Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 Ray, My heart goes out to you. Do not be discouraged or let this get you down. It's just that since you are moving, this would make you more suspect......to " pull " this on your doctor the last appointment. I know you didn't but he doesn't (apparently). However, you have your drugs, so now it might behoove to to stash one ot two away each week as you are feeling better.... just in case. Take care, Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2003 Report Share Posted June 13, 2003 I feel that way alot too lately Ray and in fact that is happening. Even with my closest friend I am pulling back. They don't understand.. they all think I am fat because I am not exercising and that I should get out there and do it.. Let THEM try when they are so exhausted they can barely lift their feet. Even the drs really don't understand completely. I hate having to fight to be heard and understood. I hate having to explain that my muscles are weak or that I am incontinent or all these other things. I'm even finding that i'm withdrawing from my volunteer work.. EXCEPT for tutoring.. without that I would not even want to leave the house most of the time. IT is too much trouble to get ready and all. But when I get out and going it feels better. AndI have a reason to go out. Someone who is counting on me. It is so good to have you all to talk to.. It is easy to express myself here and I like to be able to help yyou all right back when ever possible!!!!! HUGS to all...Liz > I try to be > honest. I expect others to be honest with me. Guess that's just > not how the world really works. Makes me want to just withdraw into > my family and not have anything to do with anyone else. > Ray Neal Liz ~~~~~~ " The truly creative mind in any field is no more than this: A human creature born (extraordinarily) sensitive. To him/her a touch is a blow, a sound is a noise, a misfortune is a tragedy, a joy is an ecstasy, a friend is a lover, and failure is death.--Pearl S. Buck ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Ray: At 10:09 PM 6/13/03 +0000, you wrote: I try to be honest. I expect others to be honest with me. Guess that's just not how the world really works. ___________________________ Isn't it because you are honest that you are having your current problem? You admit to being addicted--you have gone through withdrawal and are honest enough to admit that your body needs the drugs to function and that it does weird things when you don't have them. You explained to your doctor that you fear the consequences of running out. Unfortunately, our society has attached a terrible stigma to drugs. Why can't we simply admit that some people, with certain diseases or physical conditions, simply can't function reasonably without them? Why have weapons available to fight such conditions if we aren't willing to use them? Physicians, of course, are caught in the middle. A lot of the problem is with the unfortunately-coined term " war on drugs. " That was short-hand for the campaign to end the power and profit of those who prey on the most unfortunate and powerless members of society--as well as a way to convey contempt for others who look at drugs as casual recreation, not tools to function adequately in daily life. But, because the targets of the " war " were both the suppliers and the " improper takers " of drugs, and doctors are one source of supply, they have come under the suspicion of the " drug warriors. " It is especially unfortunate that doctors who are compassionate enough to establish pain clinics draw more than their share of suspicion. After all, a doctor who participates in a pain clinic is almost advertising that s/he provides drugs. S/he probably has to establish certain " red flags " to be sure s/he is not being " used " by people more interested in the recreational than the utilitarian value of the drugs supplied. Obviously, a patient who runs out of medicine before s/he should--twice--is going to raise one of those red flags. You are certainly correct, Ray, that doctors are afraid. They could lose their licenses if convicted of improperly prescribing narcotics. And, even if not convicted, a trial--or even an arrest or " investigation " --has such negative publicity attached that it affects the doctor's ability to earn a living. My point, I guess, is that neither you nor your doctors should have to go through what you have. But, what can be done to prevent it? Certainly, changing our society's attitudes is one answer, but there doesn't really seem to be much support out there right now for an " education campaign " to raise people's awareness of beneficial drug use! Sorry--I have questions, comments, thoughts, analyses and complaints, but no answers . . . . My heart goes out to you for your pain--I'll never forget the sight of my 28-year-old son with ReA, unable to walk or even stand without gasping and his eyes rolling up in his head from excruciating pain. And, I'll never forget his father's " you're young--get over it " reaction, and his brother's and girlfriend's confusion about how such a young, seemingly healthy person could be so unable to function. I'll also never understand why his PCP would prescribe nothing stronger than Motrin (he was taking 8 at a time, 4 to six times a day), but am thankful every day for the rheumatologist who wasn't afraid to prescribe the drugs necessary to get him through that flare. I haven't seen withdrawal, but understand your fear--my son experienced something of the same kind of panic when he lost his job and his insurance and couldn't afford the Arava any more (although, with what we've learned about Arava, maybe that was a blessing in disguise). It surely must have been some " put so much fear in him that he'll be more careful in the future " act by your doctor when he caused you so much more turmoil before backing down. He must really be " caught " somewhere between compassion and cruelty! But, what if you haven't found a new doctor willing to prescribe the necessary drugs before you run out again? Thirty days isn't very long to get moved and established with a new doctor. You shouldn't have the fear of running out again hanging over your head now! Again, no answers, only the above. Back " under my rock " for another six months or so! But, I'll be thinking of you as refuse to give up. And, don't give up being honest, either--eventually it just has to pay off! --bc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Ray, I'm so sorry you had to go through this. Thank God you are moving. We're praying for you out here. Kathy from WI Quote Link to comment Share on other sites More sharing options...
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