/ Remicade

[Guest guest]

Hi ,

You said something about this before and I didn't say anything. But why are

you off MTX bcs of infection, and not the Remicade? For me, the Remicade

suppresses my immune system way more than MTX ever did, or Arava or the

other DMARDs I've been on. I just don't understand that. In between every

infusion since September, I have been sick with something. Colds,

bronchitis, now I have a sore throat and sinus infection. I have NEVER

gotten so sick. I've been sick more in the past 6 months than my whole life

combined. Well, almost. Except for my heart surgery at 5 and when the JRA

got me really bad when I was 15 and hospitalized. Otherwise, I have always

been a healthy person despite the RA. If I were you, I'd avoid the Remicade

until you were healed.

~Rainy Sue

----- Original Message -----

From: " " <dat2352@...>

< >

Sent: Tuesday, February 27, 2001 3:16 PM

Subject: Re: [ ] Prednisone question

> Immune suppression is a problem with just about all of our RA drugs. I

mean

> after all what we are trying to do is surpress an OVER active immune

> system. I am on remicade-not working well at all at the moment-end of

> cycle, hope after my next infusion on Tuesday things improve. But my

> surgeon has me off of the methatrexate during and since surgery because I

am

> at high risk for infection anyway. When I was on the prednisone is when

my

> first abscess occurred and the surgeon believes that I probably had some

> level of infection for a long time but my immune system handled it until

we

> started surpressing it. Sure is a double edged sword! What helps the

> arthritis, hurts other things! I did see that episode and it was good and

I

> fully understand why someone would want to stay on prednisone-only time

that

> I have ever been pain free since this whole mess began but I need a

minimum

> of 15 mgs for it to help at all.

>

> Temple

> Kuddle Kritters Farm

> 3 Fox Haven Way

> Chelmsford, MA 01824