Re: newbie saying hello

May 31, 2001

In a message dated 5/31/01 7:09:59 AM Eastern Daylight Time, ronneem@...

writes:

<< I'm 33 and was finally diagnosed with RA in Dec. (This is

after arguing with my GP for 3 years, she insisted the people in

their 20's did not get arthritis. >>

OMG No.......I had the same thing happen to me, when at age 24 I started

having arthritis symptoms and even brought up the A word to my doctor. " Oh

no, you are too young for that " and he moved on. So did I! That was 12 years

ago and I am sick to hear you say that you had it happen to you too.

<<Now I'm on Ridaura and Prednisone.>>

I was on those too for a few years. For me, the pain never stopped flip

flopping while on those and I gained 30lbs and felt worse. I chose that

combo though because I was still trying to have children and had to go with

something less harmful when trying to conceive. Now I am on MTX and still

trying to find the best dose/combo for me.

Believe it or not, I felt the best when I took MSM with

Glucosamine/Chondroiton Sulfate along with high does of Vitamin C and an

array of other Vitamins and Minerals. That comboed with a vegetarian diet

with lots of salmon and no dairy. I'm not recommending anything mind you,

just sharing what helped me. After a few years I got sick of all those

vitamins though! I'm trying to get back to it because it did help me a lot.

I hope you, along with your doctor, find the best treatment for you as soon

as possible. This is one disease you don't want running amuck in your

system.

Welcome to the group!

Rita

May 31, 2001

Ronnee: Welcome to the group. Wish I had a great response to your pain

question. My only response is: it sticks closer to you than a brother. One

of the hardest things to do is to learn to live with the flippin pain, (as

you put it). We have good days and bad days. I am 58 had RA for about 6-7

yrs. RA does change your lifestyle but you can learn to live with it and not

let it control you. Take your meds, get lots of rest, and don't overdo. I

hope you will enjoy this group. They are all very special people and oh so

very encouraging and helpful. Welcome again.

Jan in SC

May 31, 2001

Never? I've had RA and FMS a year now and I have just accepted pain as

part of the package. Welcome to the group!

Ohio - Terry

May 31, 2001

Welcome, Ronnee!

Glad you introduced yourself. We are a big and friendly group. Hope you like

it here.

Sorry that the pain is bothersome. When did you start the gold and

prednisone? Have you told your doctor that the pain is still a problem?

Perhaps the doctor could add another medication specifically for the pain.

What is your plan for the prednisone? Will you be on it indefinitely or is

it just being used to calm things down and then you will wean off of it? We

have many members here who can tell you that being on prednisone for many,

many years is probably not the best idea.

When you say " specialist, " do you mean a rheumatologist?

Looking forward to hearing more from you,

----- Original Message -----

From: <ronneem@...>

< >

Sent: Thursday, May 31, 2001 3:13 AM

Subject: [ ] newbie saying hello

> Hi,

>

> I've lurked on the list for about two weeks and decided to say

> hello. I'm 33 and was finally diagnosed with RA in Dec. (This is

> after arguing with my GP for 3 years, she insisted the people in

> their 20's did not get arthritis. I changed doc's and my new one

> tracked my complaints, ordered the tests and then sent me to a

> specialist.)

>

> I used to be on one medicine, developed an allergy to it (bright

> wonderful hives that took a week to go away). Now I'm on Riaura and

> Prednisone.

>

> If I may ask a question of those of you on similiar meds, how long

> before the pain stops being so flippin' annoying?

>

> Well that's my introduction. Hi!

>

> Cheers

> Ronnee

May 31, 2001

Thanks for all the welcomes... as for y'all's questions and mine... I

kind of lumped everything together into one email...

Rita wrote:

> That was 12 years ago and I am sick to hear you say that you had it

> happen to you too.

sucks, doesn't it? Oh, well, that's water under the bridge now.

> Now I am on MTX and still trying to find the best dose/combo for me.

what is MTX? I don't recognize the abbreviation. (of course, if I go get

my arth book, it will probably tell me, right?

> Believe it or not, I felt the best when I took MSM with

> Glucosamine/Chondroiton Sulfate along with high does of Vitamin C and

> an

> array of other Vitamins and Minerals.

and what is MSM?

