Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 a, Thanks for responding, it is good to know I have somewhere to turn. My relationship with God is strong, but I need people that I can talk to. you mentioned PA. I thing I am getting psoriasis mixed up with exima(sp?) My Mom has both and I get confused as to which one I have. It is tiny little bumps that surface on my hands and feet and then they dry and crack. Anyway, RA is what it finally came down to. I was one of those 30% that don't have RF. Did not show up in the blood work, making diagnosis difficult. I have had Hepatitis B when I was 16 due to alcoholism and they had to make sure it was not that first. That is why the pending results of this liver test have me paranoid. Friday seems like forever. I am trying not to project. I think I am going to ask my doctor to try the Vioxx again. I was going though a very close friends death at the same time I started taking it and I think the nausea, stomach in knots and exima break out might have been a result of that and not the Vioxx. I will ask her first of course. I am not a doctor. Sorry I am so long winded, not in as much pain this morning. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 - Hey man, nice to have two support groups in one!! God has a plan. I also hope to be pain free one day, but I am also trying to accept the fact that there is a chance that I may not be. I think that I was in denial myself for a while there, or maybe the RA just hadn't sunk in yet. Then the pain started getting to bad to ignore. I'm sure that they will get me on some kind of maintenance program that will work for me, but the waiting is killing me. By the way, I am in the Nashville TN area. Easy does it, but do it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Mrs. L- I know your struggle with your husband. What you described is almost exactly what my husband went through when he was diagnosed with Ulcerative Colitis (another autoimmune disorder). The Prednisone will cause him to become easily agitated, especially if they keep changing the dose, or if he misses doses. That stuff is nasty, I have had to take it myself for asthma and RA. Not fun. When I responded to the Prednisone they knew that it was RA, that is how they finally ended up diagnosing me. My husband no longer drinks, had already gotten sober before his diagnosis, so the depression only lasted 2-3 months. Thank God. I am not going to label anyone an alcoholic, but your husband sure has the classic symptoms. Alcoholism is a disease just like RA or any other. The only treatment is complete abstinence. Unfortunately, the alcoholic will have to discover this on his or her own. No one can diagnose the alcoholic but himself. There is a support group that might be helpful to you. It is called Al-Anon. I wouldn't badger him about his drinking or show him this e-mail. The best thing you can do for him is show him unconditional love. You wouldn't badger a cancer patient about his sickness, nor should you the alcoholic. If in fact he even is one. Looking at it in this light makes it easier to understand. Hope that helps some. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Welcome , I'm sorry to hear that your family is not supportive. Many of us have that same 'rock' in our lives.... no support. That is why we are here. It is so helpful, emotionally, to be able to talk to other who share your pain. With so many medical sights brought to this group by some wonderful people, although not curing our diseases, we are able to take much info to our doctors. If not for the friends I have found on the net, my doctors still would not know what is wrong with me, as sad as that sounds. I hope you find the help and support you need here as all of us have. Welcome, Fly __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Judy, I only got two injections for the plantar faciatis. I ended up with special, custom made inserts for my shoes. They helped for several years then wore out pretty well. I really should have gone back to see my foot doctor, but he ended up suffocating his wife with a dry cleaning bag and isn't in business anymore. My luck! Anyway, I did the Imitrex once. Ended up in the nurse's office for hours with her checking my pressure every 10 minutes. So I stick with the Fioricet. Glad your headaches aren't as frequent. Fly __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2001 Report Share Posted May 11, 2001 , With eczema (Atopic Dermatitis) , the skin breaks out and itches with burning and stinging. Sometimes little pimples form which turn into water blisters. Usually the skin dries up into little scales and itches. (25-50 percent of atopic people have food sen- sitivities to wheat, eggs, milk, peanuts, soy, nuts, fish. There are different types of psoriases. A good place to read a general overview of them is: http://dermatology.about.com/health/dermatology/library/week ly/aa032999.htm?iam=dpile & terms=%2Bpsoriasis I also have a negative RF. Does your rash itch? Don't apogise for any long posts! Long posts are very acceptable here. How are your fingernails? I hope you get good news tomorrow. hugs, a .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2002 Report Share Posted September 1, 2002 I just wanted to tell you that when I think I no longer need the rheumatic support group, I read some letter like B's to Geoff - trust me, that was to all of us, particularly ME - and feel so blessed I am part of you. I agree with every single thing that was said. I try telling my friends that there is a TEXTURE to my life which until my disease, was not present. And I try to role model for my children that life is not perfect like tv and society would have us believe. LIFE will happen to our children, too, and the best thing I can give them is to live well with my disease. I must model for them out to go beyond pain, or limitations, or disappointments and reach for the inner self. I must teach them to know how to be STILL, to live in the NOW. If I can teach them these things, then when life takes its toll on them, they will be more ready to handle it. This has NOTHING to do with going outside and playing games or monetary moments. This has to do with teaching our children to know their inner core. Geoff, I