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Re: ReA Symptoms

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Everyone,

My pain is definitely caused by tendonitis. I feel it in the tendons of nearly

every joint and I had it confirmed by an orthopedic surgeon a few years ago.

Perhaps I don't have ReA???

Would anyone like to provide me a possible diagnosis?

: reply to your ReA question on symptoms before (and

anyone else)

I have had tendonitis in my shoulder before but I would describe this as a

different pain from what I remember.

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I would guess there is something other than tendinitis going on unless you just

finished a Pilates Marathon or something . It's strange to have that in every

joint. Reiters does affect the tendons and ligaments though. I pray you don't

have it though...Not fun!

scott <scottt@...> wrote:

Everyone,

My pain is definitely caused by tendonitis. I feel it in the tendons of nearly

every joint and I had it confirmed by an orthopedic surgeon a few years ago.

Perhaps I don't have ReA???

Would anyone like to provide me a possible diagnosis?

: reply to your ReA question on symptoms before (and

anyone else)

I have had tendonitis in my shoulder before but I would describe this as a

different pain from what I remember.

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,

Have you been treated with any antibiotics in the flouroquinolone family in

recent years? Levaquin and Cipro are two well known ones but there are many

others. It is known to cause significant tendon problems. I am trying to

figure out if I have ReA or have had an adverse reaction to Cipro which I took

in January of this year. Symptom of both conditions overlap vastly.

Doug in MD

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Hi

Any of the arthropathies can cause tendonitis, it is particularly

common with PA and ReA. I had bad tennis elbow and deltoid / biceps

tendonitis for 10+ years before a joint finally flared enough to

" warrant " a diagnosis of PA.

On enbrel my joint pain is much better, the joint stiffness around the

areas of tendonitis is much better, but the muscle pain is still

there. My body worker things the tendonitis will ease up once the

joint areas are less swollen and have room to move. Hope he's right...

Cheers -

>

> Everyone,

>

> My pain is definitely caused by tendonitis.

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...I sure hope you don't have it!

Rob

---------------------------------

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with

Messenger with Voice.

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Hey .............I have had tennis elbow and injections were given .

What is PA? Jane

Hi

Any of the arthropathies can cause tendonitis, it is particularly

common with PA and ReA. I had bad tennis elbow and

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Well you asked but this answer is from the other Dave.

PA stands for Psoriatic Arthritis a condition in the family of

Spondyloarthropathies which some of us have. It attacks tendons and other

connective tissue in major organs. It is a realy nasty little disease on its

own let alone in combination with AS, and other members of that family of

diseases.

Fr. Dave

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Hi Jane

PA - Psoriatic Arthritis. A good percentage of rheumatoid arthritis

and ankylosing spondylitis patients can get tendonitis too.

Unfortunately, nothing much works for mine - I had steroid injections

into the tendon sheath, acupuncture, physical therapy and body work

for years. It definitely is worse when my joints are acting up, and

the enbrel + mtx has helped more than anything else I've tried, but

not completely. When it bothers most, I take a Soma ( muscle relaxant

) and a Vicodin an hour before I go to sleep and I'm ok - without the

drugs my shoulders insist on keeping me up...

Sorry to hear you're a member of the tendonitis club - a lot of nice

folks in the club, but lousy club service(g)... -

>

> Hey .............I have had tennis elbow and

> injections were given .

> What is PA? Jane

>

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Dave

As always, you summarize in a few words what takes me many to express.

Very well written! -

>

> Well you asked but this answer is from the other Dave.

>

> PA stands for Psoriatic Arthritis a condition in the family of

Spondyloarthropathies which some of us have. It attacks tendons and

other connective tissue in major organs.

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Thanks

I am one of those who has four of these beauties.

Ankylosing Spondylitis

Rheumatoid Arthritis

Psoriatic Arthritis

Reiter's (Reactive Arthritis)

There are some days where I do not know which disease is hurting the most.

The good news about my pain is that through prayer and a different mix of

medications I am gaining some relief and strength. Yesterday I cut every blade

of grass on this large lot. Something I have not been able to do since 2001.

That is cutting it all in one day. After I finished the back yard and alley way

I was getting ready to put the cords and mower away and I did not feel wiped out

like I normally would. So set the electrical cords up to do the front and side

lawns then did them. Left Hazel and some of my neighbours dumbfounded.

The medication regimen is not for the faint hearted though.

