Re: Geographic Tongue vs ReA mouth ulcers/

[Guest guest]

Dear ,

The geographic tongue is usually not the true diagnosis. The lestions many of

us get are usually a symptom of Reactive Arthritis, and they are actually

tongue ulcers or sores from the mucosal inflammation associated with the

disease.

At least mine are - I sometimes get oval or round shape ulcers and sometimes

they form lines like you say yours do. They get quite painful. They usually

start with a small bare spot, sometimes it's reddish, and it grows larger with a

white border, on any part of my tongue.

Please go to this website I've bookmarked here and look at Pic #4 at the end

(it's an e-medicine website about ReA and the article is published by a

dermatologist who knows alot about ReA situated in New Jersey. Pic #4 shows the

ReA

tongue disease many of us get. It resembles geographic tongue and many

doctors, even rheumatologists and oral pathologists, mistakingly think it's geo

tongue, however, when treated with corticosteroids at certain doses, or DMARDS,

it

goes away, meaning the cause is inflammatory. Geo tongue won't go away with

treatments and it never hurts (I know quite a few people who have it - they say

it sometimes responds to vitamins if it's geo tongue). Mine only responds to

high dose steroids, which I cannot take (I'm trying to get off), but it did

respond to Enbrel. However, Enbrel made me very sick in other ways and I may

have to go off it. All it did good was clear my tongue sores. NSAIDS are not

good

at keeping these sores under control either, I got constant flares on

Celebrex and am still getting them on Bextra.

eMedicine - Reiter Syndrome : Article by A Schwartz, MD, MPH

Hope you find this helpful or interesting at the least.

Is this what you get on your tongue? If it's sore in any way, it's probably

not geo tongue.

Debra!

[Guest guest]

My sons and brothers geo tongue was like a relief map and not a sore per se.

They were both very sensitive to acidic foods such as mustard and dill

pickles in particular. As far as I am aware neither of them ever had sores

in their mouths, it just looked like the tongue was eroding and coming off

in layers.

I have mouth sores. The tongue has spots which look like the little

protrusions are white. They hurt like crazy. I usually just take the

tweezers and snatch them off the tongue. It's less painful in the long run

that letting them run their course.

I also get what looks like a volcano crater in the inside of the cheek.

Sometimes they are so deep that there is a pimple on the outside as well as

the crater on the inside. That type of problem is best cured for me by a

topical of Kenalog in Orabase. I dry off the offending area with paper towel

or other clean absorbant material and put the KinO on the area with a Qtip.

My mouth stays dry enough through the night to produce an almost miraculous

treatment in one treatment. It might take another night or 2 of this

treatment to get rid of the offending spot but I have found that there is

little use for me to use the stuff during the day. I have it off the spot(s)

almost immediately and it's just a waste of the meds.

I hope that maybe one of these helps someone esp. when combined with the

info I sent about geographic tongue on the past post about this.

in GA