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Sorry that, after all of your hard work to prepare for your appointment,

your doctor didn't really want to talk to you about narcotics, . What

did he say about your letter? What was his reaction to your explanation of

how your physical condition has changed your life? Did he mention anything

at all about narcotic use? I would give Ultram a try. I hope it works for

you. If not, you're right - time to see somebody else. It might be time to

move on anyway if he isn't interested in hearing what your point of view is.

I hope you aren't too disappointed. Even I'm feeling let down.

----- Original Message -----

From: " " <dat2352@...>

< >

Sent: Monday, March 05, 2001 4:41 PM

Subject: Re: [ ] Tears of Thanks

> ,

> I understand totally. Does he have any times without flares?and just

think

> this is the only kind of JRA with a potential of growing out of it. Meds

> are better now than when Dan was bad 12 years ago. He was on

trisalycilate

> which wrecked havoc on his stomach. Which was worse some days the- JRA

> pains or stomach pains! Dan had periods of months between flares so one

of

> the main focuses during flares was preventing contractures-but he was very

> young! And now there is me. I went to the rheumetologist today,

presented

> my case and then went for my next remicade infusion and he gave me Ultram

> (sp) for pain, didn't want to listen to my presentation on the positive

> uses of narcotics at all. So if this doesn't work guess I look for a new

> doctor.

>

> Temple

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