Re: Digest Number 663

[Guest guest]

In a message dated 3/2/01 1:38:20 AM Pacific Standard Time,

writes:

> He everyone. I just received news that my loan was approved at the

> bank. So officially I am a business women and will soon have my own

> store. I just wanted you to know that if you are contemplating this

> to give it alot of thought, go into detail, and promote yourself and

> your products. You never know until you try.

>

> Candy Cain

> Scentimints, LLC

>

>

>

>

Well done!

Sonerila

[Guest guest]

In a message dated 3/2/01 1:38:20 AM Pacific Standard Time,

writes:

>

> Here is the recipe for bath cookies.

>

> 2 cups sea salt, finely ground

> 1/2 cup baking soda

> 1/2 cup cornstarch

> 2 tablespoons light oil

> 1 teaspoon vitamin E oil

> 2 eggs

> 1/4 teaspoon essential oil (or to taste)

>

> preheat oven to 350 degrees. Mix together ingredients. Take a

> teaspoon of dough and roll gently into ball (about 1 inch). continue

> doing this with all the dough and place on an ungreased cookie

> sheet. Bake the cookies for about 10 minutes, until they are light

> brown. DO NOT over bake. Allow the cookies to cool completely. To

> use: drop 1 or 2 cookies in warm bath and allow to dissolve.

>

> Yiels 24 cookies (enough for 12 baths)

>

> Hannelore

>

>

>

Sounds like fun. Do you know the shelf life of these cookies?

Sonerila

[Guest guest]

> >

> > ~risa (thinking of renaming her 'sparky')

> >

>

>

>

>

>

You're too funny!

Sonerila

[Guest guest]

Hi Sonerila,

Bath cookies are pretty nasty, they don't dissolve, they just turn

into sludge in your bath.

> In a message dated 3/2/01 1:38:20 AM Pacific Standard Time,

> @y... writes:

> > Here is the recipe for bath cookies.

<SNIP>

> Sounds like fun. Do you know the shelf life of these cookies?

>

> Sonerila

Eleanor

[Guest guest]

Dear , I may have missed early discussion about the NMC

meeting which is obviously fantastic and long over due good news

for health visiting but this consultation paper that you say is to be

presented to the September meeting - is that prior to or following

consultation? I searched the NMC web site today for any mention

of it having been told about it but coudlfind no mention although

there is a press statement about the reinstatement of the title. I'd

also liketo add my thanks to all those who have and continue to

represent health visiting on and to the NMC. Ros

On 9 Jul 02, at 14:42, wrote:

>

>

[Guest guest]

I am 61 years old with AS. I have a relatively mild case compared to other

people who have AS. I have pain in the morning, but taking 50mg of Indocin

daily, plus extensive stretching excercises reduces most of the pain during

the day. I belong to an AS support group in San Diego. Several of the

members (who have much more severe cases) are on Embrel and recommend I try

it since it has reduced their pain and may slow down the progression of the

disease. My rhumatologist had me try Embrel. I have been on it for 8

weeks, but have not noticed any improvement. Based on other peoples

experience, is this long enough to take effect, or am I one of the 20-30

percent who do not respond to Embrel?

Doug

jedlicka@...

[Guest guest]

Doug,

It took me a long time to see improvement in joint pain from Enbrel. I was

on Enbrel for 8 months before I was able to get off prednisone. I think it

does take longer to work for some people. I'm really glad that I stuck with

it. I got relief from mouth sores after 2 weeks, and my sed. rate went way

down within a month, but I didn't start feeling better for several months.

Regards,

Janet in San Francisco

Reactive Arthritis (Reiter's Syndrome) since 1973 (age 10); diagnosed 1997

(age 34); HLA-B27+

[Guest guest]

Janet,

Do you have both Reiter's and AS? I'm curious about the relation.

Thanks! Harv

[Guest guest]

Harv,

I have Reiter's and not AS. They're related diseases. The treatments tend

to be quite similar for both.

