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Hi all

Went in for my appointment with my primary care physcian this morning and after

being questioned and poked I left with prescriptions for half the pharmacy......

Well that is a bit much. He has upped my OxyContin to 20 mgm 4 times per day,

which does work as that is what I have been taking anyway. I am supposed to

continue with the Voltaren and he has added Neurontin 600 mgm three times daily

and Flomax 0.4mgm once daily. The Flomax is supposed to help the process of

urination which I am having problems with lately. Not so much not being able to

hold it but not being able to let it out at times.

In the meantime, we await appointments for an MRI and/or CT Scan and nerve

conductivity tests. So now my pill box looks chocked full.

So now my medications are

OxyContin SR 20 mgm 4 or 5 daily

Neurontin up to 600 mgms 3 times daily

Voltaren 75 mgm twice daily (breakfast and supper)

Propranolol 25 mgms three times daily (for tremours)

Lanoxin 0.375 mgm daily (for heart arithmea)

Flomax 0.4 mgm at bedtime

Prozac 40 mgms at bedtime

Elavil 50 mgm once daily

Zopiclone 7.5 mgm to 15 mgms at bedtime. Trying to cut this one out as it

causes some real nasty side effects as you get older.

I am bringing up the dosage of Neurontin gradually over the next week or so.

Tomorrow at 12:00 AM Mountain Daylight Saving Time I turn the next milestone in

my life. My 65th birthday and by the looks of the medication that will be in

my system by tomorrow noon hour, I will not need to toast with a glass of wine

or any other alcoholic drink, I will be on a trip anyway,

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Wow. Looks like you have not missed too many other prescriptions. I thought I

was taking a lot. I sure hope that you get some help from it and perhaps

eventually be able to go off some of it.

By the way, happy birthday, Dave. You have been a blessing to many and you so

frequently have given great advice. You are now what we in the U.S. call the

official retirement age (although that is creeping up to 67).

Bill

By the way, as an update, I have had my neck fusion surgery May 1. So far it

is looking good. I have to wear this neck collar for 6 weeks and it makes it

hard to type since I need to look at the keyboard once and a while to find some

of the keys. The surgery went well. They fused c3 to c4 and c4 to c5. The

first week was horrible but now the pain is leaving and I am able to swallow

more than liquids. So far soft foods but I am fighting my way up the food chain

again.

BJ/Dewi <dewi@...> wrote:

Hi all

Went in for my appointment with my primary care physcian this morning and after

being questioned and poked I left with prescriptions for half the pharmacy......

---------------------------------

Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get

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  • 2 years later...
Guest guest

HEY JENN!

SO SORRY TO HEAR YOU ARE FEELING SO CRAPPY!

WITH REGARDS TO THE MEDS...I DID NOT HAVE ANY GOOD RESULTS FROM SOMA...I

HAVE BETTER RESULTS FROM BACLOFEN. THIS IS NOT TO SAY THAT YOU WON'T LOVE

SOMA....SO...MAYBE TRY IT FOR ABOUT 7-14 DAYS AND SEE IF IT HELPS YOU.

THE SPASMS I GET IN MY ANKLE HAVE BEEN SO VIOLENT AT TIMES THAT THEY HAVE

ACTUALLY DISLOCATED MY ANKLE THREE TIMES SO FAR. IT JUST SNAPS IT BACK SO

VIOLENTLY IT POPS. BACLOFEN IN THE PUMP REALLY HELPED IT..BUT I NO LONGER HAVE

MY PUMP, SO I NEED HIGH DOSAGES OF ORAL BACLOFEN. FOR PAIN I AM TAKING 80

MGS OF METHADONE EVERY 6 HOURS AND 100 MGS OF MSCONTIN EVERY 12. THIS IS

CALMING SOME OF THE PAIN...BUT AS YOU KNOW NOTHING STOPS THE BURN.

AS FAR AS YOUR MEDS WITH ANY INTERACTIONS OR QUESTIONS....S/W YOUR

PHARMACIST...HE OR SHE MAY REALLY HELP YOU. I HAVE A SMALL MOM AND POPS ONE

THAT I

USE.....THEY ARE GREAT. THE BIGGER ONES ARE GREAT TOO..SINCE ALL THE

INFORMATION IS PRINTED RIGHT ON THE SHEET THAT YOU GET WITH THE MEDS...IF

NOT..YOU CAN

ALWAYS CALL THEM...THEY SHOULD BE A GREAT HELP TO YOU WITH MED QUESTIONS.

