MM

September 28, 2000

MM

> I was diagnosed with MM on March 14/00. After 3 chemo treatments and 7

high

> dose steroids and 10 days of radiation I was getting worse every day so I

> took myself off the treatments and adopted a vegetarian life style and I

> have been feeling much better since. I do have a problem that you may be

> able to help me with and that if that the muscles in my legs and hips are

> stiffening up on me every time I sit for a few minutes. I do stretching

> exercises every morning but the effects don't last. I was wondering if you

> had ever heard of this problem and if you know of something or a site that

> might help me.

>

> Grant

> http://homepage.ntlworld.com/bryan.c/grant/index.html

September 29, 2000

Dear Bob

This may sound like a strange suggestion but please give it a try before you

decide to give it up. I am a Reiki master and Pranic Healer and a I have

done a lot of other alternative stuff too. I believe they work.

Take a bowl of salt water. Pretend that you are cleaning your leg by

running your palm scooped into a cup shape all down your legs. Do not touch

yourself physically. Cleanse only your auric field. Flick your hand into

the salt water bowl as though you are throwing some negative stuff. Flick

hard. Do this at least 25 times, once in the morning and once in the

evening. Remember to wash your hands with soap water every time you finish.

I hope I am clear in my explanation. I do not know how else to write it; it

needs to be demonstrated. Throw away the water and use clean water the next

time. Use granulated salt. I have seen all kinds of stuff healed using this

technique, aches, pains and infections, even major illnesses.

Best of LUCK.

Millie K.

February 18, 2003

What does the MM on the food list mean?

January 8, 2006

I thought everyone would get the idea about the quilt we are

going to do. That project has not gone by the wayside, I hope, as we are

working on the logo thing. The instructions for the quilt squares are

still in the files section on the home page of the group.

As a matter of fact, I am listening to KYSM

http://www.accd.edu/sac/ksym/index.htm and the best of the Beatles

and answering veteran related emails. I got a little behind because of my

appt with the VA hospital on Friday. I was gone from 9 am until 4:30 pm

that day. It is a 2+ hour trip one way to the appt and it was at 11:30

and I got stuck in the lunch hour waiting for the blood draw and to get

travel pay.

I am feeling pretty much as usual, but have a nasty headache for the

first couple of hours of the day after waking up. I am guessing that it

is just all the rat poison being drained out of me after 48 weeks of tx.

A couple of Tylenol extra strength seems to take care of the

headaches.

How are you doing?

Dick

At 07:17 AM 1/8/2006, you wrote:

Thank You Dick..Ours should have

our dragon in the middle and have different

colors...like the colorful people we Are!..lol..What are you up to this

mornin?..How are you feeling?...Patty

Photo section

> Good morning,

>

> I have posted two pics of a HCV quilt that was on display at a

HCV

> conference put on by Bill Remak in March of 2003 in Santa Barbara,

CA.

>

> They are in the photo group in the album Dick's Mountain.

>

> Dick

January 8, 2006

There are alot of songs from the beatles you normally dont hear..Glad you enjoy the staion...You can be my Westcoast,Thirdcoast Buddy!

your appt sounds like mine on Thursday, I got there at 8:40 and didnt get outta there till 2:30..err, but I didnt have the drive you did darlin...

Im takin my medicine the doc gave me, but as long as I get alot of rest Im ok for work..until I get hot then I start coughin..errrr..The day will come when I have to stop or slow Way down on the cigs..but not today!.Ha!

Teagan is here and in the bath tub..Shes a trip and alot of fun..couldnt ask for a better granddaughter

Hope the headache subsides..it will sooner or later honey...When I get tired I now get headaches...Have a great day!...Patty

Photo section> Good morning,>> I have posted two pics of a HCV quilt that was on display at a HCV> conference put on by Bill Remak in March of 2003 in Santa Barbara, CA.>> They are in the photo group in the album Dick's Mountain.>> Dick

January 8, 2006

Hi Dick,

As relatively easy as the sides were on you I think the headache shouldn't last too long. I took my first shot of interferon on 7/11/2000 and have had a headache ever since. It never really goes all the way away but then again I had a rough time with the sides.

