Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 In a message dated 5/31/00 10:05:11 PM Central Daylight Time, Midvale@... writes: << Thank you pharmacology!!! >> Sounds like a delightful evening, Sara - Congratulations! Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Sara, Sounds like a dream come true! How wonderful for all of you. Now everyone will remember how well behaved Elie is, and what wonderful parents you are. As it should be. Prayers of thanksgiving and praise going out. S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Good to hear about the good things that are happening with all our kids. Greatjob Elie!! & Garry, parents of (9 ds), (8 ds/g-tube), JJ (6 ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted. ---------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Thanks - the great part is that 3 high school boys - one who is leaving for college in 2 weeks and the others in 10th and 11th grade now know that a kid with alphabet labels can also learn - they remember Elie when he ran through the LR repeatedly without clothes on - even on a date nioght when we had 6 or 8 girls here!!! Sara >>> stolzfamily@... - 05/31/0 11:07 PM >>> Sara, Sounds like a dream come true! How wonderful for all of you. Now everyone will remember how well behaved Elie is, and what wonderful parents you are. As it should be. Prayers of thanksgiving and praise going out. S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. ------------------------------------------------------------------------ Accurate impartial advice on everything from laptops to table saws. 1/4634/10/_/691668/_/959829034/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 In a message dated 5/31/00 11:04:55 PM Eastern Daylight Time, Midvale@... writes: << When she asked if he wanted chocolate syrup, he answered Oh, yes, of course, thank you. He thanked her upon delivery, and again waited for us all to finish! He never left his chair, and the 2 babies he brought for support laid on the floor under his chair throughout dinner!! >> WOW Sara!!!!! This is AWESOME!!!!!!! And I'm assuming those *babies* were dolls, right?!??!!! LOLOL Great news! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Yup - his filthy little white bear whose head comes off so many times we had to do a tissue transplant to attach the head again and an even more disreputable looking sock doll in a frightful pink ski suit!! If I had to look at them at the table- for sure I would have lost my appetite. Sara >>> duffey48@... - 06/01/0 2:21 PM >>> In a message dated 5/31/00 11:04:55 PM Eastern Daylight Time, Midvale@... writes: << When she asked if he wanted chocolate syrup, he answered Oh, yes, of course, thank you. He thanked her upon delivery, and again waited for us all to finish! He never left his chair, and the 2 babies he brought for support laid on the floor under his chair throughout dinner!! >> WOW Sara!!!!! This is AWESOME!!!!!!! And I'm assuming those *babies* were dolls, right?!??!!! LOLOL Great news! Donna ------------------------------------------------------------------------ fnCentral.com: it's where you are! Be deskbound no more. No apps. Use the web's first fully integrated personal finance manager from any PC, Palm, phone, internet appliance! OPEN A FREE ACCOUNT NOW. 1/4647/10/_/691668/_/959883718/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 I'm jumping on this title since I'm just finding out what were " s good days in school, in the past. To all of you who have had sleep apnea studies done with your kids, has any results come from this. I'm told has mild sleep apnea but his problem in this new school is he sleeps most of the day. That seems to be his only problem. After going through boo coos of testing and specialists since January, come to find out he has Narcolepsy. It seems that he has been sleeping in school for years and the only reports home about it have been that it was a good day. Now I know why. They didn't have to deal with him. I'm so sick of the lack of communication. Now that they're finally communicating, I'm able to find out wthat there is a problem I never knew about and act on it to find out what's wrong. Narcolepsy of all things. I always wondered why he would fall off a bicycle built for two, that only I would peddle, because he fell asleep. My husband would always ride behind us to make sure he stayed awake. Does this call for another diagnosis or symbol? DS/ASD/Narcoleptic? (mom to 13 DS/ASD/?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Journals are a problem in our school district. No one likes to admit to anything and being an instructional assistant in the same district, I am told you tell the parent nothing. This is tough to deal with on both ends of the political game. I'm trying to prove now why communication is so essential for our kids. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 that would be a hard one to note i would think,i know my son nathan 8yrs w/ds pdd is practically an insomniac, just the opposite and it drives us batty some nights, at least he doesnt wander around the house or out of the house anymore, has started to take a liking to cartoons and will watch alllll nite. shawna(mom) nathan 8yrs w/ds pdd adn nicholas 7yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 yes, we've have done the journal notebook since nathan started school at 3yrs now 8yrs w/ds pdd, and it is very helpful communication tool, our son is never aloud to sleep at school, with his horrible habits of insomnia, i would never let that start, and the school is in agreement here too, they let me know any little thing even if some bad virus or something is going around so that we may take action. shawna (mom) nathan 8yr w/ds pdd and nicholas 7yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 how awful, i hate to think that our school would ever feel this way they are very open and im a very big part of nathans education, i get very pushy with them and dont take any crap, and they are very cooperative very little disputes ever, if i bring up an issue its taken care of immediately or they find a way to help with the need or issue im targeting. but we all get along 99% of the time id have to say. shawna mom to nathan 8yrs w/ds pdd and nicholas 7yrs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 mbrayley your post does bring back memories. yep happened about three years ago. The path to a great education in the eyes of some is " like electricity " you take the path of least resistance. Yes I guess its easy to teach a sleeping child. we send a daily journal to our childs teacher to learn of daily happening etc. some friends have had to go as for as stating on iep that child is not allowed to sleep at school. this we here really works. I state the above because many kids without your childs condition are allowed to sleep at their schools. The daily journal used by my wife and our childs teacher is working great.We met no resistence when we requested this communication tool. I hope your childs sleep disorder is treatable. good luck to you!! kkesk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 Elie was sleeping an average of 6 hours a WEEK when we sought help because he woke us constantly for company. That was when the dr. started him on Benadryl so that we could get some sleep!! Sara >>> GREENs4Pac@... - 06/02/0 1:11 AM >>> that would be a hard one to note i would think,i know my son nathan 8yrs w/ds pdd is practically an insomniac, just the opposite and it drives us batty some nights, at least he doesnt wander around the house or out of the house anymore, has started to take a liking to cartoons and will watch alllll nite. shawna(mom) nathan 8yrs w/ds pdd adn nicholas 7yrs. ------------------------------------------------------------------------ Special Offer-Earn 300 Points from MyPoints.com for trying @Backup Get automatic protection and access to your important computer files. Install today: 1/4874/10/_/691668/_/959922685/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 We had a good day (surprise! surprise!) on Monday -- with a few moments of not so good, but mostly good. We went to an amusement park. I was sure Ian would not want to ride any rides, but he loved them. There was one ride I went on with him several times, and he kept shouting " I'm flying! " gleefully. It was an amazing experience for me. CK, Mom to Ian (2/89), (9/90), and Rose (6/94) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 a, I'm finding this new school has alot more concern then this former school. I'm being told everything, even the good things which is somewhat refreshing. They draw the line on the aide communicating, who is with him all of the time, and I would sure like to hear about social situations and how he is socializing. Their reply to that was that they would have type a copied sentence on the computer for me if they can get him to comply or stay awake. (mom to 13 DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2000 Report Share Posted June 2, 2000 ive gave nathan bendryl everyonce and a great while but he is sick often, immune defficency problems with his immunoglobins, but we try not to use any meds if possible, they can interfere with immunity. thats one reason we went to biobehavioral training with nathan when he was around 3yrs , they dont use meds, dont get me wrong we have tried many meds to help with the PDD but mostly have had bad side effects from, only ritalin has worked during the day for us and keep it low to little and just prn during the summer months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 we have an amusement park we go to every year here in iowa and nathan loves it more than his little brother, must be that feeling of weghtless ness or dizziness lol, shawna mom to nathan 8yrs w/ds pdd and nicholas 7yrs wife to geoff. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 i dont understand, the associate with him all day isnt writing in his daily notebook, thats weird, everyone writes in nathans notebook and i have them sign their name at the end so im sure who wrote how he did for this person and the activity required. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2000 Report Share Posted June 8, 2000 probably has Sensory issues. My daughter keeps telling me to submit year long pass costs for an amusement park as an Occupational Therapy expense on our income tax. Elie goes all charm when he gets to go on ferocious roller coasters, whip rides, occillatting(sp) rides, etc/ Sara >>> GREENs4Pac@... - 06/08/0 5:08 PM >>> we have an amusement park we go to every year here in iowa and nathan loves it more than his little brother, must be that feeling of weghtless ness or dizziness lol, shawna mom to nathan 8yrs w/ds pdd and nicholas 7yrs wife to geoff. ------------------------------------------------------------------------ Remember four years of good friends, bad clothes, explosive chemistry experiments. 1/4051/10/_/691668/_/960498513/ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Dave, I sure hope you have some really good days to follow the crappy ones you now enduring. ~~~Faye~~~ AS and fusing Quote Link to comment Share on other sites More sharing options...
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