ALSO, MOST PAIN DOCS HAVE PA'S OR NURSES WHO HANDLE ALOT OF MED

QUESTIONS...YOU CAN REALLY RELY ON THEM ALOT TO BE A " GO-BETWEEN YOU AND THE

DOC...SO

YOU DON'T HAVE TO WAIT A LONG TIME FOR AN ANSWER TO A NON EMERGENT QUESTION.

I HOPE THIS HELPS A WEE BIT, SWEETIE!

HANG IN ....YOU CAN DO IT!!!

I AM HERE IF YOU NEED A SHOULDER..LOVE YA!

GENTLE HUGS TO YOU AND ALL,

KATHY G.

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

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Guest guest

Did you not like your Pain Pump? Or is there other reasons why you

had it thaken out? I am intrested in how people like or dis like the

Pump. I thought I was high on my dose of Meds, but you are alot higer

than me, I take 75mg of MS-cotin 3 times dayly and have 20mg twice of

Oxy for Break-thru

>

> HEY JENN!

>

> SO SORRY TO HEAR YOU ARE FEELING SO CRAPPY!

>

> WITH REGARDS TO THE MEDS...I DID NOT HAVE ANY GOOD RESULTS FROM

SOMA...I

> HAVE BETTER RESULTS FROM BACLOFEN. THIS IS NOT TO SAY THAT YOU WON'T

LOVE

> SOMA....SO...MAYBE TRY IT FOR ABOUT 7-14 DAYS AND SEE IF IT HELPS YOU.

>

> THE SPASMS I GET IN MY ANKLE HAVE BEEN SO VIOLENT AT TIMES THAT THEY

HAVE

> ACTUALLY DISLOCATED MY ANKLE THREE TIMES SO FAR. IT JUST SNAPS IT BACK

SO

> VIOLENTLY IT POPS. BACLOFEN IN THE PUMP REALLY HELPED IT..BUT I NO

LONGER HAVE

> MY PUMP, SO I NEED HIGH DOSAGES OF ORAL BACLOFEN. FOR PAIN I AM TAKING

80

> MGS OF METHADONE EVERY 6 HOURS AND 100 MGS OF MSCONTIN EVERY 12. THIS

IS

> CALMING SOME OF THE PAIN...BUT AS YOU KNOW NOTHING STOPS THE BURN.

>

> AS FAR AS YOUR MEDS WITH ANY INTERACTIONS OR QUESTIONS....S/W YOUR

> PHARMACIST...HE OR SHE MAY REALLY HELP YOU. I HAVE A SMALL MOM AND

POPS ONE THAT I

> USE.....THEY ARE GREAT. THE BIGGER ONES ARE GREAT TOO..SINCE ALL THE

> INFORMATION IS PRINTED RIGHT ON THE SHEET THAT YOU GET WITH THE

MEDS...IF NOT..YOU CAN

> ALWAYS CALL THEM...THEY SHOULD BE A GREAT HELP TO YOU WITH MED

QUESTIONS.

>

> ALSO, MOST PAIN DOCS HAVE PA'S OR NURSES WHO HANDLE ALOT OF MED

> QUESTIONS...YOU CAN REALLY RELY ON THEM ALOT TO BE A " GO-BETWEEN YOU

AND THE DOC...SO

> YOU DON'T HAVE TO WAIT A LONG TIME FOR AN ANSWER TO A NON EMERGENT

QUESTION.

>

> I HOPE THIS HELPS A WEE BIT, SWEETIE!

>

> HANG IN ....YOU CAN DO IT!!!

>

> I AM HERE IF YOU NEED A SHOULDER..LOVE YA!

>

> GENTLE HUGS TO YOU AND ALL,

>

> KATHY G.

>

>

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

>

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut0005000\

0000017 )

>

>

>

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Guest guest

I take 20mg Oxy every 1 1/2 hours and then the Methadone 20 mg 5 times a

day. I take the Soma 350mg 3 times a day, Lyrica 150 mg 2 times a day, Elavil

200 mg 1 time a day and an antidepressant (can't remember the name) and I

still feel pain. It is hard to believe looking at this list on paper that I am

coherent at all. The Soma isn't making me sleep like the doctor suggested it

would and I hoped it would. I would like to just pretty much sleep and eat

until the trial. I think I am at the max dose on these meds...has anyone

taken more than that?

In a message dated 8/2/2008 1:00:57 P.M. Eastern Daylight Time,

cobranine@... writes:

Did you not like your Pain Pump? Or is there other reasons why you

had it thaken out? I am intrested in how people like or dis like the

Pump. I thought I was high on my dose of Meds, but you are alot higer

than me, I take 75mg of MS-cotin 3 times dayly and have 20mg twice of

Oxy for Break-thru

>

> HEY JENN!

