MTX SIDE EFFECTS/PAULA R

[Guest guest]

--

Thank you so much. I thank you for your kind words.

As RA is a constant, never ever ending series of 2 steps forward and 4.5 steps

backward all the time, I just get fed up easily with setbacks.

Thanks,

Jon

[Guest guest]

, My son who is 15 now had to take Reglan as a baby bcs he had

reflux...it is a soother for GI tract with a barbituate I think....it did

work for him.......wish you luck with it....Judy in AZ

[Guest guest]

Jon-

Glad to see you posting again - you sounded so

discouraged about a month ago with the insurance/doctor

fiasco that you had me and others worried. Not happy to

see you are having GI problems with even injectable metho

trexate. I take metho orally (15mgs all at one time- on

Saturday) and - to put this delicately- if that is

possible- have lower GI problems - sometimes

nearly unexpectedly - sometimes immediately- sometimes

later in the week. I take 3 mgs. Folic acid daily - at

night. My metho is in the morning. I think I should buy

stock in Immodium. Am actually seeing my primary tomorrow

about that- my rheumatologist suggested trying something

called Reglan. Anyone hear of it?? The methotrexate has

done great things and has kept the RA under control.

Thanks for the s Hopkins materials and folic acid (

also keeps homocystine levels normal which can reduce the

risk of clots) materials. Sorry I am rambling. I am at

work and " twirling " ( going from one job and one

conversation to another) as usual.

Glad to see you back online. I enjoy the dry humor- wish

it weren't at your own ( physical ) expense however. Of

course I wish that for everyone here.

[Guest guest]

HI , It's not a JP drain....that would have meant a bigger hole to put

in ..and the xray dr wants the surgeon to go in and remove the cyst(it has

now been declared a cyst)and put in a Jp drain then...for now I have this

same drain with an accordian pump on top , a smaller version of the other

drain and it has a spigot I can open and drain whenever I want...it is an

easy one to deal with compared to the last ones...but I cant take showers

like with the JP drain....but I go to see my surgeon on Monday and we will

discuss removal of cyst and JP drain then. For now I am fine.....and hope

you feel better soon......Judy in AZ

[Guest guest]

Judy-

So sorry to hear about your new JP drain. Had one after

the hysterectomy and hated it. Was so happy after it was

out. I was allowed to shower with it in. They changed the

dressing around it after the shower. It was out before I

went home from hospital. You obviously are having greater

drainage from yours.

My primary is actually going to give me something called

Levbid - with the thought that I could then forget the

Immodium. She said since it appears to be IBS- which may

or may not be related to the Methotrexate- that it was

worth a shot. Said Reglan would have been a major

mistake- would make it worse.

I shouldn't have lectured Rainy about letting things go

so long. I have been having some bladder problems since

the surgery which have become a little more than stress

incontinence- if you get the picture. I was also thinking

of investing in Poise. I finally got sick and tired of

nocturnal bathroom trips in partcular - so I had her

check that out also. Apparently I still have a pretty

gonzo bladder infection- which has never cleared up

completely since the surgery. If you'll recall my surgery

was Nov 17 and I developed the bladder infection on

Thanksgiving. It was treated but probably never

completely cleared up and noone " cultured " it. Apparently

just because there is no longer overt bleeding - doesn't

mean it has cleared up (DUH). They did a culter today and

my doc will get the results in 48 hours. In the meanwhile

I am on doxycycline. My doctor just shook her head. She

said sometimes people with chronic illness develop such

good coping skills that they cope too well - even when

they don't have to and probably shouldn't. She said that

she knows when I say I don't feel well - that something

is probably. This woman is a godsend. If I tell her or my

rheumatologist - I need pain meds - they know that they

are necessary- and just ask me where to call. So Rainy, I

need to listen to my own advice.

Later,

[Guest guest]

,

Reglan can cause irreversible neurological side effects, so I'm glad you aren't

going to take it. I hope your problems are cleared up with the AB's. I'm

surprised that you weren't rechecked to see if the bladder infection had

cleared. When I've had bladder infections, they always checked after my AB's

were finished. I'm glad you got to the bottom of this and will be spared the

Poises!

Lecturing is sometimes what we need to get that extra push to do things we put

off. We do it because we care.

a

----- Original Message -----

From: k.j.choate@...

Sent: Thursday, April 19, 2001 4:47 PM

Subject: Re: [ ] MTX SIDE EFFECTS/PAULA R

Judy-

So sorry to hear about your new JP drain. Had one after

the hysterectomy and hated it. Was so happy after it was

out. I was allowed to shower with it in. They changed the

dressing around it after the shower. It was out before I

went home from hospital. You obviously are having greater

drainage from yours.

My primary is actually going to give me something called

Levbid - with the thought that I could then forget the

Immodium. She said since it appears to be IBS- which may

or may not be related to the Methotrexate- that it was

worth a shot. Said Reglan would have been a major

mistake- would make it worse.

