Re: Digest Number 1803

[Guest guest]

Bridgitte,

I am on Azulfidine for the last 3 months. At first, I thought I noticed a

change. (I was on Plaquenil before that) But lately, I don't know if it is

working. I wish I could tell you more.

Fly

__________________________________________________

[Guest guest]

and a,

Thanks for the welcome back and for all the info on Tylenol. My rheume

told me to use Tylenol instead of Advil because I am taking Naproxyn

(along with Azulfidine, Fosamax, Myacalcin, Prevacid, and Trazadone.)

Come to think of it, I better go take it now. I am going to bed in about

an hour and if I don't take it till I am ready to hit the sack, the pain

in the legs and hips sets me up for a 'not too pleasant' entry to

slumberland.

fly

__________________________________________________

[Guest guest]

Lissy,

I'll post it this evening. Hope it will help.

Lori Knowles

[ ] Digest Number 1803

> =======================================================

>

[Guest guest]

From: " " <cindysue@...>

Subject: We are back!!!

I did meet Sharon - finally! I had to giggle because she sounds like

Amiebell - but then Sharon explained to me that they are both from Alabama -

their southern accents are just a tad different than others. ~~~~~~~~~~~

,

That is what I have tried to tell ya, those of us from the Deep South are

the real Southern Belles!

Rejoice!

AmieBelle

[Guest guest]

I can hear the difference from one borough in NYC to the next.

Elaine,

One borough to the next??? Why do us Brooklynites have such a distinct

accent? Fogeddaboutit!!!!!! (hey i cant even spell that in slang LOL LOL

LOL!!!!)

[Guest guest]

I'm from north Alabama and my accent is just slightly different from theirs. My

inlaws in Milwaukee can't tell the difference though. LOL I can hear the

difference from one borough in NYC to the next.

Elaine

We are back!!!

I did meet Sharon - finally! I had to giggle because she sounds like

Amiebell - but then Sharon explained to me that they are both from Alabama -

their southern accents are just a tad different than others. ~~~~~~~~~~~

,

That is what I have tried to tell ya, those of us from the Deep South are

the real Southern Belles!

Rejoice!

AmieBelle

[Guest guest]

Please change my account to my new e mail address.

roadtozen@...

thank you

Digest Number 1803

[Guest guest]

Hi !

Yes, I had un-subscribed from the list for a few months as we went to UK for

a wonderful vacation and 'being busy' occupied the rest of my time. It's

great to see you still here ! You too, are an inspiration to me!

Keep on doing well!

Sandy Lightfoot.

[Guest guest]

Hi Everyone,

I was trying to catch up on lots of past posts e-mailed from here....whew

....sure has been great & busy in here.

Can you tell me if I need to do anything to update whatever has been changed

with the server ect. Forgive me as I am going from last post downwards...ha

ha

Hug's,

Robin from IL

activation date 5/20/04

[Guest guest]

Well, that is what happen's when you start from back going to

forward..I found my answer and just confirmed to new list server..

Robin

> Hi Everyone,

>

> I was trying to catch up on lots of past posts e-mailed from

here....whew

> ...sure has been great & busy in here.

>

> Can you tell me if I need to do anything to update whatever has

been changed

> with the server ect. Forgive me as I am going from last post

downwards...ha

> ha

>

> Hug's,

> Robin from IL

> activation date 5/20/04

>

>

>

>

[Guest guest]

In a message dated 3/30/2005 7:20:44 AM Eastern Standard Time,

writes:

I've never heard

of potential (seizure) problems associated with ingesting liquid

aminos

..

..>>>> Ever heard of MSG? It is a type of amino acid..... glutamine. Several

amino acids can irritate the brain just as others like l-Taurine can soothe

the brain.

Read the book Excitotoxins alond with Dr Braverman's book on Amino Acids.

mjh

http://foxhillfarm.us/FireBasil/

[Guest guest]

In a message dated 3/30/2005 7:20:44 AM Eastern Standard Time,

writes:

I found this group via a post Zoe made on Braintalk. It's nice to

see that there *is* a place where alternatives to drugs are given

some consideration.

..

..>>> What is Braintalk?

mjh

http://foxhillfarm.us/FireBasil/

[Guest guest]

>>I need suggestions...I work with a 5 year old PDD child. He has a problem

>>with napping. So after lunchtime, when in good mood he'll lie down on his

>>mattress but most of the time he just loiter around the classroom... any

>>suggestion...the teacher wants him to rest...<<

I suggest you work with the teacher to find something he can do which will

not disturb the others. Many children with ASD/PDD need very little sleep.

