Re: New Member - Need Help/Info

[Guest guest]

hi evan. the disease can disappear as quickly as it came. or not. everyone is

different although it would seem more people go into remission than become

chronic. best thing you can do is take care of yourself, take meds to reduce the

pain, and pay attention to what your body tells you - meaning take it easy when

necessary and rest a bit more. and if yo find your rheumatologist isnt too

helpful, find another one.

good luck. james

From: evanyegs21 <evanyegs21@...>

Subject: New Member - Need Help/Info

Date: Wednesday, December 30, 2009, 2:32 PM

 

Hello,

I have recently begun reading this board. I am a 24-year old male in Cleveland,

Ohio who was diagnosed with ReA this past August as a result of a chlamydia

infection. Blood tests showed that I was HLA B27 positive.

[Guest guest]

Hello Evan i went to mexico last year and ate some bad tacos i never thought in

a million years food poisoning could change my life i too was diagnosed with

this condition. Prednisole and sulfazine didnt work for me and so now i am

taking methotrexate it sucks but without it i was not able to walk. All i know

is many doctors will misdiagnose and tell you negative stuff like for instance

they told me i had to get a desk job because being a server was no longer

possible well they were wrong!! i have good weeks and bad days and all i know is

everyone is different. Be strong be proactive and listen to your body if the

meds are not working or are giving you really bad side effects have your doc

change them. You cant change the past all you can do is move forward take care.

victor

From: evanyegs21 <evanyegs21@...>

Subject: New Member - Need Help/Info

Date: Tuesday, December 29, 2009, 10:32 PM

 

Hello,

I have recently begun reading this board. I am a 24-year old male in Cleveland,

Ohio who was diagnosed with ReA this past August as a result of a chlamydia

infection. Blood tests showed that I was HLA B27 positive.

I feel lucky that my rheumatologist (who is not very good/helpful btw) diagnosed

me early on. It began with swelling in my feet, which has since subsided for the

most part, although I have pain/tightness in my back, left hand, and left knee.

The rheumie has told me that I have a progressive disease that will most likely

be chronic. However I am not completely sold on this; 20 mg of prednisone and

1000 mg of sulfazalizine keeps the pain in check for the most part. There are

days when I feel fine and days when the pain is worse.

I find it difficult to locate good concrete information/ advice on the disease.

Also, the psychological toll on myself and my girlfriend (who blames herself for

my condition) is large.

I welcome any and all advice that you all kind people will give me. How often,

on average, will this disease come back if it is indeed chronic? What are the

chances that it is chronic? Do all chronic cases result in permanent damage?

Thanks in advance for help with my problem, I am extremely grateful that I

finally found this site.

Thanks,

Evan

[Guest guest]

I am a new member. I got severe diarrhea in the summer after I ate food from a

street side vendor. After a few weeks, I developed ReA. I am seeing a Rheum but

the meds I was put on (sulfasalazine and prednisone) help some days and not so

much the other days. I am HLA-B27 positive with high ESR values but no

Rheumatoid Factor. I feel unlucky that I got this dreaded disease but have

decided to win against it once and for all in 2010.

My question is:

A. Does anyone have relief when they eat certain kinds of food (gluten free or

hot food)? It seems to work for me. I wanted to check and see if it works for

others.

B. Based on the above, did anyone see a GI specialist to check for e coli, h

pylori or c difficile? I looked up on the net and saw evidence that these may

cause ReA.

C. Has anyone been " cured " of ReA? If so, what did they do to achieve the cure?

Thanks in advance.

________________________________

From: victor breton <vbreton73@...>

Sent: Thu, December 31, 2009 12:46:47 AM

Subject: Re: New Member - Need Help/Info

 

Hello Evan i went to mexico last year and ate some bad tacos i never thought in

a million years food poisoning could change my life

[Guest guest]

Victor,

I got ReA while stationed in East Africa, one chicken burrito and my life

changed. Anyway, wish all of you health and happiness in 2010!!! Happy New

Year and God Bless!!!

von Hacker III

Sent from my Verizon Wireless BlackBerry

New Member - Need Help/Info

Date: Tuesday, December 29, 2009, 10:32 PM

 

Hello,

I have recently begun reading this board. I am a 24-year old male in Cleveland,

Ohio who was diagnosed with ReA this past August as a result of a chlamydia

infection. Blood tests showed that I was HLA B27 positive.

I feel lucky that my rheumatologist (who is not very good/helpful btw) diagnosed

me early on. It began with swelling in my feet, which has since subsided for the

most part, although I have pain/tightness in my back, left hand, and left knee.

The rheumie has told me that I have a progressive disease that will most likely

be chronic. However I am not completely sold on this; 20 mg of prednisone and

1000 mg of sulfazalizine keeps the pain in check for the most part. There are

days when I feel fine and days when the pain is worse.

I find it difficult to locate good concrete information/ advice on the disease.

Also, the psychological toll on myself and my girlfriend (who blames herself for

my condition) is large.

I welcome any and all advice that you all kind people will give me. How often,

on average, will this disease come back if it is indeed chronic? What are the

chances that it is chronic? Do all chronic cases result in permanent damage?

Thanks in advance for help with my problem, I am extremely grateful that I

finally found this site.

Thanks,

Evan