Regards,

Janet in San Francisco

[Guest guest]

Janet, I understood your message to say you have Reiters and not AS. I was

diagnosed with Reiters at one time and now the new rhemy is telling me that

I do not have it. Please share your symptoms and how your specific illness

was determined.

I am so discouraged. I saw rhemy today and she asked (1) do your finger

nail turn colors (yes, as well as my toes)

(2) do you have sores it your mouth (yes, most all the time)

(3) lean over and touch your toes (couldn't do in grade school)

(4) with your arms in front of your body, show me hard far

you can turn them .... not your waist (she said

oh, is that as far as you can go........not good) I said let

try harder.........still no better

(5) touch your chin to your chest (impossible)

(6) are you sleeping well............no

She put me on Bextra and Flexeril. I have been such horrible muscle spasms

all over my body. Even my ankles are giving way when I get up to walk. To

complicate things, I have MRSA infection in my sinuses. Taking antibiotics

for several months. Last year I had thumb bone infection that was caused by

fusarium. I went through hyperbaric treatment to get rid of it. The thumb

is flaring and I'll have to another doctor about it; probably infectious

disease guy.

I go to water and trigger point therapy three times a week, see a

psychologist once a week, and try to work my GP, hematologist, nephrologist,

and rhemy into that schedule. It seems I am seeing someone about my health

all the time. I am tired and discouraged.

Thank you as a group for letting me vent. My first iritis was at Age 10 and

since 1997 I have not been able to work.

I am HBLA 27 positive.

Jane

[Guest guest]

Jane,

I know how you feel, I get overwhelmed with all the medical appointments too

and feel like it's eating up my whole life.

I started having severe Achilles Tendonitis at age 10, finally at age 13

they put me in a full-leg cast which atrophied my left quadricep

permanently. My knee started ballooning at age 13. I started getting

" sausage digit " (swollen single toe or two toes at a time) in my toes

periodically in my teens. Was told I could never wear heels. I started

getting iritis at age 19. The tendonitis in the feet starting come back

severely in my 30s, along with the iritis. Finally, got the HLA-B27 blood

test and diagnosis of Reactive Arthritis in 1997 at age 34.

1997 - 2001 I was on sulfasalazine, a disease-modifying anti-rheumatic drug.

It worked well at first, and made the iritis stop for a while. However, in

1999 my toe swelled real bad and I started taking Vioxx, an

anti-inflammatory. I'm still on Vioxx. In 2001, I developed a severe flare

of symmetrical ankle joint (both ankles) and knee inflammation and severe

morning stiffness. It was the first time I had symmetrical inflammation

(both joints on both legs at the same time). They tried methotrexate, a

disease-modifying anti-rheumatic drug, but it caused severe mouth sores and

stopped working. I then went on prednisone for a year which worked very

well. I'm off it now because it thinned my bones. I started on Enbrel

about 9 months ago, a very new highly effective disease-modifying

anti-rheumatic drug. It's working wonderfully for me, but it did take some

time.

I am not a doctor, and even a doctor can't diagnose by e-mail. However,

your symptoms sound like ankylosing spondylitis. There is an X-ray series

of your lower back and hips that they should have done to rule out

ankylosing spondylitis. Have you had those X-rays? If not, you definitely

should. For me that lower back X-ray series was negative for anklyosing

spondylitis, so I " just " have reactive arthritis (reiter's syndrome). I'm

also wondering why your doctor isn't giving you disease-modifying

anti-rheumatic drugs (DMARDs). Bextra is an anti-inflammatory and Flexeril

is a muscle relaxant. All those drugs do is relieve symptoms somewhat

without treating the underlying disease process. There are excellent DMARDs

available nowadays, so I wonder why your doctor isn't treating you with

those.

Sorry to cram so much history and info. in one e-mail. Hope I didn't

overwhelm you. I wonder if you can see a different rheumy. who might order

more tests and treat your condition more aggressively.

God Bless,

Janet in San Francisco

ReA since 1973; diagnosed 1997; HLA-B27+

[Guest guest]

I was diagnosed in the late 80's with AS and have never been either on a

disease modifier or a TNF of any type. I finally just gave up the argument

and went to opiods for pain relief. We'll see if I'm still walking in about

10 years??? I argued mightily for both DAMRDS and TNFs but kept getting

negative responses from many docs in many different specialties.