For the pain:

Oxycontin 20 mgms 4 or 5 daily (I am managing on 3 today)

Neurontin 300 mgms 3 or 4 times daily (a bit above the normal)

Voltaren 75 mgms twice daily (Breakfast and Supper)

Prozac 40 mgms once daily (I take it at bedtime now)

Elavil 50 mgms once daily (again taken at bedtime)

For the shakes:

Propranolol 25 mgms three times daily (Neurontin also helps this I am told)

For my heart:

Lanoxin .375 mgms daily

For Benign Prostate problems:

Flomax 0.4 mgms daily

For diabetes:

Metformin two or three times daily (depending on blood sugar level)

Now, if I can get out of bed in the morning I have the day licked.

Fr. Dave

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Dave

So happy to see you in better spirits, feeling better. I can relate to

the meds, I've been on a handfull of pills a day for many years.

ly I dont mind - without the meds I'd be in the same shape as the

rest of the family tree, and historically that hasn't been so fun(g)

Sorry you have so much personal experience - you should be granted an

honorary doctorate in rheumatology!!!

Cheers - and enjoy! -

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Wrote:

ly I dont mind - without the meds I'd be in the same shape as the rest of

the family tree, and historically that hasn't been so fun(g)

Well, I am very happy that I did not follow some in my family tree. I have

gotten back to 1066 and the Battle of Hastings and I know at least one relative

was hung after and possibly one on the other side from my maternal side. I

understand he was a horse thief.

So I have stopped searching the family tree as I am afraid I will dig up

relatives that came to Britain raping and pillaging. Not to mention that Hazel

has Norwegian and ish roots and we have them going back to the 1200's.

Thank goodness we have not had a fight in our 10 years of marriage. It could

equal the intrusion of Vikings into Britain............and I am not up to any

raping and pillaging these days.

Thanks but I think I will stay with my one honourary degree a Doctor of Divinity

and my other Doctorate of Sacred Theology. I will not however use such degrees

after my name.

Face it D.D., S.T.D. looks too much like dumb dave has a sexually transmitted

disease. <GBG>

Fr. Dave

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Hi,

Not sure if you will get this as I was offed from the list after accidently

sending an innappropriate picture to ganny. Accident or not, she was clearly

offended and apology notwithstanding, I was given the boot!

The reason I am writing is that there is a new procedure out there that

attacts the bacteria INSIDE the cells as opposed to attacking the cells

themselves. The procedure has cured some and has helped many others. All the

information is available at marshallprotocol.com Dr. Trevor Marshall and

his wife

also a doc....he is a pharmd and I think she is medical...anyway he was

diagnosed with sarcoidosis and treated himself with Benicar. They have both

done

multiple studies...she has won a Nobel prize and he is on his way. Just

wanted to get this info out there. I am working with my doc now, educating him

on

the marshall protocol and hope to start myself very. I urge you to read all

the info first before deciding to get it out there, but I believe we are on

to something here that will ultimately not only reeducate the medical

community on autoimmune diseases but perhaps cure others as well. There are

two

people on the website thus far with reiters other than myself and one has been

successfully cured. Worth looking into...

Sincerely,

Rena Minor

Reiters,Hla-b27+, RA, AS, Fibro and the list goes on...

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Thank you to everyone who responded to my question. Docs have never put a

name to my connective tissue disease. I have been told lupus, fibromyalgia,

and mixed connective tissue disease. I have Raynaud's Syndrome. My body

sometimes wants to say " enough already " . LOL

I really try to stay up and busy. At 59 I am not ready to die and I think

taking to bed would be the worst thing any of us could do. Having said that

let me say, some days I just have to sleep. I guess we do one day at a

time. Thanks to all of you. Jane

----- Original Message -----

From: " BJ/Dewi " <dewi@...>

> Well you asked but this answer is from the other Dave.

>

> PA stands for Psoriatic Arthritis a condition in the family of

Spondyloarthropathies which some of us have.

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>

> Now, if I can get out of bed in the morning I have the day licked.

>

> Fr. Dave

>

I like your attitude, we all need to celebrate the small stuff. Like

the old saying goes " Good things come in small packages " , like pills!

MK

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>

> My pain is definitely caused by tendonitis. I feel it in the tendons

of nearly every joint and I had it confirmed by an orthopedic surgeon a

few years ago. Perhaps I don't have ReA???

>

> Would anyone like to provide me a possible diagnosis?

>

>

>

I have ReA with tendonitis in all my joints, especially the heels. So,

you might have ReA.

Kay

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