Re: Metho Feedback/Question about Ibuprophen

[Guest guest]

tte,

Ibuprofen can prolong your bleeding time(making it more difficult to clot

blood.)It also can make you retain more fluid therby raising your blood

pressure. .

Margie

[Guest guest]

Things you should look for with regular Ibuprofen usage are related to

kidney function. Good idea to keep your pee stream clear - that will

cut down on renal toxicity. However, with Tylenol - the liver is more

the issue and they are watching those functions.

Myself, I can't take NSAIDs because of a mild clotting issue, but when I

have tried it does effect my blood pressure also because of the

kidney/B/P relationship. It also will cause more swelling in my hands

and feet - also related in my opinion to kidney function.

, RN, BS, COHN-S

Manager, Employee Health Services

[Guest guest]

Do you have Reiter's? Metho did it for me with my last bought. I took

injections for 6 months and went into remission. Now, I am battling it again.

I also take sulfasalazine, indomethacine and hydrocodone. Is Remicaid for

Reiter's? The only thing I know about Ibu is that it is rough on the

stomach.....although indomethacine is worse.

I would love to hear more about you and your story.

[Guest guest]

The unfortunate thing about this blog is, since we do not see the name

or comment from the prior sender, I don't know if you are asking me this

question or the first respondent.

I do have Reiters - have had many of the triad symptoms since I was a

child. Diagnosed in 1995 when I found out my right kidney had failed

due to ureter collapse/blockage (dual ureters bilateral).

, RN, BS, COHN-S

Manager, Employee Health Services

[Guest guest]

,

Thanks for you response. I would like to hear more about your

story. When diagnosed(how old)? How many bouts have you had? Have

you gone in remission before?

Lance Bray

[Guest guest]

I was 31 and had just had a miscarriage. I was waiting to try to get

pregnant again.. dr said wait 6 months. Two months later I got what they

thought was cystitis.. terible burning upon urination. But the culture

showed no infection. Then in a month or so I got what they thought was

pink eye.. but again no organisms in the culture. Then I got a terrible

painful case of gout in my big toe... nothing would help the pain at all.

I had gone to a dr in between times and he told me it was all in my head.

After the big toe I went to another just plain GP who dxed me in 30

minutes.

I have been on indocin.. a year and a half; meclomen for 12 or so years,

and then into methotrexate in drops in water and then to pills...

currently 8 once a week.

I have been up and down over the years.. This fall ahd a bad bout with my

hip. My hands have been more of a problem than any other part of my body.

Glucosamine has helped me a lot. I have been on it a year. In spite of it

though I had that hip bout anyway.

I have been dxed 22 years now..I'm 54.

My birth mother (i'm adopted...had reiter's, psoriatic, chronic fatigue

syndrome, sjogren's, and rhematoid arthritis). I had my first symptoms of

oany arthritis condition at 25 in my back when bending over the sink to

wash my hair.

I have lost track of how many bouts over all I have had....stress seems to

make it worse but other times it doesn't seem to..It is always a puzzle...

On Tue, 12 Dec 2006, bray_lance wrote:

> ,

>

> Thanks for you response. I would like to hear more about your

> story. When diagnosed(how old)? How many bouts have you had? Have

> you gone in remission before?

>

> Lance Bray

>

>

>

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[Guest guest]

So maybe that is why my nose is bleeding at times.

I don't know about fluid retention with me at this point...

My weight is consistent (when I was retaining before I had weighed more

correspondingly. I do know that I have never had BP 180 over anything

again.....!!

On Tue, 12 Dec 2006, Gosia1122@... wrote:

> tte,

> Ibuprofen can prolong your bleeding time(making it more difficult to clot

> blood.)It also can make you retain more fluid therby raising your blood

> pressure. .

> Margie

>

>

>

[Guest guest]

Wow, I am sorry you are not doing well. I cannot believe how many

people have this disease. Also, the number of woman is very

alarming. According to everything I have read, it is much more

common for males than females.

It is great to hear from you and so many others for support!

Lance Bray

>

> I was 31 and had just had a miscarriage.

- - - - - - - - - - - - -extraneous material clipped by moderator- - - - -

[Guest guest]

Lance my dr said that about women too. he said that reiters has been much

more a disorder of men. in fact it was discovered in the trenches in WW II

he said.

My mother, my sister, and her daughter and me all have it though...

(my birth mom... I'm adopted).

I'm glad we can be here for you Lance!!

Thanks for what you share with us too!

> Wow, I am sorry you are not doing well. I cannot believe how

many > people have this disease. Also, the number of woman is very

> alarming. According to everything I have read, it is much more

> common for males than females.

>

> It is great to hear from you and so many others for support!

>

> Lance Bray

Liz

~~~~~~

" People will forget what you said, people will forget what you did, but

people will never forget how you made them feel. " ~~~~~~~ Maya Angelou

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EMAIL: juliette@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

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[Guest guest]

Hi Lance

You mentioned the number of folks with AS/Reiter's and family of diseases. I

live in a town of 356 people and three folks with AS and one with Reiter's. On

woman who lives two doors from us has AS but doctor's brushed it off as

conventional wisdom said that women did not get AS. HAH.

Statistics have the prevalence of AS as roughly 1 in 800,000 people.

Hate to say this but, WELCOME to the list.

Fr. Dave

[Guest guest]

Apparently with Reiter's/ReA the odds are male:female, 5:1. Here's a link

http://www.aafp.org/afp/20040615/2853.html

Lance my dr said that about women too. he said that reiters has been much

more a disorder of men. in fact it was discovered in the trenches in WW II

he said.