/MI

[Guest guest]

Janet, thank you so much for responding. What are the drugs I should be

considering. This crazy doc told me that ReA just hits during the time of

infection, but when the infection is cured, there will be no further

symptoms of ReA.

This is wrong; isn't it. She did do an MRI with contrast but the guy that

inserted the medicine into me did not get a vein and lost quite of bit of

the stuff he was supposed to be injecting.

I have a doctors appointment with my GP tomorrow as it appears my MRSA is

not clearning up, my thumb that had the fusarium has shooting pains which

makes me think the fungus is active again. My ears are hurting and I am

having headaches. I surely hope the infection is not spreading to my ears

and possibly brain.

Thank you again for responding. Usually I am pretty self sufficient but

this thing is really getting me down. I am trying to care for an elderly

mother but sometimes I think I will go before she. Tears come so easily. I

don't know which came first; the depression or all my body ailments. Please

keep in touch. I need to correspond with someone who has been through the

same thing and can identify with what I have to say. I am sure you have had

people who thought your problems were in your head. It is so discouraging.

Take care............thank you................Jane

[Guest guest]

In a message dated 1/29/2004 12:35:31 AM Pacific Standard Time,

jbrpol2@... writes:

am sure you have had

people who thought your problems were in your head. It is so discouraging.

Oh Lord Yes!!!

I will NEVER forget when Adrienne was having all these symptoms, and I kept

taking her into the HMO to find out What was going on...and one of the Mds

asked me to step out of the room for a moment and he informed me...he Dared to

tell me... " I think you are just being too sensitive to her complaints, no one

can

hurt as much as she is claiming, you need to just ignore her complaints "

I was SHocked...but back then, I was still... polite... today... (being over

40 does something to a woman I am sure) I Know I would have fired right back

at him in very direct communication that he was full of ....something...

But, the good that came from that was I determined Adrienne would NOT be

treated at the local HMO and I set about finding the best doctors I could and

working the system backwards. I woudl find the doctor I wanted her to see, and

ask...How do we get to see you?

It was time consuming and energy consuming. But... it worked.

It was probably close to three years after that before we had a diagnosis, or

a referal to a Rhemuatologist. But at least... we got there! We then left

the HMO in large part due to the attitude of... 'she can't be in that much

pain'.

What meds are you on? Which doctors do you see?

K

Adrienne's Mom

Adrienne age 20

[Guest guest]

Jane,

Yes, there were docs. when I was a kid who insisted that I was faking.

There are real some fools in the medicine field, as in all fields I guess.

There are some people who's Reactive Arthritis symptoms go away after the

infection is cleared up or a short time later. That can happen. But, it's

by no means a given. When I first started seeing my wonderful

rheumatologist, he explained that they used to think that Reactive Arthritis

was a short-term disease, but then they found that patients kept coming back

saying I still am hurting, so now they knew that wasn't necessarily true.

If your insurance allows, keep searching until you find a doc. who treats

your symptoms with the appropriate care and attention and seriousness. I

really hope that it does turn out to be a short-term disease for you.

I have had terrible sinus infections, so I really feel for you. I swear

sinus infections are more disabling than arthritis in some ways. The severe

fatigue can be very similar. Sometimes it is very hard for me to tell

whether I am having severe fatigure from a brewing sinus infection or an

impending flare of arthritis. As I'm typing now, my left ear just clogged

up and started ringing. This happened yesterday at the same time. I get

very severe congestion from sinus disease and allergies. Nasonex nasal

spray is helping. I took Zyrtec pills last night because I've been sneezing

but it makes my mouth so dry!

Jane, I really hope you get some good relief soon. Have you been tested for

diabetes, since that can cause severe, hard to cure infections? Since

infections can make you so sick and fatigued, I think you won't know if the

Reactive Arthritis is getting better and going away until you get your

infections cured. Good luck! And, don't accept doctors who don't take your

situation seriously. They should really be getting the infections under

control or finding out why they can't.