>

> SO SORRY TO HEAR YOU ARE FEELING SO CRAPPY!

>

> WITH REGARDS TO THE MEDS...I DID NOT HAVE ANY GOOD RESULTS FROM

SOMA...I

> HAVE BETTER RESULTS FROM BACLOFEN. THIS IS NOT TO SAY THAT YOU WON'T

LOVE

> SOMA....SO.. SOMA....SO..<WBR>.MAYBE TRY IT FOR ABOUT 7-14 DAYS AND SE

>

> THE SPASMS I GET IN MY ANKLE HAVE BEEN SO VIOLENT AT TIMES THAT THEY

HAVE

> ACTUALLY DISLOCATED MY ANKLE THREE TIMES SO FAR. IT JUST SNAPS IT BACK

SO

> VIOLENTLY IT POPS. BACLOFEN IN THE PUMP REALLY HELPED IT..BUT I NO

LONGER HAVE

> MY PUMP, SO I NEED HIGH DOSAGES OF ORAL BACLOFEN. FOR PAIN I AM TAKING

80

> MGS OF METHADONE EVERY 6 HOURS AND 100 MGS OF MSCONTIN EVERY 12. THIS

IS

> CALMING SOME OF THE PAIN...BUT AS YOU KNOW NOTHING STOPS THE BURN.

>

> AS FAR AS YOUR MEDS WITH ANY INTERACTIONS OR QUESTIONS... AS F

> PHARMACIST.. PHARMACIST..<WBR>.HE OR SHE MAY REALLY HELP YOU. I HA

POPS ONE THAT I

> USE.....THEY ARE GREAT. THE BIGGER ONES ARE GREAT TOO..SINCE ALL THE

> INFORMATION IS PRINTED RIGHT ON THE SHEET THAT YOU GET WITH THE

MEDS...IF NOT..YOU CAN

> ALWAYS CALL THEM...THEY SHOULD BE A GREAT HELP TO YOU WITH MED

QUESTIONS.

>

> ALSO, MOST PAIN DOCS HAVE PA'S OR NURSES WHO HANDLE ALOT OF MED

> QUESTIONS... QUESTIONS...<WBR>YOU CAN REALLY RELY ON THEM ALOT TO BE

AND THE DOC...SO

> YOU DON'T HAVE TO WAIT A LONG TIME FOR AN ANSWER TO A NON EMERGENT

QUESTION.

>

> I HOPE THIS HELPS A WEE BIT, SWEETIE!

>

> HANG IN ....YOU CAN DO IT!!!

>

> I AM HERE IF YOU NEED A SHOULDER..LOVE YA!

>

> GENTLE HUGS TO YOU AND ALL,

>

> KATHY G.

>

>

>

> ************ ************<WBR>**Looking for a car that's sporty, fu

budget?

> Read reviews on AOL Autos.

>

(_http://autos.http://autos.http://autos.http://autos.http://autos.<WBhtt

0000017_

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017)

)

>

>

> [Non-text portions of this message have been removed]

>

[Non-text portions of this message have been removed]

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

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Guest guest

HEY JENN!

I LOVED THE PUMP....BUT IT DIDN'T LOVE ME...IT MALFUNCTIONED TWICE...BIG

TIME ON ME...NOW PLEASE DON'T WORRY...ALOT OF FOLKS HAVE GREAT RESULTS WITH

THEIR PUMPS. I DON'T WANT YOU TO BE AFRAID OF THE BAD RESULTS THAT I HAD.

THE FIRST ONE WAS THE PUMP DID NOT ALARM AND IT RAN DRY WITH MORPHINE,

BACLOFEN AND BUBIVICAINE. I WENT THROUGH AN AWFUL WITHDRAWL. I WAS IN THE

HOSP.

FOR A FEW DAYS IT WAS SO SEVERE.

THE SECOND TIME THE MEDS NEVER DISPENCED....NOT ONE MED RAN THROUGH THE

PUMP...AND AGAIN WENT THROUGH WITHDRAWL..NOT AS BAD..BUT STILL VERY

FRUSTRATING.

I FEEL THAT MEDTRONIC HANDLED IT POORLY AS THEY TOLD ME THAT THIS HAS NEVER

HAPPENDED TO ANYONE IN THE PAST TO THEIR KNOWLEDGE..AND THEN I SPOKE WITH SOME

FOLKS WHO HAD THE SAME PROBLEM....NO ALARM AND DRY...WITHDRAWL AND THEY TOO

WERE TOLD THE SAME THING.