> This is one disease you don't want running amuck in your system.

definitely! Bad enough to normally be anemic, but for the past few years

the anemia has been something that worried the doc's. And now we know

the cause... sheesh.

wrote:

> Sorry that the pain is bothersome. When did you start the gold and

> prednisone?

started them in March

> Have you told your doctor that the pain is still a problem?

got to call him about it

> What is your plan for the prednisone? Will you be on it indefinitely

> or is

> it just being used to calm things down and then you will wean off of

> it? We

> have many members here who can tell you that being on prednisone for

> many,

> many years is probably not the best idea.

Doc wants me off it by the end of the summer at the latest.

> When you say " specialist, " do you mean a rheumatologist?

yep, but I was at work and didn't have a spellchecker available... I was

not about to try spelling it without a spellcheck.

Jan wrote:

> We have good days and bad days.

so I have discovered

> Take your meds, get lots of rest, and don't overdo.

That's the hard part... rest and overdoing... ::sigh:: I'm still working

on it. I used to sleep 4-5 hours at day, now... well if I'm good I get

7! ;-)

Thanks again for the welcome

ronneem

May 31, 2001

Hi Ronnee

Just want to welcome you. I am 33 too. I am pretty new to all of

this also. You'll like it here, keep coming back.

> Hi,

>

> I've lurked on the list for about two weeks and decided to say

> hello. I'm 33 and was finally diagnosed with RA in Dec. (This is

> after arguing with my GP for 3 years, she insisted the people in

> their 20's did not get arthritis. I changed doc's and my new one

> tracked my complaints, ordered the tests and then sent me to a

> specialist.)

>

> I used to be on one medicine, developed an allergy to it (bright

> wonderful hives that took a week to go away). Now I'm on Riaura

and

> Prednisone.

>

> If I may ask a question of those of you on similiar meds, how long

> before the pain stops being so flippin' annoying?

>

> Well that's my introduction. Hi!

>

> Cheers

> Ronnee

May 31, 2001

The pain! Well, sometimes it's better. You said that you are on

prednisone? When I was on prednisone for a short time, I had no pain at

above 15 mgs. Some meds help allot, others not at all. I'm still looking

for the right mix. For me opiates did nothing for the pain but do help lots

of people. Mine is bad now. Will be going back on Enbrel once it comes in,

use a walker and wheelchair and tomorrow have cortisone shots in my knees.

Welcome!

But sorry, I agree with Terry!- NEVER

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

May 31, 2001

OK, Ronnee, please call your doc and see what he/she can do about your pain!

No need to suffer.

MTX = methotrexate

MSM = methylsulfonylmethane

----- Original Message -----

From: " ronneem " <ronneem@...>

< >

Sent: Thursday, May 31, 2001 7:20 AM

Subject: Re: [ ] newbie saying hello

> Thanks for all the welcomes... as for y'all's questions and mine... I

> kind of lumped everything together into one email...

>

> Rita wrote:

>

> > That was 12 years ago and I am sick to hear you say that you had it

> > happen to you too.

>

> sucks, doesn't it? Oh, well, that's water under the bridge now.

>

> > Now I am on MTX and still trying to find the best dose/combo for me.

>

> what is MTX? I don't recognize the abbreviation. (of course, if I go get

> my arth book, it will probably tell me, right?

>

> > Believe it or not, I felt the best when I took MSM with

> > Glucosamine/Chondroiton Sulfate along with high does of Vitamin C and

> > an

> > array of other Vitamins and Minerals.

>

> and what is MSM?

>

> > This is one disease you don't want running amuck in your system.

>

> definitely! Bad enough to normally be anemic, but for the past few years

> the anemia has been something that worried the doc's. And now we know

> the cause... sheesh.

>

> wrote:

>

> > Sorry that the pain is bothersome. When did you start the gold and

> > prednisone?

>

> started them in March

>

> > Have you told your doctor that the pain is still a problem?

>

> got to call him about it

>

> > What is your plan for the prednisone? Will you be on it indefinitely

> > or is

> > it just being used to calm things down and then you will wean off of

> > it? We

> > have many members here who can tell you that being on prednisone for

> > many,

> > many years is probably not the best idea.

>

> Doc wants me off it by the end of the summer at the latest.

>

> > When you say " specialist, " do you mean a rheumatologist?

>

> yep, but I was at work and didn't have a spellchecker available... I was

> not about to try spelling it without a spellcheck.