I've been following your Tx all year and I'm so happy for you that you came through it so well. Maybe you can share your story of success with us, i.e.; what you learned, what went well and what not so well. Maybe some tips for those either contemplating or currently on Tx. I know I would be interested even if no one else is.

Allan with 2 L's

Photo section> Good morning,>> I have posted two pics of a HCV quilt that was on display at a HCV> conference put on by Bill Remak in March of 2003 in Santa Barbara, CA.>> They are in the photo group in the album Dick's Mountain.>> Dick

January 8, 2006

I am going to make a wild guess here that I am not the

typical Hep C patient. I know that many in the group have had a rough

time of tx and are looking at life threatening situations in their cases

and I don't mean to make light of that at all.

I am presently 62 years old and did enjoy a risky life style when younger

and was a hard drinker for about 40 years.

As most of you know, I was dx'd with Hep C at about 9 Million copies to

start and also fibrosis and cirrhosis. The doctor said who cares what

your type and stage is, we need you on tx now! This was when I finally

went to the VA and sought tx in late 2004. I was actually dx'd through a

blood test in late 2002.

All I did for the last 48 weeks was follow instructions that I was given.

Drink a gallon of water a day, eat 5 or 6 small meals a day, quit alcohol

and take the shots and the pills. At 12 weeks, I tested for about 60K

copies of the virus and at 24 weeks it was less than 50 copies detected

and that hasn't changed so far.

I did experience flu like symptoms at times and found that while on tx,

it takes longer for strains, wounds and pains to heal. I learned the need

for naps when I was tired. I can only remember 3 or 4 times that the

shots really put me down and feeling terrible for the next day or so. I

really didn't slow down any in what I did on a day to day basis and, in

fact, might just have added a few things to my agenda. I traveled as much

or more than I did in the previous year and still did a few shots on the

road and continued to function. I even did a full day of salmon fishing

the day after one shot in October.

The next step, the doctor says, is to continue to check on the cirrhosis

(I have an ultrasound scheduled for the end of March) and see where that

condition is now. One of my biggest reliefs is that I won't have the

virus always on my mind. Is it shot day? Have I remembered my pills for

the day? What does that ache or pain mean?

I have to admit that I was lucky that I was tx'd by the VA. The worry

about cost was eliminated and that was a great relief

My biggest tip for those that are contemplating tx is to just do it as

soon as possible. That assumes that you have found a good doctor and have

the funding in place to do it. One will find out quite quickly if they

can tolerate tx. The worst thing to do is to put it off because of the

stories or mis-information one hears. A support group is needed whether

it is on line or in a meeting setting. This group has helped a lot and I

hope I have helped others at the same time with my involvement in the

group.

That's about it.

Dick

At 08:19 AM 1/8/2006, you wrote:

Hi

Dick,

As relatively easy as the sides were on you I think

the headache shouldn't last too long. I took my first shot of interferon

on 7/11/2000 and have had a headache ever since. It never really goes all

the way away but then again I had a rough time with the sides.

I've been following your Tx all year and I'm so happy

for you that you came through it so well. Maybe you can share your story

of success with us, i.e.; what you learned, what went well and what not

so well. Maybe some tips for those either contemplating or currently on

Tx. I know I would be interested even if no one else is.

Allan with 2 L's

January 8, 2006

Thanks Dick!

You brought back a couple of memories of when I was on Tx.

More than once I had to count out the pills to make sure I took them LOL.

You are so right about the relief when you stop. In my case I had to keep getting approvals from the insurance company, make sure that the pharmacy would special order the meds, make sure I had an ice pack ready for the meds bag, etc. I definitely hear you about wondering what a new ache or pain meant!

I worked the entire time and never missed a day, travel included. It is amazing what one can endure when one has to. I had to make adjustments but I made it.

I applaud you my friend because I know Tx is tougher than most let on even when things are light.

Allan with 2 L's

Re: MM

I am going to make a wild guess here that I am not the typical Hep C patient. I know that many in the group have had a rough time of tx and are looking at life threatening situations in their cases and I don't mean to make light of that at all.I am presently 62 years old and did enjoy a risky life style when younger and was a hard drinker for about 40 years.As most of you know, I was dx'd with Hep C at about 9 Million copies to start and also fibrosis and cirrhosis. The doctor said who cares what your type and stage is, we need you on tx now! This was when I finally went to the VA and sought tx in late 2004. I was actually dx'd through a blood test in late 2002. All I did for the last 48 weeks was follow instructions that I was given. Drink a gallon of water a day, eat 5 or 6 small meals a day, quit alcohol and take the shots and the pills. At 12 weeks, I tested for about 60K copies of the virus and at 24 weeks it was less than 50 copies detected and that hasn't changed so far.I did experience flu like symptoms at times and found that while on tx, it takes longer for strains, wounds and pains to heal. I learned the need for naps when I was tired. I can only remember 3 or 4 times that the shots really put me down and feeling terrible for the next day or so. I really didn't slow down any in what I did on a day to day basis and, in fact, might just have added a few things to my agenda. I traveled as much or more than I did in the previous year and still did a few shots on the road and continued to function. I even did a full day of salmon fishing the day after one shot in October.The next step, the doctor says, is to continue to check on the cirrhosis (I have an ultrasound scheduled for the end of March) and see where that condition is now. One of my biggest reliefs is that I won't have the virus always on my mind. Is it shot day? Have I remembered my pills for the day? What does that ache or pain mean? I have to admit that I was lucky that I was tx'd by the VA. The worry about cost was eliminated and that was a great reliefMy biggest tip for those that are contemplating tx is to just do it as soon as possible. That assumes that you have found a good doctor and have the funding in place to do it. One will find out quite quickly if they can tolerate tx. The worst thing to do is to put it off because of the stories or mis-information one hears. A support group is needed whether it is on line or in a meeting setting. This group has helped a lot and I hope I have helped others at the same time with my involvement in the group.That's about it.DickAt 08:19 AM 1/8/2006, you wrote:

Hi Dick, As relatively easy as the sides were on you I think the headache shouldn't last too long. I took my first shot of interferon on 7/11/2000 and have had a headache ever since. It never really goes all the way away but then again I had a rough time with the sides. I've been following your Tx all year and I'm so happy for you that you came through it so well. Maybe you can share your story of success with us, i.e.; what you learned, what went well and what not so well. Maybe some tips for those either contemplating or currently on Tx. I know I would be interested even if no one else is. Allan with 2 L's

January 8, 2006

Thanks.....

Dick

At 04:39 PM 1/8/2006, you wrote:

You just keep right on helping Dick.The new

ones need to hear from us so that they know there is hope and I light at

the end of the tunnel.You have a great day.

Gail

Re: MM

I am going to make a wild guess here that I am not the

typical Hep C patient. I know that many in the group have had a rough

time of tx and are looking at life threatening situations in their cases

and I don't mean to make light of that at all.

I am presently 62 years old and did enjoy a risky life style when

younger and was a hard drinker for about 40 years.

As most of you know, I was dx'd with Hep C at about 9 Million copies

to start and also fibrosis and cirrhosis. The doctor said who cares what

your type and stage is, we need you on tx now! This was when I finally

went to the VA and sought tx in late 2004. I was actually dx'd through a

blood test in late 2002.

All I did for the last 48 weeks was follow instructions that I was

given. Drink a gallon of water a day, eat 5 or 6 small meals a day, quit

alcohol and take the shots and the pills. At 12 weeks, I tested for about

60K copies of the virus and at 24 weeks it was less than 50 copies

detected and that hasn't changed so far.

I did experience flu like symptoms at times and found that while on

tx, it takes longer for strains, wounds and pains to heal. I learned the

need for naps when I was tired. I can only remember 3 or 4 times that the

shots really put me down and feeling terrible for the next day or so. I

really didn't slow down any in what I did on a day to day basis and, in

fact, might just have added a few things to my agenda. I traveled as much

or more than I did in the previous year and still did a few shots on the

road and continued to function. I even did a full day of salmon fishing

the day after one shot in October.

The next step, the doctor says, is to continue to check on the

cirrhosis (I have an ultrasound scheduled for the end of March) and see

where that condition is now. One of my biggest reliefs is that I won't

have the virus always on my mind. Is it shot day? Have I remembered my

pills for the day? What does that ache or pain mean?

