Re: introducing myself and methotrexate question

[Guest guest]

Hi and welcome!

That's what I'm on 5 pills a week.

Have been on metho for 13 years or so. first drops in water and then

pills weekly.

I wasn't told for years that I should have been on folic acid.

Now I am.

I don't usually see any side effects with it (that's just me though)

I've had to be off it for about 5 weeks because of a snafu with my lab

work and the prescription. The dr ordered the lab and I got the lab but

the results were never sent. I was in the midst of a severe depressive

episode this past month so I wasn't cognizant of what was going on with

the situation till I finally got myself together enough to research the

test and found out they spelled my name wrong at the lab!!!! AND I just

found out yesterday they put the wrong Medicaid number on my claim

DOH!!!!!!!

I am also going to be restarting Remicaid soon. It is a good combo with

Metho supposedly in slowing down the symptoms. I just hate that this stuff

is so hard on the liver! but we really have little choice in the matter.

Liz >

> I'm about to start methotrexate (5 pills (12.5 mg)/week, , and I wanted to ask

for advice

> about taking it. Have those of you who take it found it goes down more

comfortably with

> food, or an hour after eating? Anything else for first-timers to be aware of?

>

> My doctor's putting me on folic acid at the same time: if anyone else is on

this combination,

> do you find it works better to take it at the same time as the MTX, at a

different time, or that

> it doesn't matter?

>

> Thanks so much!

>

> EA

>

>

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[Guest guest]

I am on 7.5 mg of Methotrexate. During the first few weeks, I found it helped to

eat some dry toast a couple of hours after taking Mtx to minimize nausea. I take

folic acid daily and was advised that taking an extra 1,000 mg on the day of Mtx

and the following day would help to minimize side effects. I never needed to do

this.

J. Blake

http://www.growingstrong.org

sjblake@...

I'm protected by SpamBrave

http://www.spambrave.com/

[Guest guest]

I try to take mine in the evening before bed with a snack. My folic acid

is taken every day in the morning.

Kate G

At 10:13 AM 1/9/2009, you wrote:

>Hi! Thank you all for sharing so much information; it looks really helpful.

>

> I was just diagnosed with ReA on Tuesday-- the diagnosis explains a lot

> of inflammation-

>related health issues I've had for the past 9 years--

>

>--most recently, five nearly-spontaneous stress fractures/stress injuries

>in my feet this past

>year! I'm waddling around in a pair of air-cast boots, trying to heal up

>so I can someday walk

>again.

>

>I'm about to start methotrexate (5 pills (12.5 mg)/week, , and I wanted to

>ask for advice

>about taking it. Have those of you who take it found it goes down more

>comfortably with

>food, or an hour after eating? Anything else for first-timers to be aware of?

>

>My doctor's putting me on folic acid at the same time: if anyone else is

>on this combination,

>do you find it works better to take it at the same time as the MTX, at a

>different time, or that

>it doesn't matter?

>

>Thanks so much!

>

>EA

[Guest guest]

I was on injectible metho for a couple years and I did it just before bed, then

you sleep through the side effects.? So when I started rheumatrex I have done

the same thing, just take it at bedtime with food (usually graham crackers and

peanut butter), something with protein works best for me.? I've never been on

the folic acid, doctor didn't think it? was necessary.? Hope that helps.? Good

Luck to you.? Kathy from WI

[Guest guest]

i took methotrexate every monday morning.i had 2 classes in the morning and then

i would take my meds on the way home,i would take a 1/2 dose of nyquil to put me

to sleep.the nausea and vomiting would be bad if i didn't sleep through the

worst of it.i would have severe nausea and diarrhea if i didn't. i would sleep

for about 5 hours and then get up for 2 classes in the afternoon.the folic acid

helps it absorb better.i didn;t like the methotrexate..it made my hair fall

out.i was bald for 6 months.my white count stayed low like it was supposed to.i

started having inflammation in my lungs so i had to go on arava instead.not as

many side affects but it made me bald again within 2 weeks.small price to pay

for less pain and inflammation.

From: J. Blake <sarah@...>

Subject: Re: introducing myself and methotrexate question

Date: Friday, January 9, 2009, 12:53 PM

I am on 7.5 mg of Methotrexate. During the first few weeks, I found it helped to

eat some dry toast a couple of hours after taking Mtx to minimize nausea.

[Guest guest]

I was on methotrexate for about 4 years. I took the pills for quite

a few months until my husband told on me that I was throwing up soon

after I took the once a week pills. Then the doctor suggested

injections. I got quite used to those after a while. I had several

side effects from it but figured the med was better than the

alternatives, which my main scare is losing the eye. Finally last

november I asked the doctor if there was anything else I could take

with humira and he put me on leflunomide. So far I feel better.

Take the folic acid. I take 2 pills. It helps with the mouth

soreness, and protects the liver.I take mine whenever I think of it

during the day.

Bonnie

[Guest guest]

Thank you all so very much! I'll take my first dose tonight, and feel

ready for anything, now that I'm armed with all your stories.

All best,

EA