>

> Jan wrote:

>

> > We have good days and bad days.

>

> so I have discovered

>

> > Take your meds, get lots of rest, and don't overdo.

>

> That's the hard part... rest and overdoing... ::sigh:: I'm still working

> on it. I used to sleep 4-5 hours at day, now... well if I'm good I get

> 7! ;-)

>

> Thanks again for the welcome

> ronneem

June 1, 2001

MSM = methylsulfonylmethane

Boy, thats a mouthful! No wonder they abbreviate.

> >

> > > We have good days and bad days.

> >

> > so I have discovered

> >

> > > Take your meds, get lots of rest, and don't overdo.

> >

> > That's the hard part... rest and overdoing... ::sigh:: I'm still

working

> > on it. I used to sleep 4-5 hours at day, now... well if I'm good

I get

> > 7! ;-)

> >

> > Thanks again for the welcome

> > ronneem

June 1, 2001

Welcome Ronnee. Sometimes I wonder how some doctors passed

their boards. I was 20 when I was first diagnosed, but was

sent to a rheumatologist right away. I'm now 46 and still

being annoyed by the pain, but I've learned to live with it.

There are days it really gets me down, but basically the

meds I'm on have helped a lot. Riduara was one of the first

meds I tried. That was to many years ago to remember much

about it, but I know I didn't have any adverse reactions to

it. It just wasn't effective for me and we moved on. My

doctor wanted me to try the gold injections, but I was to

chicken. Now I get 3 injections a week, so I've moved past

the fear of injections. It's so much easier on my stomach.

Gold is one of the oldest treatments for RA, so they know a

lot about it's safety and long term affects. Prednone is

the drug we're very concerned about long term affects. As

many here will testify to, it's great for relieving pain and

is fine for short term flare relief, but horrible with long

term affects. Long-term use of steroid medications comes

with the risk of side effects, including osteoporosis,

cataracts, elevated blood pressure and a weakened immune

system. Some of us have no choice but to take steroids,

especially those with asthma, but there are other choices

for rheumatic diseases. Non-steroidal anti-inflammatory

(NSAIDS) can be prescribed along with pain medication. You

may want to talk to your doctor about alternatives to taking

prednisone if his plans are to keep you on it for any length

of time. It is very difficult to get off of prednisone once

you've been on it for any length of time. It's not a drug

that you can just stop taking. It must be slowly weaned.

a

-----Original Message-----

From: ronneem@... [mailto:ronneem@...]

Sent: Thursday, May 31, 2001 4:13 AM

Subject: [ ] newbie saying hello

Hi,

I've lurked on the list for about two weeks and decided to

say

hello. I'm 33 and was finally diagnosed with RA in Dec.

(This is

after arguing with my GP for 3 years, she insisted the

people in

their 20's did not get arthritis. I changed doc's and my

new one

tracked my complaints, ordered the tests and then sent me

to a

specialist.)

I used to be on one medicine, developed an allergy to it

(bright

wonderful hives that took a week to go away). Now I'm on

Riaura and

Prednisone.

If I may ask a question of those of you on similiar meds,

how long

before the pain stops being so flippin' annoying?

Well that's my introduction. Hi!

Cheers

Ronnee

June 29, 2001

[ ] newbie saying hello

> Hi,

>

> I've lurked on the list for about two weeks and decided to say

> hello. I'm 33 and was finally diagnosed with RA in Dec. (This is

> after arguing with my GP for 3 years, she insisted the people in

> their 20's did not get arthritis. I changed doc's and my new one

> tracked my complaints, ordered the tests and then sent me to a

> specialist.)

>

> I used to be on one medicine, developed an allergy to it (bright

> wonderful hives that took a week to go away). Now I'm on Riaura and

> Prednisone.

>

> If I may ask a question of those of you on similiar meds, how long

> before the pain stops being so flippin' annoying?

>

> Well that's my introduction. Hi!

>

> Cheers

> Ronnee

>

August 18, 2005

Hi Geroge and Welcome.