I have to admit that I was lucky that I was tx'd by the VA. The worry

about cost was eliminated and that was a great relief

My biggest tip for those that are contemplating tx is to just do it

as soon as possible. That assumes that you have found a good doctor and

have the funding in place to do it. One will find out quite quickly if

they can tolerate tx. The worst thing to do is to put it off because of

the stories or mis-information one hears. A support group is needed

whether it is on line or in a meeting setting. This group has helped a

lot and I hope I have helped others at the same time with my involvement

in the group.

That's about it.

Dick

January 8, 2006

Ditto on the Mountain Man!...

RE: MM

You just keep right on helping Dick.The new ones need to hear from us so that they know there is hope and I light at the end of the tunnel.You have a great day.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Dick SouthernSent: January 8, 2006 12:00 PMHepatitis CSupportGroupForDummies Subject: Re: MMI am going to make a wild guess here that I am not the typical Hep C patient. I know that many in the group have had a rough time of tx and are looking at life threatening situations in their cases and I don't mean to make light of that at all.I am presently 62 years old and did enjoy a risky life style when younger and was a hard drinker for about 40 years.As most of you know, I was dx'd with Hep C at about 9 Million copies to start and also fibrosis and cirrhosis. The doctor said who cares what your type and stage is, we need you on tx now! This was when I finally went to the VA and sought tx in late 2004. I was actually dx'd through a blood test in late 2002. All I did for the last 48 weeks was follow instructions that I was given. Drink a gallon of water a day, eat 5 or 6 small meals a day, quit alcohol and take the shots and the pills. At 12 weeks, I tested for about 60K copies of the virus and at 24 weeks it was less than 50 copies detected and that hasn't changed so far.I did experience flu like symptoms at times and found that while on tx, it takes longer for strains, wounds and pains to heal. I learned the need for naps when I was tired. I can only remember 3 or 4 times that the shots really put me down and feeling terrible for the next day or so. I really didn't slow down any in what I did on a day to day basis and, in fact, might just have added a few things to my agenda. I traveled as much or more than I did in the previous year and still did a few shots on the road and continued to function. I even did a full day of salmon fishing the day after one shot in October.The next step, the doctor says, is to continue to check on the cirrhosis (I have an ultrasound scheduled for the end of March) and see where that condition is now. One of my biggest reliefs is that I won't have the virus always on my mind. Is it shot day? Have I remembered my pills for the day? What does that ache or pain mean? I have to admit that I was lucky that I was tx'd by the VA. The worry about cost was eliminated and that was a great reliefMy biggest tip for those that are contemplating tx is to just do it as soon as possible. That assumes that you have found a good doctor and have the funding in place to do it. One will find out quite quickly if they can tolerate tx. The worst thing to do is to put it off because of the stories or mis-information one hears. A support group is needed whether it is on line or in a meeting setting. This group has helped a lot and I hope I have helped others at the same time with my involvement in the group.That's about it.DickAt 08:19 AM 1/8/2006, you wrote:

Hi Dick, As relatively easy as the sides were on you I think the headache shouldn't last too long. I took my first shot of interferon on 7/11/2000 and have had a headache ever since. It never really goes all the way away but then again I had a rough time with the sides. I've been following your Tx all year and I'm so happy for you that you came through it so well. Maybe you can share your story of success with us, i.e.; what you learned, what went well and what not so well. Maybe some tips for those either contemplating or currently on Tx. I know I would be interested even if no one else is. Allan with 2 L's

