Info needed

[Guest guest]

hi, could someone please let me know the telephone number of SUN RAY

products.

thank you,

mayra

[Guest guest]

Nola wrote:

<<<I'm a 32 years old, and haven't felt well for about a year now. I

have been to docs and have poked and proded. They can't figure out what

is wrong with me. I had one Doc say he was leaning toward CFS. What I

would like to know is the symtoms and how they finally diagnois it.

The I feel I sometimes wonder if I'm going to make it from day to day.

So any info you all can give is welcome. Thank You

Nola

The list of symptoms for CFS (also known as cfids ((chronicfatigue

and immune dysfunction syndrome)) and in Europe as ME ((Myalgic

Encephomyelopathy)) is immpossibly long and presents in each of us

differently. Some people think there is a distinct disease, while

others think it is a syndrome of multi-system dysfunction caused by many

different factors and a triggering event or infection. If I tried to

list everything here it would be inadequate, but I'll refer you to some

good sources of info that will give you a feel for what it's all about.

When I read a good book on CFIDS, I said " that's me! " my search for a

diagnosis was over. However, it also made me a little complacent and I

didn't look further into related conditions which might warrant

attention. Lyme disease is pretty indistinguishable from CFIDS, and the

only significant difference may be the pathogen that caused/continues to

cause the syndrome to happen.

You'll find that many pathogens are said to be involved, and for each

one there is a champion who says (or has said in the past) that it's the

cause of it all. But Undoubtedly, many of these are " opportunistic "

infections taking advantage of our weakened state to disorder our bodies

to create a suitable habitat for a chronic infection.

This brings us to the concept that, in a way, all disease organisms

are opportunistic. At least it could be argued so. The Question is why

do some of us end up with chronic disease while others stay healthy?

There are also many who will say that a certain aspect of the disease

like orthostatic intolerance, (inability to stand up for very long--

blood pressure drops and pulse sometimes goes up and you just feel

worse) or hypothyroidism are actually the cause of the disease. It's

almost invariably a specialist in the particular field being discussed

that touts these ideas.

So anyhow, Check out About.coms site for a good introduction to

CFIDS, with lots of links to other sites. I would refer you to Dr.

Burroscanos site to read up on lyme disease, but his site is closed

while he is being tried for medical misconduct because he's treating

chronic Lyme patients, which according to some idiot doctors and the CDC

(Centers for disease control-who seem to be mostly idiots too) don't

exist. Yes Chronic diseases get very political, and this isn't the

place to discuss it. I'm not sure where else you should go for lyme

info just now, but I'd just say check out a variety of sources.

I like the book Hope and Help for Chronic Fatigue syndrome. Some of

the info will be out of date, and new info missing of course, but the

main usefulness to you will be the patient symptom descriptions and

feelings. You might find a used copy at www.Half.com or

www.ABEbooks.com I haven't been very immpressed with the Lyme books

I've read.

Other diseases to rule out are Lupus, MS, Hemocromatosis, etc ..( I

can't remember them all now you'll find a list somewhere.

Possible the most important thing to know, is that you have to not

rely solely on your doctor. even people who go the best doctors ( a

rare few I'll tell you) will do better if they are involved and

knowledgeable about their illness. Relying completely on your doctor is

a sure set up for a let down. It's a lot to learn and often frustrating

(especially if you have brain fog), but just keep plugging away at it

and it will start to make sense.

You may want to list your symptoms here for others to comment on.

There are many very knowledgeable people on this list who might suggest

that you get certain tests or check into specific treatments. Don't

leave anything out beause you think it's inconsequential or because your

doctor poo pooed it. If you had it before, list it as such.

Best of luck to you, and stay on this list!! It's the best game in

town.

E.

[Guest guest]

Dear Nola,

The " links " page on my website, right at the top, has links to several good

diagnostic tools (lists of symptoms, FAQ sheets, Dr. Cheney's interactive

symptom test, etc.) - you might want to check that out. The main page is

www.angelfire.com/ri/strickenbk - go there and click on the " links " page (I

think that URL is www.angelfire.com/ri/strickenbk/links.html but I'm not

completely sure).

It is very important to find a competent doctor to rule out other conditions.

On the links page there is also info. about finding a doctor - Co-cure's

Good Doctors List (the link is there) is a good way to start.

Good luck -

Peggy Munson

Editor, Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome

www.angelfire.com/ri/strickenbk

<<Message: 7

Date: Sun, 31 Dec 2000 16:46:19 -0000

From: " nola payton " <nolapdoe@...>

Subject: info needed

Hello

I'm a 32 years old, and haven't felt well for about a year now. I

have been to docs and have poked and proded. They can't figure out

what is wrong with me. I had one Doc say he was leaning toward CFS.

What I would like to know is the symtoms and how they finally

diagnois it.

The I feel I sometimes wonder if I'm going to make it from day to

day. So any info you all can give is welcome.

Thank You

Nola>>

[Guest guest]

Hi , I´m in Mexico and my husband's been treated by two wonderful

rheumys. My husband was one of the first patients treated with Remicade in

Mexico, a few years ago. I know several people who have been to the states

seeking for second opinions, only to find the same treatment they where

given here. A close friend of mine goes to the Mayo clinic, she gets more

input from me than from her doctor. She started Remicade a couple years ago,

having heard of it from me. If you're interested I can give you their names

and addresses.

I hope this helps.

Sincerely

Ana

[Guest guest]

Hi all

I have a friend in Mount Airy, North Carolina who has just been put on Byetta, a

Type 2 Diabetic drug that is injectable but is not insulin. I know there are

some on this list that also have Diabetes both Types 1 and 2. If so, what can

one expect in the actions good or bad being on it.

Hope you all had a blessed Christmas and are prepared for New Years Day. I know

more than a few Albertans who are not looking forward to January 1st. Midnight

New Years Eve will ring in a strict smoking law in Alberta. While not as

restrictive as some cities, it is much stricter than many wanted. Smoking in a

public area accessable to folks under the age of 18 is taboo now. One wonders

just how the courts will rule on what constitutes a public area, is that just

buildings or is it also public parks, roads, sidewalks, etc.,

Even though I am now a non-smoker, I think some of the new Provincial and

Municipal laws on smoking are going too far.

Blessings to all

+Dave

[Guest guest]

Yeah, I got one a couple weeks ago and I LOVE it! The one my dad got

me was a cheaper Polar, but it's great. The wrist watch functions as

a regular watch, stopwatch, and/or heart rate monitor. You put a

strap around your chest, just under your bra--and honestly, I don't

even know it's there. I've done step aerobics, kickboxing, WATP,

cycling, etc, with it on and I have never even noticed that it's on.

Then you hit the " start " button on the wrist watch, and it starts

monitoring your heartrate. You'll have to get your target zone set

into the watch (you can find that online pretty easily), and it's easy

to set, and then every time you exercise you can make sure you're in

'the zone' to get the most benefits.

I like the ones with the strap because I don't have to stop what I'm

doing to take my pulse. The strapless monitors you have to stop what

you're doing and put your fingers on the watch until it registers your

pulse. Some people love 'em, but I don't want to stop in the middle

of a workout--some of the stuff I do is pretty difficult choreography

and it'd take me a minute to get back into it.

So there's my two cents

-Bonnie

> I have a question about the polar pulse watches. I think it was

Bonnie that got one and several others had mentioned it. i would like

to know what you all thought of them. Are they any good? Are they easy

to use? What do you dislike about them? Was just trying to info in

general on them. I have thought of getting one but didnt know much

about them.

>

[Guest guest]

> Yeah, I got one a couple weeks ago and I LOVE it! The one my dad got

> me was a cheaper Polar, but it's great. The wrist watch functions as

> a regular watch, stopwatch, and/or heart rate monitor. You put a

> strap around your chest, just under your bra--and honestly, I don't

> even know it's there.

I am assuming then that the strap fits decently on us bigger gals then? Does

the time portion of the watch work like a regular watch without the strap

on?

I've done step aerobics, kickboxing, WATP,

> cycling, etc, with it on and I have never even noticed that it's on.

> Then you hit the " start " button on the wrist watch, and it starts

> monitoring your heartrate. You'll have to get your target zone set

> into the watch (you can find that online pretty easily), and it's easy

> to set, and then every time you exercise you can make sure you're in

> 'the zone' to get the most benefits.

yeah I'm suppose to be between 109 and something(I forget but I have it

wrote down) I usually get around 117.

>

> I like the ones with the strap because I don't have to stop what I'm

> doing to take my pulse. The strapless monitors you have to stop what

> you're doing and put your fingers on the watch until it registers your

> pulse. Some people love 'em, but I don't want to stop in the middle

> of a workout--some of the stuff I do is pretty difficult choreography

> and it'd take me a minute to get back into it.

I'm so glad you mentioned that because I would have just assumed the

strapless ones was better. So now I'll know to make sure it has a strap.

> So there's my two cents

Thanks so much.

[Guest guest]

> I am assuming then that the strap fits decently on us bigger gals

then? Does

> the time portion of the watch work like a regular watch without the

strap

> on?

Yeah, the strap that is packaged with it fits up to 48 " around and

it's very comfy, stretchy elastic. And the watch works exactly like

a regular watch without the strap.

> yeah I'm suppose to be between 109 and something(I forget but I

have it

> wrote down) I usually get around 117.

I try to train at 80% of my maximum heartrate, and I think that's

about 150 for me. It's hard to get it up there now, but once I'm

there, I can usually keep it there pretty easily. I really have to

push in the beginning, though. What a change from this time last

year

You've been exercising so much lately, , and that's fantastic!

-Bonnie

[Guest guest]

I have one too. and love it. I ended up with the f6, but i like to have a the records keeping that that watch has.

the band is hardly noticable around the chest, in fact, i got all the way home on saturday and didnt realizie it was still on until i went to take my shower!

the ony thing that my trainer told me is that it if you have one that estimates calories burned it tends to over estimate on women. it is basically 75% of whatever

number the watch says, or there abouts.

i have really noticed a HUGE difference in my endurance and the quality of my workouts since i got one.

i work out at 5 beats below my anerobic threshold for the majority of an hour and then for about 10 minutes i work at about 5 beats baove my threshold.

as bonnie said, you can look up a fairly good guildeline to what that is on the web.

good luck!

On 7/31/06, brgk44 <brgk44@...> wrote:

> I am assuming then that the strap fits decently on us bigger galsthen? Does> the time portion of the watch work like a regular watch without the

strap> on?Yeah, the strap that is packaged with it fits up to 48 " around andit's very comfy, stretchy elastic. And the watch works exactly likea regular watch without the strap.> yeah I'm suppose to be between 109 and something(I forget but I

have it> wrote down) I usually get around 117.I try to train at 80% of my maximum heartrate, and I think that'sabout 150 for me. It's hard to get it up there now, but once I'mthere, I can usually keep it there pretty easily. I really have to

push in the beginning, though. What a change from this time lastyear :)You've been exercising so much lately, , and that's fantastic!-Bonnie100-Plus Files page 100-plus/files100-Plus Links page 100-plus/links