Empty Chair Project

[Guest guest]

Never heard of this project till a friend sent me this e-mail read.

It sounds interesting weill read all the links later on today.My new

endocrine Dr is a Neuro-Endocrine so she said but not on her card

just associate proff.

Gentle Fibro {{Hugs}}

Heidi

THE EMPTY CHAIR© PROJECT CONTINUES IN FULL MOTION!

March 28, 2008

The Empty Chair© Project is gearing up for the next CFS Advisory

Committee Meeting to be held on May 5-6, 2008 at the Department of

Health and Human Services in Washington DC

(http://www.hhs.gov/advcomcfs/index.html). In collaboration with many

other organizations in the U.S. and abroad, we are sending out the

following call to action:

The Empty Chair© Project initiated by P.A.N.D.O.R.A. in collaboration

with

-- The Vermont CFIDS Association,

-- The New Jersey CFS Association,

-- The Wisconsin CFS Association,

-- CFCCC (Chronic Fatigue Syndrome, Fibromyalgia, Chemical

Sensitivity Chicago Coalition, Inc.),

-- AFFTER (Advocates for Fibromyalgia Funding, Treatment, Education

and Research),

-- H.O.P.E. (Helping our Pain and Exhaustion, Inc),

-- Fibromyalgia Coalition International,

and with support from hardcore advocates, empowerment and online

support groups in the U.S., as well as with the support of other CFS-

ME organizations from abroad: The Irish ME-CFS Association

(http://www.meassociation.org.uk/component/option,com_contxtd/catid,50

/Itemid,96/), is truly making a difference.

In the last 2 meetings of the CFS Advisory Committee in 2007,

advocates from South Florida representing the CFS-ME community,

placed pictures of individuals suffering with CFS-ME who are unable

to attend the meetings because of the health and financial challenges

that the illness brings to them and their families.

The Empty Chair© Project has raised great awareness to the

invisibility of CFS-ME patients, but in order to make it even more

successful we need to continue to show support for the CFS Advisory

Committee. Click here to read the minutes of the meeting held on

November 27-28, 2007 (http://www.hhs.gov/advcomcfs/pastmeetings.html).

Their next meeting will be held on May 5-6, 2008 and P.A.N.D.O.R.A.

will be there. We ask you to participate in the Empty Chair Project

by taking the following steps:

-- If you live in the U.S. write to your congressman asking to

increase funding for this important committee and go to their link at

http://www.hhs.gov/advcomcfs/pastmeetings.html and click on the files

that are broken down by meeting into the following four categories:

Agenda, Minutes, Presentations, Recommendations.

-- If you live outside of the U.S., please click on their link at

http://www.hhs.gov/advcomcfs/pastmeetings.html and click on the files

that are broken down by meeting into the following four categories:

Agenda, Minutes, Presentations, Recommendations.

If you would like us to place your picture with your name and city,

state location at one of the empty chairs during the May 5-6, 2008

meeting, please click on our contact page

(http://pandoranet.info/contact.html ), write in Empty Chair Project

in the subject line, and we will reply to you as soon as we can.

Read the rest of the story at:

http://pandoranet.info/emptychairproject.html

PANDORA: Patient Alliance for Neuroendocrineimmune Disorders

Organization for Research and Advocacy -- includes CFS/ME,

Fibromyalgia, Gulf War Syndrome and Multiple Chemical Sensitivity.

According to their website, " Latest scientific research indicates

that all of these illnesses are Neuroendocrineimmune Disorders, thus

affecting the neurological, the endocrinological and the immune

systems. "

You can view the full announcement by following this link:

http://dfwcfids.net/dfwcfids/forum/index.php?topic=1045.0