I NEVER ONCE WAS LATE FOR A REFILL OR AN APPT WITH THE DR.

NOW...WITH THAT SAID..PLEASE DON'T LET MY EXPERIENCE SWAY YOUR

DECISION...ALOT OF OTHER FOLKS I SPOKE WITH LOVE THEIR PUMPS AND WOULD NEVER

GIVE THEM UP

I WILL SAY THAT WHEN MINE WORKED WELL,,,,IT CONTROLLED THE SPASMS SO WELL!!!

IF I HAD SOME, ALL I HAD TO DO WAS GO TO THE DR...AND BOOM..TURN IT

UP...AND THEY WERE GONE

I KNOW ALOT TO CHEW ON, SWEETIE.

HAVE A GREAT WEEKEND.

GENTLE HUGS TO ALL,

KATHY G.

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

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Guest guest

I HAVE BEEN TAKING MEDS FOR ABOUT 10 YEARS NOW....AND YOU JUST HAVE TO PLAY

AROUND WITH THE DOSAGE WITH THE DR UNTIL YOU GET SOME RELIEF.

FOR BREAKTHROUGH PAIN I TAKE DILAUDID 4 MGS EVERY 4-6 HOURS AS NEEDED. THIS

HELPS ME MORE THAN THE OXY IR...JUST A THOUGHT FOR YOU?

I HOPE YOU ARE DOING OKAY TONIGHT, HON.

HANG IN!

KATHY G.

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

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Guest guest

I thought the reason of the Pump was to get rid of having to take

more Meds oral, that the all you needed was the Meds from the Pump ? So

when you get your Pump refilled you have to pay for Dr. visit and the

Meds they put in the Pump plus the cost of your Break-thru Meds! This

seems like alot of hasle and the cost is more than just taking your Meds

oral. It sounds like to much for what you get out of it. Can anyone

tell me thr Pro's about the Pump ?

>

> I HAVE BEEN TAKING MEDS FOR ABOUT 10 YEARS NOW....AND YOU JUST HAVE TO

PLAY

> AROUND WITH THE DOSAGE WITH THE DR UNTIL YOU GET SOME RELIEF.

>

> FOR BREAKTHROUGH PAIN I TAKE DILAUDID 4 MGS EVERY 4-6 HOURS AS NEEDED.

THIS

> HELPS ME MORE THAN THE OXY IR...JUST A THOUGHT FOR YOU?

>

> I HOPE YOU ARE DOING OKAY TONIGHT, HON.

>

> HANG IN!

>

> KATHY G.

>

>

>

> **************Looking for a car that's sporty, fun and fits in your

budget?

> Read reviews on AOL Autos.

>

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut0005000\

0000017 )

>

>

>

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Guest guest

I don't know that Dilaudid would help me or not. When I get it IV, it

doesn't do anything for me but I also know that at least my body will respond

differently to a medication if it is IV or oral

In a message dated 8/3/2008 12:59:20 A.M. Eastern Daylight Time,

KGAVI@... writes:

I HAVE BEEN TAKING MEDS FOR ABOUT 10 YEARS NOW....AND YOU JUST HAVE TO PLAY

AROUND WITH THE DOSAGE WITH THE DR UNTIL YOU GET SOME RELIEF.

FOR BREAKTHROUGH PAIN I TAKE DILAUDID 4 MGS EVERY 4-6 HOURS AS NEEDED. THIS

HELPS ME MORE THAN THE OXY IR...JUST A THOUGHT FOR YOU?

I HOPE YOU ARE DOING OKAY TONIGHT, HON.

HANG IN!

KATHY G.

************************<WBR>**Looking for a car that's sporty, fun and fits

in

Read reviews on AOL Autos.

(_http://autos.http://autos.http://autos.http://autos.http://autos.<WBhttp://a

u_

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017)

)

[Non-text portions of this message have been removed]

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

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Guest guest

EVERYONE IS DIFFERENT, SWEETIE...YOU KNOW....EVERYONE'S BODY REPSONDS

DIFFERENTLY TO ALL KINDS AND TYPES OF MEDS.