Yes you should get your T and E2 " Estradiol " tested and if your T is low and

your E2 is high if you treat the high E2 and get it down you T levels will go

up. And this may do the job. I use Cialis for my ED problem that I really

don't have anymore but it make it harder and my wife likes this. I had bad ED

for over 10 yrs. and it was caused from high E2. Here is a link to the AACE

Guildlines on Low T.

http://www.aace.com/clin/guidelines/hypogonadism.pdf

and go to the home page here and read message #14939 in this you will find the

best way to test and treat low T and high E2. If I had to use an HMO 21 yrs.

ago when I first came down with this Low T I would have eat a bullet. WTF you

only saw a nurse most of the time this is screawed up. The first 5 yrs. I was

sick they told me I was suffering from Major Depression I was so messed up on AD

drugs I did not know were I was and walked around in a fog for the hole time I

was on them drugs. When I was put on Prozac I could hardly pee and got a bad

bladder infection and had to see a Uro this Dr. saved my life he told me he did

not think I was depressed but that I have low T. He tested me and I was dam low

120 on the Total T. I never was depressed but just had low T. Your feeling

like this can be from Low t. so before you go this rote get your hormones

checked. The message #14939 has the tests that need to be done. I am retired

been retired for 6 yrs. now I stated at age 55 in the

last year I have felt my best on T meds thanks to the message at 14939.

Hears hoping things work out for you in less time then it took me you are in the

right place comming here this is the best site for low T.

Phil

B <bigcrix@...> wrote:

I recently went on Medicare, which gave me the chance to escape from an HMO

which has held its costs down by increasingly using nurse practitioners instead

of doctors.

The result was that I hardly saw a doctor for the past 5 years, as I got my

annual physicals, PSA/DRE tests, and flu shots.

In fact, in the entire time I belonged to that HMO, I saw a doctor only when I

had the flu, a broken bone, or kidney stones, maybe averaging one visit every

three years for 45 years.

Now that I'm on Medicare I seem to have really good doctor and will be having my

physical exams soon.

The past year I've suffered from total E.D. but have successfully managed it

with an erection vacuum pump and constrictor ring.

I'm financially well off but as I face retirement, I'm moderately depressed and

have a really short fuse.

Early in dealing with my new G.P., should I ask him to check my testosterone or

for a referral to a specialist?

While I may appear to be healthy, I feel like I'm operating at about 25%.

My ex, two kids and I are on good terms again.

Hoping this isn't all old age,

, 66, divorced two years

BigCrix@...

test'; " >

---------------------------------

Start your day with - make it your home page

August 18, 2005

Phil,

You probably already know this but that information in message

#14939 is also in a Word document format on Dr. Crisler's forums at

the following link:

http://forum.mesomorphosis.com/attachment.php?attachmentid=3279

This is the actual Word document. I think it is easier to read than

the message #14939 one and it prints better. Great information

though.

> Hi Geroge and Welcome.

> Yes you should get your T and E2 " Estradiol " tested and if your T

is low and your E2 is high if you treat the high E2 and get it down

you T levels will go up. And this may do the job. I use Cialis for

my ED problem that I really don't have anymore but it make it harder

and my wife likes this. I had bad ED for over 10 yrs. and it was

caused from high E2. Here is a link to the AACE Guildlines on Low T.

> http://www.aace.com/clin/guidelines/hypogonadism.pdf

> and go to the home page here and read message #14939 in this you

will find the best way to test and treat low T and high E2. If I

had to use an HMO 21 yrs. ago when I first came down with this Low T

I would have eat a bullet. WTF you only saw a nurse most of the

time this is screawed up. The first 5 yrs. I was sick they told me

I was suffering from Major Depression I was so messed up on AD drugs

I did not know were I was and walked around in a fog for the hole

time I was on them drugs. When I was put on Prozac I could hardly

pee and got a bad bladder infection and had to see a Uro this Dr.

saved my life he told me he did not think I was depressed but that I

have low T. He tested me and I was dam low 120 on the Total T. I

never was depressed but just had low T. Your feeling like this can

be from Low t. so before you go this rote get your hormones

checked. The message #14939 has the tests that need to be done. I

am retired been retired for 6 yrs. now I stated at age 55 in the

> last year I have felt my best on T meds thanks to the message at

14939.

> Hears hoping things work out for you in less time then it took me

you are in the right place comming here this is the best site for

low T.

> Phil

>

August 19, 2005

Yes I know but I think you need to be a member there for it to open. This is

way I don't give it did you forget I set you there.

Phil

asaxon67 <no_reply > wrote: