Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 June, The Red Cross doesn't even want my blood, so I know my marrow would be out of the question. Maybe since I don't have RA, it would be different, but I doubt it since PA is also an autoimmune disease. hugs, a -----Original Message----- From: JUNE [mailto:juner24@...] Sent: Wednesday, April 25, 2001 12:23 PM Subject: [ ] myeloma Thanks ,the more I can find out about this disease,the better. It never occurred to me that my RA would prevent me from being a donor. My sister in Ottawa also has RA. That only leaves the sister that isjust 2 yrs younger than me. Right now Lois is almost in denial since she is showing no symtoms. Your prayers are very much appreciated. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I used to give blood all the time......I have O- and I am allergic to aspirin and I used to be Cytomeglavirus free ...they used to beg me for donations for the babies at children's hospital cos mine was so pure...but now since the MTX no one wants my blood ..not even me...LOL. Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2001 Report Share Posted April 25, 2001 I dont think it would do anything to the reciever or the donor if you had RA ( well, would maybe make the donor a lil more tired)....it's the meds you take or if you have hepatitis, unprotected sex , and any other blood diseases .....such as anemia, lukemia, etc...they have guidelines and they have a big huge book of meds to see if you can still give blood on certain meds...they drew the line with the MTX and PLaquenil on me.....Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 Please tell me the Results of giving blood if you have RA. What would the implications be to the receiver? And what if you did not know you had RA yet. But had it with no symptoms yet, and did give blood? Susie JUNE wrote: > Thanks ,the more I can find out about this disease,the better. > It > never occurred to me that my RA would prevent me from being a donor. > My > sister in Ottawa also has RA. That only leaves the sister that isjust > 2 > yrs younger than me. Right now Lois is almost in denial since she is > showing no symtoms. > Your prayers are very much appreciated. > > Hugs > June > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 The Red Cross doesn't even want my blood, so I know my marrow would be out of the question. Maybe since I don't have RA, it would be different, but I doubt it since PA is also an autoimmune disease. hugs, a a, I am surprised to see this. I have been donating blood for some time. Maybe the meds I am on make a difference. I was told that as long as I wasn't in a flare that I can donate. P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 I have been told that I cannot donate blood because of the meds I am on. Also have been told since RA is systemic I could not realistically be an organ donor under most circumstances. I have a twin sister - identical- I think in a life threatening situation they might take a chance. I think the concern among others is some underlying weakness in the immune system that could be passed on - they simply don't know what causes this. Also - let's face it - based on the infections and surgery issues many of us have illustrated over the past few months - we could be at greater risk for an infection and most post surgical complications - which are fairly high - in the case of a living donor. If you've been following the B-stem cell approach to curing " rheumatoid arthritis - it really does make sense that they would not allow donation of blood and blood products. I have been told there might be some tissue transplantation including corneal that might be considered -unless you are a long term pred user like me - and then I suppose because of cataract possibilities they might not. I have a post mortem organ donor card - but have noted RA and meds on it. I suspect my bod might be more valuable for research - have not reached the conclusion to donate to medical school yet - thank you very much -though. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 , You’ve really got me wondering about this. My girlfriend works for Red Cross, and when she gets Home I’ll call her. Maybe it is the meds, but that wasn’t the impression that I got. It was many years Ago that I was told this, but even when I had my knees replaced 3 years ago, I banked my own blood prior To surgery, and when they asked me if I would donate blood to the bank, I asked them if I could with RA, And they said no. They didn’t even ask what meds I was on. Maybe things have changed, but I’ll ask. Hugs, a -----Original Message----- From: linda [mailto:linda@...] Sent: Wednesday, April 25, 2001 10:37 PM Subject: Re: [ ] myeloma The Red Cross doesn't even want my blood, so I know my marrow would be out of the question. Maybe since I don't have RA, it would be different, but I doubt it since PA is also an autoimmune disease. hugs, a a, I am surprised to see this. I have been donating blood for some time. Maybe the meds I am on make a difference. I was told that as long as I wasn't in a flare that I can donate. P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2001 Report Share Posted April 26, 2001 I am going to check this being a donor out with my dr. because I do suffer with anemia. I could never give blood before because you had to weigh more than 98 lbs or the Red Cross turned you down.Now,of course,due to the Prednisone,weight is no longer a problem. Hugs June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2004 Report Share Posted March 10, 2004 From: Ervin E. <ervinke3@...> > I'm totally devastated because of my beloved wife's > recently found illness. > > The probable illness (a few tests are still pending) > is: Multiple Myeloma. The primary regimen that I'm aware of being effective w/myeloma is the Kelley(-) nutritional-metabolic-enyzme therapy. It consists primarily of taking large doses of high-quality pancreatic enzymes around the clock. Flax oil & cottage cheese (FSO/CC) has also been effective. Spirulina's also helpful. I believe chemo's relatively ineffective for myeloma, and I personally would NOT get chemo if I had myeloma. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 MGN3 has also shown some success with multple myloma. A couple promising studies on the books. Art B. Leonard <leonardleonard1@...> wrote: From: Ervin E. > I'm totally devastated because of my beloved wife's > recently found illness. > > The probable illness (a few tests are still pending) > is: Multiple Myeloma. The primary regimen that I'm aware of being effective w/myeloma is the Kelley(-) nutritional-metabolic-enyzme therapy. It consists primarily of taking large doses of high-quality pancreatic enzymes around the clock. Flax oil & cottage cheese (FSO/CC) has also been effective. Spirulina's also helpful. I believe chemo's relatively ineffective for myeloma, and I personally would NOT get chemo if I had myeloma. Quote Link to comment Share on other sites More sharing options...
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