I shouldn't have lectured Rainy about letting things go

so long. I have been having some bladder problems since

the surgery which have become a little more than stress

incontinence- if you get the picture. I was also thinking

of investing in Poise. I finally got sick and tired of

nocturnal bathroom trips in partcular - so I had her

check that out also. Apparently I still have a pretty

gonzo bladder infection- which has never cleared up

completely since the surgery. If you'll recall my surgery

was Nov 17 and I developed the bladder infection on

Thanksgiving. It was treated but probably never

completely cleared up and noone " cultured " it. Apparently

just because there is no longer overt bleeding - doesn't

mean it has cleared up (DUH). They did a culter today and

my doc will get the results in 48 hours. In the meanwhile

I am on doxycycline. My doctor just shook her head. She

said sometimes people with chronic illness develop such

good coping skills that they cope too well - even when

they don't have to and probably shouldn't. She said that

she knows when I say I don't feel well - that something

is probably. This woman is a godsend. If I tell her or my

rheumatologist - I need pain meds - they know that they

are necessary- and just ask me where to call. So Rainy, I

need to listen to my own advice.

Later,

[Guest guest]

I agree Rainy. More than once I've been gently prodded into doing things I

should do, but needed the " push " .

a

----- Original Message -----

From: Rainy

Sent: Saturday, April 21, 2001 2:28 AM

Subject: Re: [ ] MTX SIDE EFFECTS/PAULA R

But that is what is so good about this list. We keep each other on their

toes! We don't let things slip by. So, tis a good thing!

~Rainy Sue

----- Original Message ----- >

> I shouldn't have lectured Rainy about letting things go

> so long. > Later,

[Guest guest]

Thanks, a.

I read about Reglan after my post and figured I'd stick

with my immodium if that is all they had to offer. I

have never had a post uti screening to actually see if

any bladder infection -ever- was cleared up - or if I

did it was many years ago. ( My doctor was very

scientific about whether there was kidney involvement -

she tapped hard over my kidneys and lower back - said

since I didn't hit her back- probably didn't involve my

kidneys too.) Doctor thinks that the catheter caused the

problem and uti is caused by something somehow drug

resistant or at least stubborn- and that it should have

been cultured previously. Methotrexate actually limits

the ABS I can be put on. The ABs make me feel so lousy

until I get used to them that I almost stayed home from

work. Note I said almost - considering what I got done I

should have been at home.

Thanks for your concern. My primary is the kind of woman

who considers this stuff a challenge so I am sure she

will attempt to chase it down and will check to see if

the ABs worked this time.

Hugs,

[Guest guest]

But that is what is so good about this list. We keep each other on their

toes! We don't let things slip by. So, tis a good thing!

~Rainy Sue

----- Original Message ----- >

> I shouldn't have lectured Rainy about letting things go

> so long. > Later,

[Guest guest]

,

Having a primary that considers finding answers a challenge, is one that will

dig deep. She sounds like she will do all the necessary follow up tests to make

sure you are infection free. I had a really bad uti infection that went to my

kidneys and liver when I was in my late teens. I'll never forget it. It was

really painful and took many courses of ABs to finally clear it up.

Hugs,

a

----- Original Message -----

From: k.j.choate@...

Sent: Saturday, April 21, 2001 12:23 AM

Subject: Re: [ ] MTX SIDE EFFECTS/PAULA R

Thanks, a.

I read about Reglan after my post and figured I'd stick

with my immodium if that is all they had to offer. I

have never had a post uti screening to actually see if

any bladder infection -ever- was cleared up - or if I

did it was many years ago. ( My doctor was very

scientific about whether there was kidney involvement -

she tapped hard over my kidneys and lower back - said

since I didn't hit her back- probably didn't involve my

kidneys too.) Doctor thinks that the catheter caused the

problem and uti is caused by something somehow drug

resistant or at least stubborn- and that it should have

been cultured previously. Methotrexate actually limits

the ABS I can be put on. The ABs make me feel so lousy

until I get used to them that I almost stayed home from

work. Note I said almost - considering what I got done I

should have been at home.

Thanks for your concern. My primary is the kind of woman

who considers this stuff a challenge so I am sure she

will attempt to chase it down and will check to see if

the ABs worked this time.

Hugs,

[Guest guest]

Hope you feel better , a uti really sucks...... & they are probably

correct in that the catheter caused it. Once when I was in the hospital,

they cathed the wrong " opening " realized their mistake & put it where it

belonged without a new set up......can we say UTI????????????? I was sick for

a long time. The Reglan was given to me to suppress the stomach cramps that

I was having, at that time the diarrhea was not a big problem. I just kept

having incredible stomach pains (which eventually turned out to be lupus/ra

related) & could not keep any food on my stomach & had home health come in

with an iv twice a day.........

Love ya,

Debs