Good luck and God Bless, my dear. I'm sure there are many people in the

group who are wishing the best for you.

Janet in San Francisco

ReA since 1973; diagnosed 1997; HLA-B27+

[Guest guest]

Thanks for sharing your experience with doctors and their thinking it has to

be in your head. Back in 1995, I saw a doctor and explained my pain all

over. His comment was that people do not hurt in that many places at once.

Wish I could have transferred my pain to him for a few days. Think it would

have made a world of difference in his attitude.

I have just been put on Bextra 20 mg, Flexeril 10 mg at night, Tylenol with

codine. I also take Prozac 40 mg,

Xanax as needed, Prevacid, Lipitor, Verapamil. I keep on hand Ultram as

needed (I only take the heavier pain med at night)

I see a hematologist for severe anemia, opthomologist for my eye infections

and cataracts, rhemy (about a year), and a wonder GP. On occasion I go back

to an infectious disease guy because I am so prone to infections.

Jane

[Guest guest]

Janet, thanks so much for your supportive email. I have a great GP and he

will send me to the University of Arkansas if things do not get better. No,

this has not been a short time thing for me. Just seems each doctor gives

me a different diagnosis. I had my first iritis at Age 10. I can remember

having pain back then but I am in my late 50's and kids back then just did

not hurt. I have learned to endure a lot of it.

Thanks so much. I'll keep you in my thoughts.

Jane

[Guest guest]

Jane, Good luck and I really pray they don't have to remove your thumb.

Maybe go to an infectious disease specialist at University of Arkansas

before letting them do that.

They might not want you to take disease-modifying anti-rheumatic drugs

(DMARDS) such as sulfasalazine until they get the infections under control.

Sulfasalazine might be the safest drug for you to take to treat the reactive

arthritis. They definitely wouldn't want you to take Enbrel (the newest

drug for reactive arthritis) because it's not safe for people prone to

severe infections and you can't take it at all while you have a serious

infection.

Do you live in Arkansas? My father was born in Pine Bluff, Arkansas. My

aunt and uncle go to Hot Springs in the summer time. My Grandma grew up in

Stamps and her daddy was mayor of Stamps.

God Bless and may Jesus heal your poor thumb.

Janet in San Francisco

ReA since 1973; diagnosed 1997; HLA-B27+

[Guest guest]

In a message dated 1/29/2004 11:28:22 PM Pacific Standard Time,

jbrpol2@... writes:

His comment was that people do not hurt in that many places at once.

Wish I could have transferred my pain to him for a few days. Think it would

have made a world of difference in his attitude

So Totally True!

That must have made you feel even Worse to be told that after telling him so

much. How awful.

I am glad you are getting some treatment now. But... are any of the meds you

are on anti inflamitories?

And interesting you mention infections. Adrienne was just at 'hall health'

tonight at the UW, because she is having a reoccuring sore throat every Night.

Starts about 8 or 9 pm and gets worse as the night goes on. In the morning

when she wakes, it is gone...

Doctor was running late when he saw her, so she has to return on Monday for

tests. But when she was home, her Peditritian would put her on antibiodics and

she would always get better.

Interesting about the infections.

K

Adrienne's Mom

[Guest guest]

In a message dated 1/31/2004 12:36:24 PM Eastern Standard Time,

jbrpol2@... writes:

> You are such a wonderful Mom to care about your child's health in her

> youth.

> I suffered with this thing from Age 10 and nothing was done. Kids didn't

> and were not supposed to hurt back then. Thank you for being concerned! Jane

Jane,

I was treated the same as a child, even though, looking back, I had symtoms

of an autoimmune disease since I was very young. I already had the mouth sores

and docs would say they were nothing or tell me I was bringing it on myself!!

