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Re: Digest Number 1258

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In a message dated 5/25/00 3:04:33 PM Pacific Daylight Time,

lyme-aidegroups writes:

<< Message: 15

Date: Thu, 25 May 2000 15:16:26 EDT

From: HelenW8262@...

Subject: Re: Explanation by Private Doctor

Robyn i'd be grateful for a copy. >>

Thnaks,

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  • 5 months later...
  • 5 months later...
Guest guest

Thanks for the support, .

I'm on doxy and Zithromax each and every day without break unless I forget

to take them, which rarely happens.

I hate needing the mtx but my disease was so severe and totally disabling by

the time it was diagnosed that I needed the mtx in order to have any kind of

life.

ne

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  • 8 months later...

...great words of advise about exercise. I too was a bit lazy with exercise and feel it may have contributed to deformities. I know many who feel this way! Parents ....encourage your children to do those exercises. It will pay off!!!

Have a good day gang!

Donna

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  • 1 year later...
Guest guest

Message: 11

Date: Thu, 27 Mar 2003 22:24:33 -0800

From: " panamabob " <panamabob@...>

Subject: Re:

Had a friend who just a stress test and radioactive tracer for blood flow

around heart.

Shes been short of breath, a " punched " feeling in the middle of her chest,

sore arm, etc.

The test indicated blockage in central area of heart. Doc wants to see her

in a couple of days for followup. Doc was matter of factly about it; not

reacting in an alarming way.

Obviously shes concerned and aprehensive.

Any suggestions?

------------------------------------------------------------------------------

I know of two products. One is called Heart Technologies and supposedly it

has unblocked peoples arteries in less than a month. It is based on Linus

ing research and a simple web search will lead to product and great info.

I used to sell heart tech and got only good/great responses to it, so I can

highly recommend it.

Another is PCA/RX it is an oral spray and works slower and is more

expensive, but for some who don't want to do heaping spoons of heart tech every

day it could be a good thing. Web search will lead to info and product.

Haven't used it but I am thinking about it as it chelates mercury while you

still have fillings, a rare and good thing.

Blessings

Donna

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  • 6 months later...

Hi All....

There are quite a few sites about the keto diet for epilepsy and from what

I've read, they are directed toward children. Please let me know if there is

an adult recommended diet for seizures!

I'm the wonderful age of 50 and never had seizures until I was 36. I was

diagnosed then with complex partial seizures, although all brain scans, eeg's,

and MRI's were normal. I managed to wean myself from Tegretol in 1992, and

had no seizures at all until I had a grand mal in August, 2002. Needless to

say, I'm back on the tegretol, and this time, once again, all the scans were

normal.

I find this group very helpful - I've learned a LOT, and I realize that I

have a lot to be thankful for!

The best book I have found is one called: Prescription for Nutritional

Healing by Balch and Balch.

If any of you out there have adult onset seizures, I'd like to correspond

with you!

Thanks for all the input from this group!! It's an education every day!

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  • 3 months later...

You use silk rose petals, not real ones. You separate the petals and dip

them in melted M & P soap then let them dry/harden on a rack. When they are

completely dry, you put them in a pretty dish. Guests use them one petal at

a time.

Lori

----Original Message Follows----

Date: Wed, 28 Jan 2004 17:30:57 -0000

From: " bodyscents4u2 " <jcebpatton@...>

Subject: Re: valentine gift baskets

>how about dipped rose petal soaps or soap dipped bath poufs?

>

>yvonne

>

>I heard about this and was wondering how this is done? I am talking about

>the soap dippped rose petals. If you could help

>me out with the direcrions, I would appreciate it.

>

>thanks charise

_________________________________________________________________

High-speed users—be more efficient online with the new MSN Premium Internet

Software. http://join.msn.com/?pgmarket=en-us & page=byoa/prem & ST=1

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Ok, so end of Nov., beg. of Dec., I rebatched a rebatch of soap that I had

purchased from a supplier. It didn't work the first time. I posted my

difficulties here and received suggestions. With encouragement from here, I

figured I'd try again.

It's been sitting on this rack since end Nov/early Dec. and it still ain't

hard. Since I am totally unfamiliar with any other soap than MP, I'm lost.

Do I throw it away at this point? Will a low temp in the oven make it hard

or just make it softer?

Any suggestions? Helpless in Calif

_______________________________________________

Hello,

I didn't see your original post.

How much liquid did you add? Did the soap come with instructions? Did it

come with an ingredients list?

