queries

[Guest guest]

In a message dated 1/15/2006 10:06:00 A.M. Eastern Standard Time,

momofc_m@... writes:

I am wondering if anyone with ReA has ever gone completely off all

medications to see what would happen

Greetings Analia .It is officially Granny of 15/Great-granny of 2. I chose

what I thought was a good screen name, but my children are not being

cooperative. :-) I'm sticking with the Grannyof9 until they decide they have had

enough children Then I will change my screen name to the right number...for

good.

:-)

I've had to go off medications, in fact, I'm almost completely off anything

that could help with the inflammation, etc. for the last year. I'm just on

pain meds and it is getting so bad that my husband is begging me to go back on

the Humira (like Embrel) and Methotrexate. None of us would be on any

medication, if it wasn't indicated and necessary. All medications have side

effects. We have to always weigh the benefits against the side effects that our

medications have. This is why some will only be on NSAID, some Plaquenil, some

other harsher DMARD medications or the biologicals. No medications will cure,

but they will help slow the damage that is done through inflammation. NSAID,

DMARD-disease altering medications slow inflammation. Pain medications do

nothing to slow the disease or to bring down inflammation. It just helps us cope

with the pain easier.

I've had to go off NSAID entirely because of damage to kidneys. All NSAID

are harsh on kidneys....and after 10/15 years we start to show damage through

chemistry...our lab results. However, I could not have stood the pain all

those previous years without Indocin or other NSAID. At the very least..... it

gave some quality of life during my younger life and prolonged the damage

done to bone through inflammation. . It is pure " hell " without anything. I

probably would not be here to relate history. Sorry about the language, but I

can't think of a better word. It is like someone with cancer who says their

body

can heal itself. You might be better off with eating the right foods, taking

care of your body, but you still will need the anti-cancer drugs, surgery or

radiation to rid the body of the evil cancer.

It is my personal belief that we all should take the least possible drugs

for our condition. We all should be watchful of what we eat or do. However,

the bottom line is doing what is scientifically conventional to help us when we

have chronic or acute disease like Reiter's or Ankylosing Spondilitis.

Best regards, Connie

[Guest guest]

Thank you to Clost, Granny of 9 (or is it 13 now?) and

Herring for your kind responses to my first message.

I am wondering if anyone with ReA has ever gone completely off all

medications to see what would happen. My husband is thinking that if

he clears his system of all drugs his own body will have to take care

of the illness. I wonder if this is the least bit wise. After all,

this is an immune system issue, isn't it? Or will it just be too much

pain to manage?

Also, he worries about being on Tramadol and Prednisone for so long.

It's only been four months, though. And, how long is " too long " ?

Hoping all are well,

Analía

[Guest guest]

I just realized what Analia might be asking, " how do you know if the

medications are doing the trick or whether one has gone into a remission? " I

suppose

if you are not having any pain or symptoms for a few months, it might be

that you are in remission and might consider gradually going off medications to

see if that could be true. I think most of us that have chronic disease,

usually have symptoms even with the medications we take...so in those cases I

wouldn't suggest going off medications. However, if you've not had any pain or

inflammation or other symptoms for a few months...going off the drugs might

be an option with the exception of people who have advanced AS and are on

anti-TNF drugs. I know from experience the drug gave me some pretty good days,

but I know that it was the drug doing its thing....and not that I was in

remission.

Connie

[Guest guest]

Hi Analia,

It isn't a good idea to come off all the medications without supporting the

immune system in aother way. It would cause the body a big stress and ultimate

crisis which I don't tink your husband would want to do.

What I do for my patients is support them with a pharmaceutical grade supplement

which means it is as strong as medications without all the side effects. I do

this for at least three months to build the immune system and then start weaning

down the medications.

When I went through this experience myself to get off 15 medications after ten

years and I have been completely off of them since two and a half years and I

feel great, back to normal again.