Imagine that? When I was fatigued for long periods they'd say I had mental

problems and give me vitamin shots to cure it, which did not work. When I had

bad bouts of the runs, they'd say I was sneaking junk foods or accuse me of all

sorts of crazy things! It was never recognized that I actually had some

illness, and I was sent to a psychiatrist even once or twice. Neither psych

found a

thing wrong with me mentally and one even said my parents would be wasting

money.They called me a " hypochondriac " for most of my young life! I always knew

though, that something was definitely wrong as I felt like I was burning up

inside sometimes and none of my friends suffered like I did.

I treat my children very differently! One already has a confirmed HLA-B27

disorder and the other will probably turn out positive as well once he gets

tested, as I am already noting symptoms that I had as a child. I defend my kids

to

the max regarding people who make comments, especially the administrators at

schools, who don't know a darn thing about RS related diseases. I've educated

every one I've come into contact with regarding that and put them right in

their place!

Debra!

[Guest guest]

Yes, I think I am being treated cautiously but adequately. Thank you for

sharing .

I having recurrent MRSA (antibiotic resistant staph) in my sinus. I have

been on antibiotics for months. Saw a better ENT yesterday and he is going

to do a cat scan or MRI to see what it really looks like. I have to get

over this infection in order to deal with everything else.

I am taking Bextra; 20 mg once a day. It is an anti-inflammatory drug.

You are such a wonderful Mom to care about your child's health in her youth.

I suffered with this thing from Age 10 and nothing was done. Kids didn't

and were not supposed to hurt back then.

Thank you for being concerned!

Jane

[Guest guest]

Sorry if I missed it- what is the title of the book that explains the milk cure?

Thank you- Sandy

On Friday, November 11, 2005, at 00:30AM, < > wrote:

>

>There are 12 messages in this issue.

>

>Topics in this digest:

>

> 1. Re: chicken pot pie recipe

> From: Dawn Schultz <cs550ds@...>

> 2. chicken pot pie recipe/Parsnips

> From: " seasidestudent " <seasidestudent@...>

> 3. Re: chicken pot pie recipe/Parsnips

> From: " Kimi " <kwolffden@...>

> 4. Re: Dr Hruby

> From: " Will Winter " <holistic@...>

> 5. whole foods from local sources

> From: " Alvin " <mnorganiceggs@...>

> 6. black beans are here

> From: " Kathy " <kaje62@...>

> 7. Fw: Re: New book (Jane)

> From: " Jane Frieler " <jfrieler@...>

> 8. Beef Stroganoff NT Style

> From: " realfoodie2003 " <realfoodie2003@...>

> 9. Re: chicken pot pie recipe/Parsnips

> From: Dawn Schultz <cs550ds@...>

> 10. Now seeking CRANBERRY-HORSERADISH SAUCE recipe

> From: " Will Winter " <holistic@...>

> 11. Digest Number 659

> From: LeAnne s <.s@...>

> 12. Whoops, I'm off to the Weston A. Price Foundation Annual Meeting!

> From: " Will Winter " <holistic@...>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 1

> Date: Thu, 10 Nov 2005 04:38:59 -0800 (PST)

> From: Dawn Schultz <cs550ds@...>

>Subject: Re: chicken pot pie recipe

>

>

>--- h <mariahackerman@...> wrote:

>

>> Have you ever tried

>> it?

>> h

>>

>

>I gave it a try yesterday when my parents visited & it

>got rave reviews. I didn't have celery so used

>parsnips instead & it was still great. (A good way to

>get me to eat parsnips LOL.)

>

>Thanks for the recipe, Judy!

>

>Dawn

>

>

>

>

>__________________________________

> FareChase: Search multiple travel sites in one click.

>http://farechase.

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 2

> Date: Thu, 10 Nov 2005 08:58:40 -0600

> From: " seasidestudent " <seasidestudent@...>

>Subject: chicken pot pie recipe/Parsnips

>

>Have you tried parsnips cooked in real butter and real maple syrup until

>they are carmelized but not overcooked? They can also be shredded in salads

>etc. or used in veggie trays with dip

>

>

>

>

>

>

>--- http://USFamily.Net/dialup.html - $8.25/mo! --

http://www.usfamily.net/dsl.html - $19.99/mo! ---

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>

>