I DO KINOW THAT DILAUDID IS A MAJOR PAIN MED AND DOES HELP ME WITH THE

BREAKTRHOUGH PAIN. I USED TO TAKE OXYCONTIN...BUT COULDN'T TOLERATE IT ANY

LONGER

AFTER ABOUT 2 YEARS...SO I WAS SWITCHED TO METHADONE...AS THEY ARE USING

THAT MORE FREQUENTLY NOW FOR CHRONIC PAIN THAN IN THE PAST WHEN IT WAS MOSTLY

USED FOR ADDICTS. OF COURSE PEOPLE AT THE PHARMACY (PATRONS) WHO MAY OVERHEAR

A CONVERSATION BETWEEN THE RX AND MYSELF SOME OTHER FOLKS LOOK AT ME

LIKE..DRUGGIE! IT CRACKS ME UP NOW..IT USED TO GET ME MAD, BUT NOW IS JUST SEE

THEIR

IGNORANCE AND FIND IT COMICAL.

HAVE YOU EVER TRIED THE MED CALLED LYRICAL? MY PAIN DR TREID ME ON IT AND

IT DID NOTHING FOR MY RSD....BUT THERE ARE QUITE A FEW RSD PATIENTS WHO HAVE

BEEN GREATLY HELPED WITH IT IN HIS PRACTICE ALONE....MAYBE THAT MIGHT HELP YOU

OR ANYONE ELSE... :)

ANOTHER THOUGHT ABOUT THE PUMP I HAD WHEN I SIGNED OFF EARLIER IS THAT WITH

THE PILLS...YOU HAVE TO KEEP ON TAKING THEM..AND GOD FORBID IF YOU MISS A

DOSE...I THINK WE ALL KNOW HOW WE FEEL WHEN THAT HAPPENS...WITH THE PUMP IS A

CONSTANT FLOW OF MEDS...WHICH IS JUST ANOTHER PLUS.

IF I COULD GET ANOTHER ONE....I MIGHT THINK OF DOING IT...

I AM GOING TO LOOK INTO ANS SINCE I HAD SUCH A BAD EXPERIENCE WITH

MEDTRONIC. BUT LIKE I SAID BEFORE, JENN, PLEASE DON'T LET THAT DETER YOU FROM

HAVING

IT DONE THERE ARE SO MANY FOLKS WITH GREAT EXPERIENCES WITH IT.

I HOPE SOME OF THIS HELPS YOU OUT, JENN!

HOW ARE THINGS ....EVERYTHING OK?

LOTS OF GENTLE HUGS TO ALL,

KATHY G.

**************Looking for a car that's sporty, fun and fits in your budget?

Read reviews on AOL Autos.

(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017

)

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Guest guest

You asked what the pros are to the pump. I have had a pump since 1992. I have

had it replaced 3 times, the last time being this past Oct. I now have to have

my pump refilled approx. every 4 months. I am receiving Fentanyl and Marcaine

through my pump. I am on a much lower dosage of meds than I would be if I were

taking them orally. Also, the pain relief is constant, unlike taking an oral med

which relieves your pain following a oral dose which then builds again as that

pill wears off only to be followed again by another pill.

I do have Vicodin to take for break-thru pain. I average approx. 1-2 pills per

month. Most episodes of discomfort can be controlled with the use of Aleve or

Tylenol. There are times when I have to take the Vicodin more frequently but in

all these years I have never found it necessary to take more than 25 in a month

and that has been extremely rare.

For the most part I would say that my pain levels average between a 1 and a 3

and that is 24/7. So, when you ask if it is worth the price, I would say a

definite YES.

Dorothy

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Guest guest

Thank you Dorothy for that infromation, I am so tired at looking at

the clock and seeing if it's time for another Dose and having that up

and down with your Pain level. Plus I am getting realy up there on my

dose of Pain Meds which I don't like. Thank You

>

> You asked what the pros are to the pump. I have had a pump since 1992.

I have had it replaced 3 times, the last time being this past Oct. I now

have to have my pump refilled approx. every 4 months. I am receiving

Fentanyl and Marcaine through my pump. I am on a much lower dosage of

meds than I would be if I were taking them orally. Also, the pain relief

is constant, unlike taking an oral med which relieves your pain

following a oral dose which then builds again as that pill wears off

only to be followed again by another pill.

>

> I do have Vicodin to take for break-thru pain. I average approx. 1-2

pills per month. Most episodes of discomfort can be controlled with the

use of Aleve or Tylenol. There are times when I have to take the Vicodin

more frequently but in all these years I have never found it necessary

to take more than 25 in a month and that has been extremely rare.

>

> For the most part I would say that my pain levels average between a 1

and a 3 and that is 24/7. So, when you ask if it is worth the price, I

would say a definite YES.

>

> Dorothy

>

>

>

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