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Re: Digest Number 1607

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This is the other Joyce. I applied for widow's benefits for the disabled

over 50 when my husband died of cancer.It is like the ssi except I get a

percentage of my husband's retirement benefits.It is great because the

extra money is sorely needed. Every one at the SS office was great and

walked me through the process.Perhaps because I have hip implants and

had active disease then,it went through right away and I never saw their

doctor. Now I realize how lucky I was listening to these stories.

One bit of advice: see if your city has a senior hot line.I found out

they also take disabled of any age.Through their Senior Federation I got

on a medical plan where the doctors have agreed to take the medicare

allotment as payment in full.Through a community clinic I pay on a

sliding fee scale.They also give me med.samples,and set me up for low

income program for some of the drugs All in all I put out about $15 a

month.My surgeries cost nothing as does physical therapy. I am not an

official senior but was able to access their programs. When I asked why

they didn't let people know about their services,they said it was

because doctors,hospitals etc would never get paid anything but medicare

money.I can understand that.Anyway,for those of you with low incomes,do

some digging.You will never believe what's out there.

The other Joyce (namu) M.M.

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  • 3 months later...
Guest guest

In a message dated 5/17/01 6:09:29 AM Eastern Daylight Time,

writes:

> I

> was wondering if anyone else has or knows someone who has suffered

> from unusual cases of encephalopathy (beyond just confusion)?

Hi ,

I had severe encephalopathy, to the point I was in and out of coma for many

months while waiting for transplant. There are symptoms before going into

coma... I had aphasia (inability to communicate in normal manner), using

wrong word... i.e. thinking of coat and saying run, type of things. Not

remembering how I got to where I was. Not recognizing people. Loss of

voluntary body functions.

Fortunately, few reach that stage. The damage caused by routine hepatic

encephalopathy is reversed after the transplant in most patients. Those who

experience deep, prolonged coma have a less certain prognosis, although there

is always improvement. I'll be 11 years out this coming July and still have

residual mental impairment. I've seen several neurologist, who annoying

patronizing, say I should be happy I can function. I am, but would be

happier if I could perform at the level I did before this all started and go

back to the work I loved.

For more info on encephalopathy, see http://organtx.org/dc/enceph.htm

If you or your mother have any specific questions on severe encephalopathy,

I'd be happy to answer ... relatively few of us have been through it, thank

goodness. I think Jerry and one or two others had it also.

Kandy

<A HREF= " http://organtx.org " >http://organtx.org</A>

" One person on the transplant waiting list dies every 90 minutes "

HHS Secretary Tommy 4-17-01

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  • 1 year later...

In a message dated 11/19/2002 8:12:45 AM Central Standard Time,

writes:

<waiting for diagnosis>

Hi Meg,

With the history and symptoms you describe, you absolutely should see a

rheumatologist for the best possible treatment. Please do not let your pcp

refuse to refer you if in fact, you need a referral to see a specialist.

Many of us with PA have suffered irreversible joint damage because of

inappropriate or ineffective treatment.

Please keep us posted!

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  • 1 year later...

In a message dated 9/21/2004 8:50:45 AM Eastern Daylight Time,

writes:

te: Mon, 20 Sep 2004 23:35:05 -0700 (PDT)

From: Elise Strong <elisestrong@...>

Subject: depakote anyone?

hi - my son Josiah is taking depakote. I am wondering

if anyone has a success story involving this drug. I

worry about the liver effects- which I don't really

understand- what is the deal with elevated liver

enzymes anyways? Would love to hear from anyone with

any experience with this drug- thanks elise.

..

..>>> Depakote can be a challenge and has trashed my son's liver in 1992

thru1993 until I started to add raw beets, beet greens and dandelion into his

diet

plus give him milk thistle to repair the liver damage from the drug.

I also gave him native american herb tea for a year to support the above

effort.

mjh

http://foxhillfarm.us/FireBasil/

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