Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 says....However as time goes by we get better tools to manage our condition. I am very thankful I am living now rather than 50 years ago!>>>>> Me, too, . We have a host of drugs that help relieve our symptoms. 50 years ago, my Auntie never had a correct diagnosis and had little in the way of drugs to fight her symptoms. We believe she had AS. Everyday....we get closer to more help and we have learned the reason for our disease (the genetic link/triggers). I have lived to see the anti-TNF drugs, plaquenil, methotrexate, pred forte, pain medications, etc. come into view. These have been a real break-through for many of us. All drugs have their side effects, but to many, it has given us back some quality to our lives, at least, for awhile. I'm sure, as time goes on, there will be more and they will perfect the drugs they have and they will become cheaper to buy. We need to remember that pharmaceuticals/healthcare play politics and we need to think of that when it comes time to vote. This is one way to put pressure on our government to help us. Like any of the products that come to the market place, including pharmaceutical drugs and alternative or complimentary supplements and herbs, there will be corruption/graft/greed. However, I draw the line on doctors, and for the most part, researchers. Very, very few of these professionals are " out to get us. " We've had our exceptions ( ll drugs), but I don't think the majority of our researchers alter the results of tests to benefit their company. If people lose respect or confidence in the good will of the medical profession, we are in deep trouble. I know, from personal experience, what they have to endure for our benefit. Yes, they are paid well, but..... there are few jobs that require 24/7 (around the clock), full attention to the health of us all and when we get " really " sick, each one of us will be thankful for the knowledge and experience they have. I was involved with one of the Humira research projects, and they were exceptionally good at keeping correct records.... from what I could tell. I think most of these companies don't want to engage in future law suits from any bad information they might keep hidden. I think most will tell you...up front....what precautions or side effects the drugs will give you. It is up to us and our doctors to weigh the side effects to the benefit we can expect for any medication he prescribes. I'm like Analia. I would like to side with the positive side of humanity. Best regards, Connie (granny) PS. Re: the bowel problems. I have IBD (constant diarrhea) and taking the narcotics....is a blessing to me!!!! Narcotics are known for their constipation side effect. ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Hi Although it sounds like this should work for many things, it doesn't. This therapy was thought to be the " cure " for breast cancer as well, had one friend go through it, turns out it's not done for breast cancer anymore because it doesn't work. A very rough treatment to endure it is lethal in a small number of patients. There is research being done related to this, a number of institutions are looking at how to reset B cells which hopefully would " unlearn " our immune response anitbody " memory " and let it start over again. Whether it will pan out or not is for the future to decide. As far as " cure " , I really don't know about seeing that in our lifetime. The genes in our cells would have to be changed to effect a true cure. However as time goes by we get better tools to manage our condition. I am very thankful I am living now rather than 50 years ago! - > > What about the treatment they do for leukemia? Where they kill off your entire immune system including the bone marrow, and then introduce bone marrow from a healthy person, and allow your body to grow an entirely healthy and different immune system. Why will this not work for us? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Math-nawi, thank-you very much for your response, danc5@... ----- Original Message ----- Although it sounds like this should work for many things, it doesn't. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 'At a boy, Bob', just go do it now, nice and easy, get some help also, Thank-you, danc5@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Hi guys. I am in a 2 year study about AS in siblings with my younger brother. Dr. Weisman from Cedars Sinai (who is heading this study) is talking about some sort of gene replacement?? In the next few years. You never know and you cannot give up hope.....can you?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 I recently found out that I didn't have Reiter's and was toxic. It would behoove you severely to look into getting ozone treatments and such. I have been pain free for almost four months. It was well worth the money that I spent. I only wish I knew then what I know now. I could have saved myself from years of morphine and hydrocodone use. I'm over a month into withdrawals and still feel like I want to blow my head off, but I know that this too shall pass. My doctor gave me another catapress patch today to stop the cold sweats from withdrawal. I'm soooooo glad to be off the pain pills...I'm sure all of you know that they aren't any fun when you have to take them. I never abused the pills, but three years is a long time to be on pain medication. I keep telling myself that I didn't get here overnight so it won't go away overnight. As far as your inflammation goes, mine was at 20 when it should have been below .8. Toxicity problems can cummulate within your joints as a gas causing severe pressure and high inflammation levels. It costs me here(in Alaska) $150 everytime I go in for an ozone treatment. Look around and see what you find. I only had one when the pain went away. There wasn't one traditional doctor that could find the source of my inflammation. I underwent so many tests and the only things that they found were elevated liver enzymes and inflammation through the roof. We just decided to try the ozone treatment and the pain hasn't come back. I hope and pray this for you. I wouldn't wish on my worst enemy what I went through. Acupuncture is something else that we are doing now too. I hope that this helps you. I would try this before spending too much money on more tests. God Bless and I'll be praying for you. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 That would be nice, my son has tested positive and I surely don't want him going through what I have been trough with AS. He is only 10. Can you give me more details on this. Please Todd _____ From: [mailto: ] On Behalf Of Stolla Sent: Friday, March 03, 2006 8:59 PM Subject: Re: Re: What about a cure? Hi guys. I am in a 2 year study about AS in siblings with my younger brother. Dr. Weisman from Cedars Sinai (who is heading this study) is talking about some sort of gene replacement?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 I am sorry to hear about your boy. My daughter is 7 years old and she started having some G.I. problems..... I begged for her to be tested and she was HLA - B27 negative. I know that is really does not mean much but I feel for you. The web site again for the Rapid Response is www.amerdon.com . Good luck! Hil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hi all, Sounds interesting....what is a PCR test? in CA If they wanted to find a cure why don't they do PCR tests on every Reiters patient Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Thank-you very much for your reply. You saved me a lot of going off in the wrong direction, danc5@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 I took this from my doctor's web page at: http://www.comprehensivemedicine.net/ . I hope that this helps some of you. This would be the type of natural doctor that you would want to see. I had only one ozone treatment when I went out of pain. I have had several since then, but I remain pain free for the time now. My problem may have been a toxicity problem or could have been caused by the Cipro that I was taking 3 years ago. Who knows...??? Anyway, I hope that all of you can use this info. Please let me know if this is helpful for any of you. I'll be praying for all of you. God Bless!! Jackie MEDICAL OZONE THERAPY Ozone was first discovered in the late 1800's. The first uses of ozone were technological, with the most common being purification of water. Ozone has the unique property in that literally all microbes are susceptible to its oxidizing powers, without any chance of resistance. Because of these remarkable antiseptic qualities, ozone was used successfully during the World War I to treat wound infections. In the 1930's and 1940's ozone was commonly used in American hospitals. Even today ozone is frequently used to disinfect the air of operating rooms. In the early 1950's widespread use of ozone to treat various medical conditions began in Germany and it has been there that ozone has been extensively evaluated and researched. Germany, Russia, Cuba, and Canada employ the use of medical ozone in many applications, and treat millions of people. Medical ozone therapy is common throughout Europe, and its use has been spreading in the US over the last 15 years. OZONE EFFECTS ON THE IMMUNNE SYSTEM Ozone is potent regulator of the immune system. This occurs through ozone's effect on white blood cells. White blood cells are integral in the functioning of our immune system. White blood cells can secrete hormones called cytokines. Cytokines are potent messenger hormones which allows them to affect multiple immune pathways. There are currently over 100 different cytokines that have been identified. Medical Ozone can strengthen a persons immune system and help them fight off current infections (bacterial, viral, or fungal) and help prevent them from getting future infectoins. OZONE EFFECT ON OXYGEN IN THE BODY Ozone stimulates increased uptake and utilization of oxygen. This occurs by stimulating enzymes (diphosphoglycerate, s.o.d., gluthathione peroxidase). DPG enables the release of oxygen from red blood cells so that it can be taken up into our cells. SOD and glutathione peroxidase are used by our mitochondria (cell components that make energy for our cells in the body) in our cells where oxygen is processed for the release of energy. Virtually all persons with chronic disease have a significant deficiency of these enzymes. Ozone is the most potent inducer of these enzymes that has ever been discovered. Research studies have shown that in patients treated with ozone, oxygen utilization can be improved as much as 30-40% in various chronic conditions. OZONE IMPROVES CIRCULATION Ozone can affect circulation by enhancing what is called the rheological properties of the blood. Rheological refers to the flow characteristics of blood as a liquid. Ozone by affecting the rheological properties of blood enables more oxygen being carried by red blood cells to reach the capillaries (the small arteries in our peripheral tissues) where ultimately the cells will receive more of the oxygen they require. Many patients with chronic conditions, especially those with inflammation (like CFS, fibromyalgia, and rheumatoid arthritis), have severe compromise in circulatory flow associated with abnormal rheological properties such as rouleax (stack of coins, where red blood cells form in a stack like formation of coins). THERAPEUTIC APPLICATIONS OF MEDICAL OZONE Coronary Artery Disease and Angina Intermittent Claudication Macular Degeneration Chronic Infirmities of Aging Cancer Treatment Chronic Infections Chronic Herpes I and II Wound Healing Prostatitis Dental Infections Chronic Sinusitis and Acute Sinusitis Ear Infections Auto-Immune Disease Ulcerative Colitis Crohn's Disease Allergies Eczema Hepatitis A, B and C Common Cold Influenza Quote Link to comment Share on other sites More sharing options...
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