January 8, 2006

You just keep right on helping Dick.The new ones need to hear from us so that they know there is hope and I light at the end of the tunnel.You have a great day.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Dick SouthernSent: January 8, 2006 12:00 PMHepatitis CSupportGroupForDummies Subject: Re: MMI am going to make a wild guess here that I am not the typical Hep C patient. I know that many in the group have had a rough time of tx and are looking at life threatening situations in their cases and I don't mean to make light of that at all.I am presently 62 years old and did enjoy a risky life style when younger and was a hard drinker for about 40 years.As most of you know, I was dx'd with Hep C at about 9 Million copies to start and also fibrosis and cirrhosis. The doctor said who cares what your type and stage is, we need you on tx now! This was when I finally went to the VA and sought tx in late 2004. I was actually dx'd through a blood test in late 2002. All I did for the last 48 weeks was follow instructions that I was given. Drink a gallon of water a day, eat 5 or 6 small meals a day, quit alcohol and take the shots and the pills. At 12 weeks, I tested for about 60K copies of the virus and at 24 weeks it was less than 50 copies detected and that hasn't changed so far.I did experience flu like symptoms at times and found that while on tx, it takes longer for strains, wounds and pains to heal. I learned the need for naps when I was tired. I can only remember 3 or 4 times that the shots really put me down and feeling terrible for the next day or so. I really didn't slow down any in what I did on a day to day basis and, in fact, might just have added a few things to my agenda. I traveled as much or more than I did in the previous year and still did a few shots on the road and continued to function. I even did a full day of salmon fishing the day after one shot in October.The next step, the doctor says, is to continue to check on the cirrhosis (I have an ultrasound scheduled for the end of March) and see where that condition is now. One of my biggest reliefs is that I won't have the virus always on my mind. Is it shot day? Have I remembered my pills for the day? What does that ache or pain mean? I have to admit that I was lucky that I was tx'd by the VA. The worry about cost was eliminated and that was a great reliefMy biggest tip for those that are contemplating tx is to just do it as soon as possible. That assumes that you have found a good doctor and have the funding in place to do it. One will find out quite quickly if they can tolerate tx. The worst thing to do is to put it off because of the stories or mis-information one hears. A support group is needed whether it is on line or in a meeting setting. This group has helped a lot and I hope I have helped others at the same time with my involvement in the group.That's about it.DickAt 08:19 AM 1/8/2006, you wrote:

Hi Dick, As relatively easy as the sides were on you I think the headache shouldn't last too long. I took my first shot of interferon on 7/11/2000 and have had a headache ever since. It never really goes all the way away but then again I had a rough time with the sides. I've been following your Tx all year and I'm so happy for you that you came through it so well. Maybe you can share your story of success with us, i.e.; what you learned, what went well and what not so well. Maybe some tips for those either contemplating or currently on Tx. I know I would be interested even if no one else is. Allan with 2 L's

January 8, 2006

The whole time I was on interferon and riboveron I had a headace.Matter fact it lasted for about 6 months after finisheing treatment.I think it reacted with my sinusis.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of Allan W Anger JrSent: January 8, 2006 8:19 AMHepatitis CSupportGroupForDummies Subject: Re: MM

Hi Dick,

As relatively easy as the sides were on you I think the headache shouldn't last too long. I took my first shot of interferon on 7/11/2000 and have had a headache ever since. It never really goes all the way away but then again I had a rough time with the sides.

I've been following your Tx all year and I'm so happy for you that you came through it so well. Maybe you can share your story of success with us, i.e.; what you learned, what went well and what not so well. Maybe some tips for those either contemplating or currently on Tx. I know I would be interested even if no one else is.

Allan with 2 L's

Photo section> Good morning,>> I have posted two pics of a HCV quilt that was on display at a HCV> conference put on by Bill Remak in March of 2003 in Santa Barbara, CA.>> They are in the photo group in the album Dick's Mountain.>> Dick

January 9, 2006

I was just writing it as it came to me....There is a

commonality in tx for all. And then sometimes it goes the other way. Very

tricky virus.

Dick

At 01:02 PM 1/8/2006, you wrote:

Thanks

Dick!

You brought back a couple of memories of when I was

on Tx.

More than once I had to count out the pills to make

sure I took them LOL.

You are so right about the relief when you stop. In

my case I had to keep getting approvals from the insurance company, make

sure that the pharmacy would special order the meds, make sure I had an

ice pack ready for the meds bag, etc. I definitely hear you about

wondering what a new ache or pain meant!

I worked the entire time and never missed a day,

travel included. It is amazing what one can endure when one has to. I had

to make adjustments but I made it.

I applaud you my friend because I know Tx is tougher

than most let on even when things are light.

Allan with 2 L's

Re: MM

I am going to make a wild guess here that I am not the typical Hep C

patient. I know that many in the group have had a rough time of tx and

are looking at life threatening situations in their cases and I don't

mean to make light of that at all.