usual blood tests and x-rays and ruled out a bunch of stuff like lupus.> > Then, I started having neurological symptoms(burning skin, buzzing, weird> > muscle cramps like charley horses but they happen no matter what I am doing> > - not just sleeping or exercising-My Gen Pract sent me to the neurologist> > who really expected to see nerve damage based on my symptoms, but none was> > there. I also have gastrointestinal issues, dizziness and the fatigue> > lately has been awful.> > I feel like it is robbing my child of the mom he should have, becasue> > by the time I get home from work, I need to rest and on the weekends, I am> > so tired and have so much to do. Nobody at work knows what an effort I have> > to make to be there everyday and my husband just doesn't understand and gets> > frustrated becasue I am always tired and feeling icky. I am sorry to be so> > long winded and whiny. I know there are people out there much worse off> > than me. I just get frustrated, and I know y'all will understand. also, I> > ahve been able to find some meds that help some with the pain, but I still> > can't find anything to help with fatigue. Anybody got any suggestions for> > that- besides sleep (haha)> > Thanks for listening.> >> > G> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 Sue, How then do we get our husbands to understand our situation? I doubt that my husband will consent to join me in any type of therapy. He is very stubborn and self-centered. Pam Re: Re: new and frustrated Ok ladies, Men do not do well with just reading an article and then amazingly understanding. They are not women. What frustrates men horribly is to see there loved one in pain and they cannot fix it. Yes that is the magical word. Fix. Like with a hammer and screwdriver. They are doers. They want a solution. Like they could go get a second job and send you to some amazing doctor and you would be cured. When confronted like this they go into there "empty box" and hide. When confronted more they get angry. That is why therapy like IMAGO is so healing and gentle for both. It gives you both a voice and creates such understanding and closeness. Then you are best friends and partners working together. And yes I am a life coach for relationships. hugs, Sue > > >> >> > Hi everyone,> >> > I am brand new to the group. I have a couple of questions .How do you> > know if you have fibromyalgia, chronic fatigue syndrome or both? It seems> > like the main symptoms are the same. this is my story.About 9 years ago, I> > was told that I had CFS. I had to quit work and really slow down for a bit> > , but it went into a remission. I did well for about 7 years and then it> > begain to return. I was in deep denial because I didn't want to go through> > all that again. It started with the brain fog and progressed into joint and> > muscle pains and fatigue- all very reminiscent of the time before. that was> > when I finally went to the Dr again and they siad FMS, probably. They did> > the usual blood tests and x-rays and ruled out a bunch of stuff like lupus.> > Then, I started having neurological symptoms(burning skin, buzzing, weird> > muscle cramps like charley horses but they happen no matter what I am doing> > - not just sleeping or exercising-My Gen Pract sent me to the neurologist> > who really expected to see nerve damage based on my symptoms, but none was> > there. I also have gastrointestinal issues, dizziness and the fatigue> > lately has been awful.> > I feel like it is robbing my child of the mom he should have, becasue> > by the time I get home from work, I need to rest and on the weekends, I am> > so tired and have so much to do. Nobody at work knows what an effort I have> > to make to be there everyday and my husband just doesn't understand and gets> > frustrated becasue I am always tired and feeling icky. I am sorry to be so> > long winded and whiny. I know there are people out there much worse off> > than me. I just get frustrated, and I know y'all will understand. also, I> > ahve been able to find some meds that help some with the pain, but I still> > can't find anything to help with fatigue. Anybody got any suggestions for> > that- besides sleep (haha)> > Thanks for listening.> >> > G> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2009 Report Share Posted May 23, 2009 , I live in Salisbury, NC. It's about 40 miles north of Charlotte. Pam Re: Re: new and frustrated Pam, That sounds about like mine. I do all the bills and budgeting, most of the house cleaning, work full time and go to school and he is mostly okay with that. then, when he hurts himself(last week he severely bruised his baby toe and the week before pulled a chest muscle) it is so hard to be sympathetic for him. He just doesn't get it. Where do you live? G> > >> >> > Hi everyone,> >> > I am brand new to the group. I have a couple of questions .How do you> > know if you have fibromyalgia, chronic fatigue syndrome or both? It seems> > like the main symptoms are the same. this is my story.About 9 years ago, I> > was told that I had CFS. I had to quit work and really slow down for a bit> > , but it went into a remission. I did well for about 7 years and then it> > begain to return. I was in deep denial because I didn't want to go through> > all that again. It started with the brain fog and progressed into joint and> > muscle pains and fatigue- all very reminiscent of the time before. that was> > when I finally went to the Dr again and they siad FMS, probably. They did> > the usual blood tests and x-rays and ruled out a bunch of stuff like lupus.> > Then, I started having neurological symptoms(burning skin, buzzing, weird> > muscle cramps like charley horses but they happen no matter what I am doing> > - not just sleeping or exercising-My Gen Pract sent me to the neurologist> > who really expected to see nerve damage based on my symptoms, but none was> > there. I also have gastrointestinal issues, dizziness and the fatigue> > lately has been awful.> > I feel like it is robbing my child of the mom he should have, becasue> > by the time I get home from work, I need to rest and on the weekends, I am> > so tired and have so much to do. Nobody at work knows what an effort I have> > to make to be there everyday and my husband just doesn't understand and gets> > frustrated becasue I am always tired and feeling icky. I am sorry to be so> > long winded and whiny. I know there are people out there much worse off> > than me. I just get frustrated, and I know y'all will understand. also, I> > ahve been able to find some meds that help some with the pain, but I still> > can't find anything to help with fatigue. Anybody got any suggestions for> > that- besides sleep (haha)> > Thanks for listening.> >> > G> >> >> Quote Link to comment Share on other sites More sharing options...
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