Pain management

[Guest guest]

I am in severe pain, it keep me immobile. If I do move it makes the pain worse,

so I find myself staying in bed and on the couch. the one thing that seems to

help is hot hot baths. It seems I am watchign life go by through a window. I

came down with retiers syndrome in 2004. I am hla-b27 reactive. last may I

told the neuro I couldnt watch life go by anymore and he said the first thing he

would try is going off the boatload of narcotics I was on, so I stopped them

immediately. they werent working anyway. I am still in severe pain. we have

tried cyclobenzaprine, zanaflex, meloxicam, tramadol, nsaids and others for the

pain. seroquel and sumtriptan for the headaches. i have ringing in the ears,

loud. the headaches never go away and are always at least a 5. my question is

what meds have provided relief for all of you? I cannot do meds that weaken the

immune system.