New here but not new to this pain....

[Guest guest]

In a message dated 4/3/2004 10:14:50 AM Pacific Standard Time,

vze3ycrr@... writes:

I am looking for infromation, support and

any suggestiuons for how to deal with all this pain.

Welcome to the group! You have come to the right place!

I don't have any experience with remicade but others on the list do.

Hopefully they will respond shortly.

Again, welcome!

K

Adrienne's Mom

[Guest guest]

Hi All,

I was diagnosed with Ankylosing Spondylitis several years ago. Been

on several different arthritis meds with no real improvment. If fact

I seem to be getting worse. I have a high sed rate all the time so

the Rheumatologist seems to think I have some Spondyloarthropathies.

Whatever that is. I guess I am looking for infromation, support and

any suggestiuons for how to deal with all this pain. Which is very

bad today......Oh and one more question. Has anyone ever tried the

medicine Remicaid? If so can you share with me about how it helps or

side effects.

Thanks

[Guest guest]

Welcome to our ofamily!

I have reiter's and i'm not sure but what part of my pain is AS too.. My

lower back causes me a lot of probolem.

I have been on remmy for two or three yeras. (losts track) YEARS that is.

From what the nurses say it is not helpful for AS but for reiters and

Rheumatoid it is.

I have had a little headache from it at times and kind a feel like i have

a light case of the flu for a day or so after at times (but not always)

The dr makes me take an antihistimine before taking it now... the other dr

didn't so i doon't know why but it is for side effects or reactions he

says....

they montor your BP and temperature and pulse every 15 mknjtes to make

sure all iks well there too.

If I can help more please do ask!!!

Again welcome and HUGS

Liz

~~~~~~

" Happiness comes of the capacity to feel deeply, to enjoy simply, to think

freely, to risk life, and to be needed. " **Storm on**

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **ICQ 49746198** MSN-LizKP1952@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

,

The spondyloarthropathies are the family of diseases. Ankylosing

spondylitis is one of the spondyloarthropathies.

Since your sed rate hasn't come down, I think your doctor's idea of trying

Remicade is a great one. It works really well for some people. I haven't

taken Remicade but I am on a similar type drug called Enbrel. It brought my

sed rate down in one month (after it being elevated for years), but it took

a while before I felt better. Some people feel better immediately though.

They're finding these newest drugs such as Remicade and Enbrel work better

when tried sooner, so I would go ahead and try the Remicade. Give it some

time to work, because not everybody responds immediately.

God Bless and Good Luck. I'll be real interested to hear if the Remicade

works for you. You might want to look at the website www.remicade.com

<http://www.remicade.com> for more info.

Janet in SF

ReA (Reiter's, a related spondyloarthropathy) since 1973; diagnosed 1997;

HLA-B27+