Since my profession is in research for degenerative diseases, I did sveral

studies on different diseases and it all comes down to nourishing the immune

system and working at our most important cells, the mitochondrias. Some cells

take some time to change over some take 28 days, so the more cycles the cells

renew, the body gets stronger. I was very sick and didn't feel anything for at

least four months, but the bloodwork was changing. Then at six months, things

were turning around and I started to drop medications. After one year, I felt

like I had a complete overhaul and had a new body and no more medications.

I got very interested in this type of practise, more of nutritional medicine and

it works all the time if patients follow the recommedations.

I know I will never change my way of practise because the success of getting

people back to health has been extremely gratifying.

There are several pharmaceutical companies that exist and I work with two

different ones. It is alwasy a personal choice to treat diseases wither by

medications and/or supplementation.

Coming back to your husband, I really want to stress that coming off all

medications is too drastic for the body.

Regards,

Dr. e Bourgeois

DrSc, MSc, BSc

Professional Member of the New York Academy of Sciences

Professional Member of the International Institute of Clinical Nutrition, London

and Mexico

FIIQ, OIIQ

----- Original Message -----

From: Analia Norat van Dyck

[Guest guest]

I've been looking for an alternative to all these toxic drugs. Please tell me

more?!

Marty McGee

[Guest guest]

In a message dated 1/15/2006 3:20:49 P.M. Eastern Standard Time,

flight1@... writes:

nourishing the immune system and working at our most important cells, the

mitochondrias.

What does this have to do with our disease of a hyper immune system?

[Guest guest]

you could try a combination of glucosamine and methylsulfonylmethane (MSM) and

grape seed extract. read about them here:

http://www.worldimage.com/

i've been taking these products on and off for the past 4 years (hard to find

where i live so i have to order them online), and i do know that i felt/feel

better while taking them. at some times, i could tell my inflammation did go

down as my right shoe fit better. they're not proven to work in all cases, but

there's certainly no harm in trying. and there are other side benefits to

taking these supplements as well.

MCGEEtown@... wrote: I've been looking for an alternative to

all these toxic drugs. Please tell me

more?!

Marty McGee

[Guest guest]

Hi Analia,

Please convince your husband not to go off medication suddendly.

I am sure the pain will return with venegence, you should only try and wean

yourself off medication with professional people.

He should get his condition well control and then go through a Pain

Management Clinic, which I have attended on many occassions. They do show

you other ways of controlling pain, so you can at least low the doses of

these medications.

Depending on his level of pain and his health problems, going off medication

may not be an option.

I had not been on Prednisone long but my doctor show be how to wean the

medication off. If you go straight off Prednisone he will get side effects.

I have been on Tramal for the last three years, not all the time but when

needed, I have not found any problems with it. It does not seem to be habit

forming, but it does relieve the pain.

Bye Lyn

[Guest guest]

I can't remember if I have sent any of my thoughts on going off all meds,

but I have thought about it lots. I used to try to go off meds as I was

married to a guy who thought it was all in my head and that I ought to be

'drug free.' Of course he had one joint in his body that didn't work right

and when it flared, it was the END.

I sort of think that going off all meds is not only dangerous in some cases,

depending on the meds, and in all cases, it's probably a really good case of

denial that makes us either go off the meds or want to try it.

I hope that if the disease is somewhat controlled by meds currently taken

that they will be continued.

Best of luck whichever is decided.

GA

PS. It never worked well for me to go off all my meds and it was rough

getting things back under control again.

[Guest guest]

dear Nabela

british citizen not required IELTS, u need to sit for ore or lds exams to be

fully registered with the gdc though.

Dr.Sama

>

> Hi Dears,

>

> I am British national dentist,I had my BDS in 2004 from outside the UK

(Libya). I would like to register with GDC, my question is, do I need to set ORE

exam?. Also is the IELTS required for registeration?

> I look forward to receiving from you soon.

>

> Kind Regards,

>

> Nabela

>