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1. Which disease have you been diagnosed with? My son has been diagnosed with

Juvenile Spondylarthropathy.

2. How long have you had this disease or did it take you to get a

diagnosis? Recently diagnosed - August 2010

3. Your age (not required!)? Son's age - 17 but may have had symptoms since 16

4. Region you are living? (You may have a Spondy friend right next door)

Northeast

5. What has been your experience living with the disease? Whirlwind - Since

August 4 medications, now headed to Remicade treatments

6. Your current line of medications and what medication you found most

useful. Currently - Sulfasalazine, Methotrexate inj., Motrin, Prednisone

7. Family history? Have you been tested for HLA-B27? My husband has complained

of back pain since his early 20's. Recently, tested positive for HLA-B27 after

son's diagnosis.

8. Your experience with physicians? Pediatrician was skeptical about arthritis

diagnosis with neg. RA factor - followed up with rheumatologist and found HLA to

be positive

9. What may have triggered your disease (If known)? Strep infection compounded

by foot injury.

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