am sorry you are so down right now. You have given me much strength and wisdom over the last three years. If you have given a far away stranger this kind of emotional support and connection, just think what you have given your family. Love to all of you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 In a message dated 9/12/2002 4:02:42 PM Central Daylight Time, writes: << > Hannah, and I were singing Happy Birthday to me and having a blast > because this is 's favorite song. But anyways, Hannah went and > brought her play kitchen food to me and so cleverly place some plastic > bread on a toy plate and handed it to me. Then gave me a spoon and said > cake! How sweet is that!!!!!!! That's my Girl!! > Oh Pam,,,,,,that IS so sweet!!!!! I'll bet it didn't taste too good...though Maddie, Seth and Karyn's probably would have gobbled it up...LOLOL Donna >> ANd would have savored it going down. Karyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 >>>>Her first night was last night......and He did sleep but only till 3:30 am...then he was up for the remainder of the night! eeeek! She is wondering howquickly to up the dosages? What is the general dosage used here? How long does this generally take to work? Please respond!<<<<< Yeah, that happens to us too. Melatonin puts him to sleep easily but that was never the problem. It's the staying asleep and with Melatonin, he can still wake up at 3am. We have the liquid melatonin, the GNC brand, which is 2.5 mg per dropper but we stopped using it for the most part. Rather than using it before bed, since he goes to sleep well, we will occassionally use it if he wakes up in the middle of the night and doesn't go back to sleep. We give one dropper. Be careful about double dosing. Our bottle says not to use more than 1 dropper in any 24 hour period. We have also found that stopping it for a while and starting it back for a while helps. I have also read that sometime with melatonin, less is actually better. I think I found some articles on a googlse search. Good luck. We've all been there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 In a message dated 4/2/05 7:19:17 AM Eastern Standard Time, writes: > From: " CL Muscat " <lindybuzz@...> > Subject: Re: Digest Number 1805 > > I didn't have any luck with sam-e but 5-HTP is WONDERFUL! It has to be of > help with seizures as well as depression. Just wish that I had known about > this a long time ago. > .. ..>>> How much SAM-e did you take? Did you take it on an empty stomach two hours after or an hour before eating food? Charlie's effective dose is about 400 mg morning and afternoon before 3 pm. Some of the B vitamins are important cofactors with SAM-e. Hope this helps Charlie's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 I've been taking B complex for almost 5 years now. Didn't know about an empty stomach wtih Sam-e but it doesn't matter at this point since I'm very happy with the results from 5-HTP. >From: foxhillers@... >Reply- > >Subject: Re: [ ] Digest Number 1806 >Date: Sat, 2 Apr 2005 08:01:09 EST > >In a message dated 4/2/05 7:19:17 AM Eastern Standard Time, > writes: > > > From: " CL Muscat " <lindybuzz@...> > > Subject: Re: Digest Number 1805 > > > > I didn't have any luck with sam-e but 5-HTP is WONDERFUL! It has to be >of > > help with seizures as well as depression. Just wish that I had known >about > > this a long time ago. > > > >. >.>>> How much SAM-e did you take? Did you take it on an empty stomach two >hours after or an hour before eating food? > >Charlie's effective dose is about 400 mg morning and afternoon before 3 pm. >Some of the B vitamins are important cofactors with SAM-e. > >Hope this helps >Charlie's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2005 Report Share Posted April 2, 2005 Marilyn, I have to tell you that SAMe does not work for everyone. I was taking it myself and nobody in my family could stand me because I was angry all the time so I had to stop taking them. I started feeling better after I started taking my B vitamins and fish oil. Grace foxhillers@... wrote: In a message dated 4/2/05 7:19:17 AM Eastern Standard Time, writes: > From: " CL Muscat " <lindybuzz@...> > Subject: Re: Digest Number 1805 > > I didn't have any luck with sam-e but 5-HTP is WONDERFUL! It has to be of > help with seizures as well as depression. Just wish that I had known about > this a long time ago. > .. ..>>> How much SAM-e did you take? Did you take it on an empty stomach two hours after or an hour before eating food? Charlie's effective dose is about 400 mg morning and afternoon before 3 pm. Some of the B vitamins are important cofactors with SAM-e. Hope this helps Charlie's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 just one question regarding the soap. Do you take it out of the wrapper? keith --- low dose naltrexone wrote: > There is 1 message in this issue. > > Topics in this digest: > > 1. OT/Fat Hormone(Leptin) Tied to MS > From: " Bren " <TwisterAlley2@...> > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 1 > Date: Sat, 14 Jan 2006 15:47:18 -0000 > From: " Bren " <TwisterAlley2@...> > Subject: OT/Fat Hormone(Leptin) Tied to MS > > > > I replied in this thread...I am LDN on > BrainTalk forums...I think you will find this info > interesting and my Leptin bloodwork results > interesting. > > Fat Hormone Tied to Multiple Sclerosis - BrainTalk > Communities > http://brain.hastypastry.net/forums/showthread.php?p=981850 > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 Yes! Remove the wrapper. Haven't tried it with the wrapper. Whatever works!! -- OT/Fat Hormone(Leptin) Tied to MS> > > > I replied in this thread...I am LDN on> BrainTalk forums...I think you will find this info> interesting and my Leptin bloodwork results> interesting.> > Fat Hormone Tied to Multiple Sclerosis - BrainTalk> Communities>http://brain.hastypastry.net/forums/showthread.php?p=981850> > > > > > > > >________________________________________________________________________>________________________________________________________________________> > > >------------------------------------------------------------------------> Quote Link to comment Share on other sites More sharing options...
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