Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Barbara, I understand the frustration! On your thyroid replacement, 75mg is a baby dosing. Too many doctors treat thyroid based on only the TSH test. You need to have your Free T4 and Free T3 tested. This is the amount of the unbound hormone ready for the body to use, most need those number is be in med range to upper range to feel good. Unfortunately, thyroid treatment is pretty poor in this country. Doctors use to treat based on symptoms, IE if they had a thyroid symptom there meds were gradually raised until they went away....then the TSH test come out and they were told is it the gold standard, right....not. People go in with a long list of symptoms that are documents as hypo thyroid symptoms, but told because their TSH is " normal " that is can't be their thyroid. You need more thyroid replacement to shrink your nodules. Anyhow, I won't bore this list with my thyroid soapbox....privately email me if you would like info on a support group for thyroid :-) Kate G Hashi's AS At 08:27 AM 10/8/2007, you wrote: >Does anyone here ever get tired of going to the doctors? Over half >the time that I need to get a hold of my doctor due to a flare up-he >is never in the office. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 Hi Barbara You wrote: > And then talked to me about placing me on > Neurotin a daily total dosage would be 900 mg (300mg pills three > times a day) to help with my pain and the numbness that I get in my > left shin area. > > I am somewhat familiar with it since my grandmother took it due to > her diabetes. But, I was wondering if anyone here has taken it-and > did it help. He is wanting to use it in combo to the hydrocodone > that I already take. I am on 2400 mgms daily 2 capsules 4 times daily along with Prozac 40 mgms and Elavil 75 mgms once daily also along with 20 mgms of OxyContin, 2 tablets every 4 hours and I have found the Neurontin (Gabapentin) to be very good with my Sciatic Pain. When I forget to take one dose, 600 mgm, I feel it very quickly and it takes time to get back on track. I also take Diclofenac SR 75 mgms twice daily, this is a NSAD which I didn't think did a thing for me, much to my chagrin lately. I am on a major flare of just about every " itis " I have and two days last week I forgot to put my Diclofenac in my pill counter. Boy did I pay for it on Wednesday last week. Every bone in my hands ached like there was no tomorrow. After finding out I had forgotten to put those pills in my pill counter and going back on them, the pain subsided rather quickly. Of course I upped my other pain killers as well. Won't make that mistake again. Neurontin is good for most cases of neuropathy including the peripheral neuropathy we get with diabetes. Blessings Fr. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Have you ever tried Lyrica, Marty. On 250mg 2 times daily. It helps but not what I wish for. Happy Trails FR. Dave ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Hi there, Been a memeber for a while read some of your emails. Found you when I was diagnosed with neuropathy. Was actually trying to diagnose myself. So I finally went to the Doctors and they said I had Osteo arthritis and neuropathy. I took the medicine they gave me for a couple weeks and it ate up my stomach. So had to take me off. I had numbness real bad in my legs and it was hard to walk. So I call this local Natural Phamacy we have and they told me to try this new Natural Medicine on the market made from Shea Nut. Well on it a few weeks not and it is really really helping. No more numbness. They say you have to take it for about a month to see a difference but in a couple weeks I see a difference. Could feel it start to work after a few days. It is called Flex now! You can find it on the internet found mine at GNC. Money back guarantee came in the box. So if you have neuropathy or any arthritis try it helps swelling. Have a great day. I have so much I do on here having my own group don't have time to write but wanted to pass on this information to you all! Betty Falasca Betty www.bettysoriginalembroideries.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 Hi Kate You wrote: > Barbara, > > I understand the frustration! > > On your thyroid replacement, 75mg is a baby dosing. I was just diagnosed with low Thyroid levels and my dose at the moment is 100mcg daily. Where does that fit in the great scheme of things? Fr. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Dear Kate, I have had a full blood work done. My T3 and T4 and everything else is in the normal area however, somewhat in the high end of that range. My TSH was a .5 which from what my doc says places me at borderline hyperthyroid. I am a fifth or sixth generation goiter in my family. All the women in my family have had thyroidectomies. I am the first out of this generation to have one. We were hoping that my generation would be the one skipped. However, that is apparently not the case. All the women in my family always tested, at least from what my mother stated, as a .5. We suspect that we all carry an auto immune disease of some kind that causes this to arise in us. Even now we know this to be even more true since my mother, aunt, me, my sister and cousin have been diagnosed with some form of autoimmune disease from RA to ReA. Barbara > >Does anyone here ever get tired of going to the doctors? Over half > >the time that I need to get a hold of my doctor due to a flare up- he > >is never in the office. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 What are the Free's in range? " normal " ...it is a range..so you have room to move up the range...and feel better and possibly stop or shrink the nodule growth. Have you not had an anti-body test done? Yes, on thyroid replacement your TSH will be suppress, IE close to zero. That's what the hormone does, it shut the signal off..so the TSH will go down. Kate At 08:05 AM 10/10/2007, you wrote: >Dear Kate, > >I have had a full blood work done. My T3 and T4 and everything else >is in the normal area however, somewhat in the high end of that >range. My TSH was a .5 which from what my doc says places me at >borderline hyperthyroid. I am a fifth or sixth generation goiter in >my family. All the women in my family have had thyroidectomies. I >am the first out of this generation to have one. We were hoping that >my generation would be the one skipped. However, that is apparently >not the case. All the women in my family always tested, at least >from what my mother stated, as a .5. We suspect that we all carry an >auto immune disease of some kind that causes this to arise in us. >Even now we know this to be even more true since my mother, aunt, me, >my sister and cousin have been diagnosed with some form of autoimmune >disease from RA to ReA. > >Barbara > > > > > > >Does anyone here ever get tired of going to the doctors? Over half > > >the time that I need to get a hold of my doctor due to a flare up- >he > > >is never in the office. > > > > > > >------------------------------------------------- >Post message: > >Set your subscription to digest (one email a day) >/ > >Contributions to RISG.ORG are tax deductible. Credit Card or PayPal >http://www.risg.org/contributions.htm > >You're Not Alone! >http://www.risg.org > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2007 Report Share Posted October 22, 2007 Barbara, Have you done anything about this problem yet? I don't know about the > > Does anyone here ever get tired of going to the doctors? Over half > the time that I need to get a hold of my doctor due to a flare up-he > is never in the office. > > But, there I was last Friday, in his office again. Could barely > walk. We talked about my back and I complained about how now it > seems like every morning that I get up my spine hurts from my lower > back to about the middle of my shoulder blades. I explained that I > was afraid that my Reiter's may be advancing into Ankylosing-because > of this new on set of pain. Not really new-been growing over the last > two months. And that there are mornings that I get up and I just sit > up on the side of the bed and just rock back and forth because my > spine is SO uncomfortable. Almost makes me want to rip it out. > > He listened and would say nothing more than he understood why I would > be afraid of that. And then talked to me about placing me on > Neurotin a daily total dosage would be 900 mg (300mg pills three > times a day) to help with my pain and the numbness that I get in my > left shin area. > > I am somewhat familiar with it since my grandmother took it due to > her diabetes. But, I was wondering if anyone here has taken it-and > did it help. He is wanting to use it in combo to the hydrocodone > that I already take. > > If you have taken it- what side effects did you experiece? Also, did > the side effects go away after some time? > > We did talk about my goiter that I have. And that he wants to run > some blood to see where my TSH level is. He still thinks that I am > looking at possible surgery-so does my mom-since she feels that they > dragged their butts too long before doing something about it. > Currently, they have me on a thyroid pill, 75 MG once a day hoping > that maybe it will cause it to at least stop growing. However, I > explained to him that I don't think that the med is doing what we > hoped that it would do. Because I have noticed a slight increase > with difficulty when swalloning. > > So, can any one relate here? If so, advice or encouragement is much > appriecated. I would like to keep from having to have the surgery > since I do have two school age children-and I would most likely be > hospitalized for a couple of days. > > My boyfriend works-but we really can't afford the time for him to > take off even though he does have a week paid vacation coming up-we > are wanting to save it so that we can get his teeth fixed-he is going > to need a complete set of dentures-and we wanted him to not work > during the first week since we know that it will be the hardest-he is > also a custom cabinet worker-does a lot of heavy lifting-and dealing > with saw dust constantly we are are afraid it could slow healing- > since he has been known to come home with saw dust in his eyes, nose > and mouth. > > Barbara > Quote Link to comment Share on other sites More sharing options...
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