Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 , I'm so glad you have found our group. We have the best moderators on here, bar none. And the most loving and helpful group imaginable. As for me I am Liz, age 50, married, and living in Lincoln, NE. I have had reiters for 19 years. Mine came about as an after effect of a miscarriage. Well that's what tripped it. My father, mother, sister, and nice all have it too. My sister has AS as well, in fact she is the one who directed me to this list.. She cannot stand sitting down for more than a few minutes anymore so she can't do lists but she thought I'd benefit and boy have it!!! I also have sleep apnea. but I am so terrified of the -cpap that i can't use it.. I'm just going to be starting neurofeedback and maybe EMDR which may help me find out why i have such a terrible fear. I'm not just claustrophic.. i am in wild full blown panic attack when that mask comes near me. I too am overweight and getting m*-ore so -but i* don't know how to get the weight off since i am so tired from the drugs that i can't do much. - Sjogren's -is also -part of my pr-ofile.. Ray, here, told me of it and that is how i found out i had it.. my mother had it too... birth mother... I am not really really dry but getting there. Eyes, mouth, and other organs. You write so well. I'm glad you have told us all this and gotten it out so we can share it with you and help you better. I know you will also be a help to us, as well..... NO TREATMENT? What is that drs problem!!! There's no cure but---plenty of things to slow the progression. Our biggest problem iin many cases is not the treatment but the DRS!!! *grin Just keep the posts coming!!!! Pull up a chair and grab a coffee and cookie or something.. We are family here!! HUGS Liz ~~~~~~ " The truly creative mind in any field is no more than this: A human creature born (extraordinarily) sensitive. To him/her a touch is a blow, a sound is a noise, a misfortune is a tragedy, a joy is an ecstasy, a friend is a lover, and failure is death.--Pearl S. Buck ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@... PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Quote Link to comment Share on other sites More sharing options...
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