Have you asked his parents what he is like at home? You may find that he is

up till 10/11pm, midnight or beyond every night.

Instead of trying to force him to comply with something which he doesn't

need to do and will not do if he cannot see the point of it, find a way to

use the time constructively - does he need extra time to work on his speech

and language or social skills (you could work through social stories with

him)?

in England

[Guest guest]

Many children with ASD/PDD need very little sleep.

,

I have been lurking here for many months, only posting once or twice.

What you said about many ASD/PPD children needing very little sleep

intrigues me.

My ASD son, who is almost fourteen, usually has difficulty settling

down to sleep at 10:00PM.

It never occured to me that he may not need to be asleep so early.

Could you elaborate?

Thanks.

Kathy T.

[Guest guest]

I agree. My 13 year old son with AS has had that problem since he was very very young. He could never go to sleep before 10:00. Even til this day he goes to bed at 10:30 or 11:00. Luckily it never affected his school work or perfomance. He never sleeps very late either, he's always up bright and early, even on the weekends when there's no school. He only took naps until he was about 4 and then it was over for him. psalms2go4 <psalms2go4@...> wrote:

Many children with ASD/PDD need very little sleep. ,I have been lurking here for many months, only posting once or twice.What you said about many ASD/PPD children needing very little sleep intrigues me.My ASD son, who is almost fourteen, usually has difficulty settling down to sleep at 10:00PM.It never occured to me that he may not need to be asleep so early.Could you elaborate?Thanks.Kathy T.

[Guest guest]

I'm not , but I've learned in the last few months (and I guess since

birth, since he was never a 'good' sleeper) that spectrum children have less

need for sleep than NT kids. They often quit naps at a very early age, go to

bed later, have a hard time going to sleep, and wake up often, sometimes

coming fully awake and talking, playing, reading, watching TV, etc., then

waking early.

My little guy fought sleep in a big way, woke frequently (talking, fully

awake, etc.) and waking early. He's now on Clonidine for his behaviors (he's

only 4 so we're not trying anything stronger yet, if at all) and it's helped

his sleep tremendously, particularly since we increased the dosage last

week.

Re: Digest Number 1803

>

>

>

> Many children with ASD/PDD need very little sleep.

>

> ,

>

> I have been lurking here for many months, only posting once or twice.

> What you said about many ASD/PPD children needing very little sleep

> intrigues me.

>

> My ASD son, who is almost fourteen, usually has difficulty settling

> down to sleep at 10:00PM.

>

> It never occured to me that he may not need to be asleep so early.

>

> Could you elaborate?

>

> Thanks.

>

[Guest guest]

Hi Kathy,

It is only really anecdotal but it seems to be very common, judging from all

the comments from parents here and on other message boards, as well as those

I've met. For some it just seems they need less sleep, but for others it

appears to be a case of not liking the sensation of falling asleep and being

unable to 'let go'. Some don't like dreams and are unable to separate them

from reality.

As it happens, my AS son has always been the opposite - he needs a lot of

sleep, and continued to sleep in the day until he was over 4 years old. In

his case it seems to be the mental effort of 'pretending to be normal' which

exhausts him, as he is usually tired after times of social interaction -

even now he's 17.

It was my NT daughter who didn't need much sleep, and she gave up a daytime

sleep before her second birthday. Most children I know stopped sleeping in

the day at around 3 years. Quite frankly I am surprised to hear of a teacher

wanting 5 year olds to nap. In this country they go to school fulltime in

the September of the year in which they are 5 and there are no facilities

for napping in schools.

in England

[Guest guest]

,

It is surprising to me too, that our 4 y/o is expected to take a nap at

preschool...I could understand a half hour " quiet time " or

something, but our consultant just did a school visitation yesterday

& sent home a note that the teacher wanted ideas of what we do at

home to calm him down for nap time.... HA! This kid hasnt taken a nap for

a couple years at home. He sleeps OK at night, wants to sleep late in the

morning.

Actually, he still sleeps with me. He has a lot of dreams/nightmares,

talks a lot in his sleep, moves quite a bit...spins in the bed actually.

But that is another story!

Donna

At 10:20 AM 4/19/2005, you wrote:

Hi Kathy,

It is only really anecdotal but it seems to be very common, judging from

all

the comments from parents here and on other message boards, as well as

those

I've met. For some it just seems they need less sleep, but for others it

appears to be a case of not liking the sensation of falling asleep and

being

unable to 'let go'. Some don't like dreams and are unable to separate

them

from reality.

