Re: Reactive Arthritis and Reiter Syndrome

[Guest guest]

Ray

When I click on the url, I get the cannot be displayed page. Any suggestions?

Peggy

HRayN <hrayn@...> wrote:

emedicine.com's article on:

Reactive Arthritis and Reiter Syndrome

http://www.emedicine.com/MED/topic1998.htm

Very good source of recent information on ReA/RS

Ray Neal, moderator

Today is the first day of the rest of my life....

" Let Go, Let God "

__________________________________________________

[Guest guest]

When I cut and pasted the address into a new web page, it went right to the

appropriate site.

If you can't beat these computers one way, try getting after them another

way.

I'd send the article to you but it's rather long for that.( There are 10

sections to the article)

GA

----- Original Message -----

From: " Peggy " <mhksmom@...>

>

> When I click on the url, I get the cannot be displayed page. Any

> suggestions?

>

> Peggy

>

[Guest guest]

In a message dated 02/03/2005 20:07:09 GMT Standard Time, joe@...

writes:

http://www.emedicine.com/MED/topic1998.htm

hi my name john im 35 ive been takeing sulphursalzine for about 10 months

itake 3 grams a day when i started on them i was also takeing pridisalone N

saids and havind steriod injectoins.now i only take sulfursalazine and i really

notice if i try to cut down on them so i guess that it works really well

[Guest guest]

I noticed in the artcle Ray posted a drug called Sulfasalazine

(Azulfidine, EN-tabs) Just wondering if anyone here has tried this

or has anymore information about it.

Thanks

Joe

> emedicine.com's article on:

> Reactive Arthritis and Reiter Syndrome

> http://www.emedicine.com/MED/topic1998.htm

>

> Very good source of recent information on ReA/RS

>

> Ray Neal, moderator

[Guest guest]

Hi Joe.. I tried it but it did not really work for me.....

On Wed, 2 Mar 2005, joeheerdink wrote:

>

>

> I noticed in the artcle Ray posted a drug called Sulfasalazine

> (Azulfidine, EN-tabs) Just wondering if anyone here has tried this

> or has anymore information about it.

>

> Thanks

>

> Joe

>

>

>

>

> > emedicine.com's article on:

> > Reactive Arthritis and Reiter Syndrome

> > http://www.emedicine.com/MED/topic1998.htm

> >

> > Very good source of recent information on ReA/RS

> >

> > Ray Neal, moderator

>

>

>

>

>

>

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[Guest guest]

Hi Joe

I have taken 2g of Sulfasalazine a day for over a year and my symptons have

gradually improved. I couldn't say whether the drug has been responsible. I

didn't see an immediate improvement but I don't think one would expect to.

It hasn't had any noticable side effect except that it turns your urine an

excellent orange colour which can be a discussion point in public

lavatories.

I am due to start reducing the dose by 500g every six months which means

I've got another 18 months to go so it is not a quick fix.

Gerard

[Guest guest]

Have been seeing a lot of TV comercials lately about this site

http://freemedicine.com/

I do not know if this has been mentioned before. Looks good.

+Dave

[Guest guest]

Hello Joe,

I am taking Sulfasalazine right now, for the second time in the 5 years

that I have been seeing a Rheumatist. He limits my use to only 6 months at a

time due to possible liver side effects. I get real good results with it,

particularly small symptoms like flakey scalp and fingernails falling off, less

swelling in some joints.

I'd like to say hello to the new people here. I was diagnosed with

Reiter's when I was 24 years old, I'm 50 years old now, and I'm still alive. I

don't want to scare you un-necessarily, I'll just say that I have had all the

symptoms, and I must take painkillers every day. For almost 20 years I didn't

even

think about pain meds, but when it got unbearable I had no trouble getting it

prescribed. WE are the folks that pain meds are made for. Keep coming back to

this great website and you will learn all there is to know about this * & #$*

disease. Yours, Harv in Michigan USA

[Guest guest]

hi you say you take sulfersalazine for six months at a time just wondering

how that works as it often takes at least 3 months to have any effect at all,

do you also have the monthly blood checks done cheer john

[Guest guest]

, "

I might make it seem that getting pain meds is easy, but I went through

the same bull**** you are going through. Here's my story: On a Monday morning

5 years ago I was in very bad shape. My right foot gave me unbearable pain

and I hadn't slept all weekend, and I was howling when I told my wife to take

me to the hospital emergency room. The ER docs knew what Reiter's Syndrome

was! I couldn't believe it! They put me on morphine IV, and after puking for

awhile I went to sleep, and later woke up to find that I had been admitted to my

own room. The XRays of my feet told the whole story (the first line of the

report said " the feet are grossly abnormal " ), and I was hooked up with a very

good

Rheumatologist, who 3 days later sent me home with a prescription for

Oxycontin. This all seemed too good to be true, and it was. First, I drove all

over

town (Detroit suburbs) looking for a pharmacy that stocked Oxycontin. You

couldn't phone and ask if they had it in stock, they wouldn't tell you for fear

they would be broken into by drug-crazed addicts. I also found myself in your

situation of having to sit in a doctor's office waiting room each month, begging

for a refill. The law wouldn't let the Dr. call in to a Pharmacy, you had to

do it in person. You also couldn't get the script post-dated; It had to be

filled in 3 days. If you took more than your daily dose, the Pharmacy itself

couldn't re-fill it until your 30 days were up, per the law. I could go on,

that's

just the beginning of the ordeal. It took me more than a year, and several

different doctors, and 3 different insurance plans, and trying, and succeeding

to get Social Security Disabilty benefits, to get to the position I'm at now

(and I hope I don't jinx it by telling about it). Now I have all my Dr bills

paid by Medicare, including triple-bypass surgery 2 years ago, but I have to pay

for my prescriptions. That forced me to stop the Oxycontin ($320/month) and

switch to Methadone ($40/month). When I sought treatment 5 years ago, I was

forced to find a " Primary Care Physician " , and I had him prescribe my pain meds

a year later when, due to insurance, I had to find a new Rheumatologist. Now

the beauty part: This " Primary Doctor " is fantastic, he's young and

open-minded, He set me up with a Cardiologist and Cardiac Surgeon, and he lets

me decide

what and how many painkillers I should get. Due to a change in the DEA laws,

he can give me six prescriptions in advance for each month between my 6-month

visits. I also see my Rheumatologist every month, and he has other Reiter's

patients, so he determines my RS treatment. I am currently in my 4th year of

taking Methotrexate, and my 3rd month of Sulfasalazine. He gives me Cortisone

injections whenever I want them. I am doing alright over-all, with the exception

of my right hand, which is very swollen right in the palm, and it hurts like

hell. I have doubled my Methadone doses, and it helps a lot. Like I said in

earlier posts, I have been dealing with these " things " for 26 years now, and it

all seems routine. Meaning: it will go away, but I will have a permanent

deformity after the pain and swelling goes away. You should see my feet! This

is

where I get off - Take Care, Harv in Clawson MI, which is a Detroit suburb,

right between Royal Oak and Troy, or 10 miles away from " The Palace Brawl "

incident, and Dr Kevorkian actually " euthanized " the lady next door, TRUE!