Re: Alternatives to Enbrel? I now have MS.

[Guest guest]

First of all--good for you in doing all this research. Forewarned is

forearmed! And you will have a good knowledge base so you can talk

intelligently with the dr.. Some drs don't like informed patients as they

want to be the Lord and Master of your body but that's just too bad *I*

say. It's MY body and I have the right and responsibility to help decide

what goes into it. I once said to a new dr that I liked to be part of the

team and he looked at me like I was insane!

That said, I have used metho for close to 15 years in varying doses. It

seems to help somewhat. I find it interesting what you said about it not

helping some things but helping others....

I was on plaquenil for a long

time but stopped for a year or so because my dr was worried about eye

damage. RE: the latter---My support groups have consistently said that

that is a huge concern. My rheumy insists that at today's dosage levels

that is no longer a problem. This is a reversal from his original

position on that so I'm confused! I am not sure of the good effects of

plaq---hard to tell. But I take it because the dr says it is easier on my

liver than remicaid or similar drugs. I take sulfasalazine in combo with

that except for the day I take metho.

Speaking of remicaid, I took the infusions for four years. They did help

me. I saw a difference almost immediately. The first effects I saw were in

my hands. I never had trouble with remi other than when I first took it

wounds did not help very fast and for a week after taking it I felt

alittle flu-ish. That went away after a few months. Also had a naggy

little headache during infusion but not a big deal.

I have been on ibuprofen for swelling but it doesn't work anymore so on

Relophen(spelling?)

How did the MS develop? I didn't know there were links. I do know it is an

autoimmune disorder too. Even diabetes is from what I understand---

though it is not traditionally thought of like that.

Hope this helps, Greg!

Thanks!

Liz Kilpatrick

On the banks of the Mighty Mississippi River, Davenport,IA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

(A)PERSON with big dreams is more powerful than one with all the

facts! *H. Brown,Jr.**************************************

LIFE isn't about waiting for the storm to pass. It's about learning

how to dance in the rain! *Vivian Greene*************************

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... WEBSITE: http://members.tripod.com/~LizK

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

One other thing if Metho doesn't work for the spine, what does? I have

been having recent problems with my tailbone and lower spine. Thanks

again!

Thanks!

Liz Kilpatrick

On the banks of the Mighty Mississippi River, Davenport,IA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

(A)PERSON with big dreams is more powerful than one with all the

facts! *H. Brown,Jr.**************************************

LIFE isn't about waiting for the storm to pass. It's about learning

how to dance in the rain! *Vivian Greene*************************

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... WEBSITE: http://members.tripod.com/~LizK

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

I have been on Enbrel since 1999. It has bene very effective, but I have dialed

back due to fear over side effects.

MS runs in my family. Autoimmune disease runs RAMPANT in my family. My sister

has MS.

Coordination and work with neuros and rheumis, etc. is storng advised, and it

appears that you are doing this.

Jon

On The Shore of Long Island Sound---and I have actually been to Davenport !

>

> One other thing if Metho doesn't work for the spine, what does? I have

> been having recent problems with my tailbone and lower spine. Thanks

> again!

>

> Thanks!

> Liz Kilpatrick

> On the banks of the Mighty Mississippi River, Davenport,IA

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> (A)PERSON with big dreams is more powerful than one with all the

> facts! *H. Brown,Jr.**************************************

> LIFE isn't about waiting for the storm to pass. It's about learning

> how to dance in the rain! *Vivian Greene*************************

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> EMAIL: juliette@... WEBSITE: http://members.tripod.com/~LizK

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

[Guest guest]

----- Forwarded Message ----

From: appsreps <appsreps@...>

Sent: Sun, September 12, 2010 4:06:53 PM

Subject: Re: Alternatives to Enbrel? I now have MS.

I have been on Enbrel since 1999. It has bene very effective, but I have dialed

back due to fear over side effects.

MS runs in my family. Autoimmune disease runs RAMPANT in my family. My sister

has MS.

Coordination and work with neuros and rheumis, etc. is storng advised, and it

appears that you are doing this.

Jon

On The Shore of Long Island Sound---and I have actually been to Davenport !

>

> One other thing if Metho doesn't work for the spine, what does? I have

> been having recent problems with my tailbone and lower spine. Thanks

> again!

>

> Thanks!

> Liz Kilpatrick

> On the banks of the Mighty Mississippi River, Davenport,IA

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> (A)PERSON with big dreams is more powerful than one with all the

> facts! *H. Brown,Jr.**************************************

> LIFE isn't about waiting for the storm to pass. It's about learning

> how to dance in the rain! *Vivian Greene*************************

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> EMAIL: juliette@... WEBSITE: http://members.tripod.com/~LizK

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

[Guest guest]

Hi Liz, I have that damn pain in the butt too. I've had it going on 7 years now.

It is the worse pain I have. I use Lidoderm Patches on there at bedtime so I can

sleep thru the night. But my son has Ankylosing Spondilitis too, and he gets the

Remicade infusions, and it is like a miracle for him. The Doc wanted to put me

on it too, but I have so many infections in my kidney, that it would be too

risky. So, I am trying to get some kind of cream my at home nurse told me about.

I will write later with the name of it. And night sweats I use Soy Balance, and

that slowed down the sweats, thank God. in Oregon

From: appsreps@...

Date: Mon, 13 Sep 2010 07:41:35 -0700

Subject: Fw: Re: Alternatives to Enbrel? I now have MS.

----- Forwarded Message ----

From: appsreps <appsreps@...>

Sent: Sun, September 12, 2010 4:06:53 PM

Subject: Re: Alternatives to Enbrel? I now have MS.

I have been on Enbrel since 1999. It has bene very effective, but I have dialed

back due to fear over side effects.

MS runs in my family. Autoimmune disease runs RAMPANT in my family. My sister

has MS.

Coordination and work with neuros and rheumis, etc. is storng advised, and it

appears that you are doing this.

Jon

On The Shore of Long Island Sound---and I have actually been to Davenport !

>

> One other thing if Metho doesn't work for the spine, what does? I have

> been having recent problems with my tailbone and lower spine. Thanks

> again!

>

> Thanks!

> Liz Kilpatrick

> On the banks of the Mighty Mississippi River, Davenport,IA

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> (A)PERSON with big dreams is more powerful than one with all the

> facts! *H. Brown,Jr.**************************************

> LIFE isn't about waiting for the storm to pass. It's about learning

> how to dance in the rain! *Vivian Greene*************************

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> EMAIL: juliette@... WEBSITE: http://members.tripod.com/~LizK

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>