As it happens, my AS son has always been the opposite - he needs a lot of

sleep, and continued to sleep in the day until he was over 4 years old.

In

his case it seems to be the mental effort of 'pretending to be normal'

which

exhausts him, as he is usually tired after times of social interaction -

even now he's 17.

It was my NT daughter who didn't need much sleep, and she gave up a

daytime

sleep before her second birthday. Most children I know stopped sleeping

in

the day at around 3 years. Quite frankly I am surprised to hear of a

teacher

wanting 5 year olds to nap. In this country they go to school fulltime in

the September of the year in which they are 5 and there are no facilities

for napping in schools.

in England

[Guest guest]

Fortunately, Louie went to a developmental pre-school and kindergarten

(and 1st grade, if truth be told). They didn't require *everyone* to

take a nap, just those who needed/wanted to. And that list changed

daily. The other kids did quiet things in another part of the room while

their classmates were napping. Louie did lots of puzzles and played with

the sand table during the times when he didn't need a nap.

You might suggest this to your child's teacher. And when he starts

kindergarten, make sure it's part of his IEP.

Meanwhile, and I know I sound like a broken record, if you're seeing

troubles with sleep patterns (like, problems getting to sleep or,

especially, staying asleep), try taking apples and apple products out of

your child's diet. Some of our kids are sensitive to the phenols in

apples, and it has the effect of disturbing their sleep patterns. I

know Louie never slept through the night, ever, until we took apples and

apple products (they're in everything!) away. Now he sleeps like a log

for a solid 8, unless he's having nightmares.

Annie, who loves ya annie@...

--

I am here to live out loud. -- Emile Zola

[Guest guest]

This is EXACTLY how it is in my house. My AS son has always needed allot of sleep and look out if he doesn't get it. However, he does have trouble "getting to sleep" and needs the help of melatonin. I believe it is a letting go issue for him.

However, nt daughter has always been a horrible sleeper!!

-Charlotte

Re: Re: Digest Number 1803

Hi Kathy,It is only really anecdotal but it seems to be very common, judging from all the comments from parents here and on other message boards, as well as those I've met. For some it just seems they need less sleep, but for others it appears to be a case of not liking the sensation of falling asleep and being unable to 'let go'. Some don't like dreams and are unable to separate them from reality.As it happens, my AS son has always been the opposite - he needs a lot of sleep, and continued to sleep in the day until he was over 4 years old. In his case it seems to be the mental effort of 'pretending to be normal' which exhausts him, as he is usually tired after times of social interaction - even now he's 17.It was my NT daughter who didn't need much sleep, and she gave up a daytime sleep before her second birthday. Most children I know stopped sleeping in the day at around 3 years. Quite frankly I am surprised to hear of a teacher wanting 5 year olds to nap. In this country they go to school fulltime in the September of the year in which they are 5 and there are no facilities for napping in schools. in England

[Guest guest]

Donna....idea here....

When my AS son was 4 he was having allot of dreams and nightmares too. One night as he was climbing into bed my husband took him aside, grabbed a throw pillow from my bed and told him that it was a magic dream pillow. It prevented him from having dreams/and nightmares he did not want to have. Let's just say that he STILL sleeps with this pillow at age 11 every night and in the past 7 years has had less than a handful of dreams that he attributes to his head "falling off" his dream pillow! I don't know if this would work for other kids but I thought it was brilliant and he bought it hook line and sinker!

-Charlotte

Re: Re: Digest Number 1803

,It is surprising to me too, that our 4 y/o is expected to take a nap at preschool...I could understand a half hour "quiet time" or something, but our consultant just did a school visitation yesterday & sent home a note that the teacher wanted ideas of what we do at home to calm him down for nap time.... HA! This kid hasnt taken a nap for a couple years at home. He sleeps OK at night, wants to sleep late in the morning. Actually, he still sleeps with me. He has a lot of dreams/nightmares, talks a lot in his sleep, moves quite a bit...spins in the bed actually. But that is another story!DonnaAt 10:20 AM 4/19/2005, you wrote:

Hi Kathy,It is only really anecdotal but it seems to be very common, judging from all the comments from parents here and on other message boards, as well as those I've met. For some it just seems they need less sleep, but for others it appears to be a case of not liking the sensation of falling asleep and being unable to 'let go'. Some don't like dreams and are unable to separate them from reality.As it happens, my AS son has always been the opposite - he needs a lot of sleep, and continued to sleep in the day until he was over 4 years old. In his case it seems to be the mental effort of 'pretending to be normal' which exhausts him, as he is usually tired after times of social interaction - even now he's 17.It was my NT daughter who didn't need much sleep, and she gave up a daytime sleep before her second birthday. Most children I know stopped sleeping in the day at around 3 years. Quite frankly I am surprised to hear of a teacher wanting 5 year olds to nap. In this country they go to school fulltime in the September of the year in which they are 5 and there are no facilities for napping in schools. in England

[Guest guest]

We used to use air freshener, and say it was "nightmare spray", we covered up the label with soothing clouds. (lavender is supposed to be soothing, and a stress releaser)

It also works for monsters!

~

Re: Re: Digest Number 1803

,It is surprising to me too, that our 4 y/o is expected to take a nap at preschool...I could understand a half hour "quiet time" or something, but our consultant just did a school visitation yesterday & sent home a note that the teacher wanted ideas of what we do at home to calm him down for nap time.... HA! This kid hasnt taken a nap for a couple years at home. He sleeps OK at night, wants to sleep late in the morning. Actually, he still sleeps with me. He has a lot of dreams/nightmares, talks a lot in his sleep, moves quite a bit...spins in the bed actually. But that is another story!DonnaAt 10:20 AM 4/19/2005, you wrote:

Hi Kathy,It is only really anecdotal but it seems to be very common, judging from all the comments from parents here and on other message boards, as well as those I've met. For some it just seems they need less sleep, but for others it appears to be a case of not liking the sensation of falling asleep and being unable to 'let go'. Some don't like dreams and are unable to separate them from reality.As it happens, my AS son has always been the opposite - he needs a lot of sleep, and continued to sleep in the day until he was over 4 years old. In his case it seems to be the mental effort of 'pretending to be normal' which exhausts him, as he is usually tired after times of social interaction - even now he's 17.It was my NT daughter who didn't need much sleep, and she gave up a daytime sleep before her second birthday. Most children I know stopped sleeping in the day at around 3 years. Quite frankly I am surprised to hear of a teacher wanting 5 year olds to nap. In this country they go to school fulltime in the September of the year in which they are 5 and there are no facilities for napping in schools. in England

[Guest guest]

In a message dated 4/19/2005 12:44:35 A.M. Central Standard Time, kidsatplay1@... writes:

Hi,

I need suggestions...I work with a 5 year old PDD child. He has a problem with napping. So after lunchtime, when in good mood he'll lie down on his mattress but most of the time he just loiter around the classroom... any suggestion...the teacher wants him to rest...

thanks

Re

Re,

would the teacher ask a child in a wheel chair to run laps with the class? My son would never rest during the day and slept very little at night. I would ask her if he could visit the library at that time or go on a nature walk on the school grounds.

Geriwife to mom to Logan, Krista, and Abigail¸...¸ ___/ /\ \___,·´º o`·,/__/ _/\_ \__\```)¨(´´´ | | | | | | | || |l¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-. :º°As for me and my house, we will serve the LordAdoptiveParentsSupport/

[Guest guest]

>>Hi everyone...thanks for teh advices and suggestion...by the way, what

>>does NT mean?

NT means neurotypical ie not autistic. Follow this link:

http://isnt.autistics.org/

in England

[Guest guest]

>

>

> I'm not , but I've learned in the last few months (and I guess

> since birth, since he was never a 'good' sleeper) that spectrum

> children have less need for sleep than NT kids.

>

I'm curious here. Is this truly a " need for less " sleep or an inability

to sleep? My DS is always tired. And he sleeps terribly. From everything

I see with him is that he just can't wind down enough to sleep. I chalk

his up to anxiety. Our Developmental pediatrician has said that anxiety

is quite common with AS.

Just food for thought. I too think that trying to force a 5 year old to

nap is fruitless. But I still think that finding ways to help our

children sleep more at night is important.

Also, for those who have had trouble with falling asleep, talk with your

docs about Melatonin. Our son starting taking it a few months ago. It

helps him fall asleep much faster. Its an OTC Herbal. But double check

with your docs before trying it. We started out on 1 MG which didn't do

a thing. But now he's on 3 MGs and it works. He still doesn't sleep all

night, but he's gone from taking up to an hour or two to fall asleep to

falling asleep in 10 mins.

Amy C.