The problem with rebatching is that if you add quite a lot of liquid it

makes the rebatching very easy but the soap takes months to dry out and

shrinks all the time. It ends up looking very UGLY!!

If you only add a little liquid (milk is best) the soap will never melt down

to being runny but will be like lumpy mashed potato and you have to cram it

and press it into the moulds. You end up with a soap that hardens up very

quickly but may not look the best.

Much better to be brave and make a simple cold process soap yourself. You

will be proud of the result and will know exactly what's in it :-)

Nerys

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  • 1 year later...

Does Tenex effect sleep? Also, how often is it taken? Abilify is once a day.

Which is nice.

My son has gotten fantastic reports from school since being on it and even his

speech articulation has improved alot!

The child psychiatrist that we saw, here in Palm Beach County, is the most

recommended for 3 counties. Now mind you, we are living in Florida. He's been a

family doc for 10 years and he specializes in kids on the spectrum.

This doc actually gave me the choice of: Tenex, Abilify and Concerta but a

friend of mind that is an RN in a pediatricians office, has a kid on the

spectrum and recommended this.

He takes a very small amount, 1/4 the 5mg tablet.

> From: autism

> Date: 2005/11/09 Wed AM 08:29:59 EST

> autism

> Subject: Digest Number 1258

>

>

> There are 5 messages in this issue.

>

> Topics in this digest:

>

> 1. Re: medication changes

> From: pkuenstler@...

> 2. Re: Digest Number 1257

> From: <jerzyannie@...>

> 3. Re: medication changes

> From: LornaBerry@...

> 4. Re: What a week I have had!! (JJ's Mom)

> From: " lois noland " <jlois@...>

> 5. Re: medication changes

> From: " nasonbill " <nasonbill@...>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 1

> Date: Tue, 8 Nov 2005 09:31:10 EST

> From: pkuenstler@...

> Subject: Re: medication changes

>

> Tenex is just like the Clonadine that we use for Karac, and I think it is

> great. I agree with you.

>

> I'm glad CB is doing well. karac is doing well too. Sunday after I made

> Karac read he told me " it is arduous " . I know I use that word sometimes, but

I

> don't remember when was the last time that I used it. It just makes me wonder

> what all he has in that brain! smile. Pat K

>

>

> [This message contained attachments]

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

> Message: 2

> Date: Tue, 8 Nov 2005 7:46:36 -0500

> From: <jerzyannie@...>

> Subject: Re: Digest Number 1257

>

> I'm freaked out by all this " brain " stuff. He has always been sociable and

loveable but lately I have noticed that he will hang with us, whether it's

cooking in the kitchen, watching tv, etc...more rather than just playing w/his

toys in his room. This is a good thing.

> >

> > From: autism

> > Date: 2005/11/08 Tue AM 07:25:32 EST

> > autism

> > Subject: Digest Number 1257

> >

> >

> > There are 2 messages in this issue.

> >

> > Topics in this digest:

> >

> > 1. medication changes

> > From: " Nicky " <jerzyannie@...>

> > 2. Re: medication changes

> > From: LornaBerry@...

> >

> >

> > ________________________________________________________________________

> > ________________________________________________________________________

> >

> > Message: 1

> > Date: Mon, 07 Nov 2005 12:31:15 -0000

> > From: " Nicky " <jerzyannie@...>

> > Subject: medication changes

> >

> > Hi Shari:

> >

> > My son never had any type of sleep disturbance. He was a great

> > sleeper! He would crash about 8:30-9:00 and I'd wake him up by 7:00

> > for school. On weekends he would sleep 7:30AM to 8:00.

> >

> > The reason we are trying med's is b/c his teachers are saying his

> > impulsiviness is getting in the way of him learning. That he is very

> > intelligent, but if it is not a preferred activity, he will jump up

> > in the class and spin really fast (sensory?). On the playground at

> > times he will run away from the class b/c he decided he was going 2

> > the bathroom.

> >

> > Then once my aftercare got wind of what his teacher stated,they

> > started complaining that he wasn't sitting in his seat on the bus

> > and always jumping up. (mind you he is an autistic/cluster class in

> > Kindergarten and his aftercare is special needs but yet I feel the

> > issues he's having problems with are due to the disorder. They say

> > this is to help him b/c he is so high functioning and he has so much

> > potential, but i can't help feel it's just to make their job easier)

> >

> > Nicky has always been very independent. He was dressing himself and

> > picking out his own clothing before age two. His speech has

> > progressed alot but the articulation is still poor. They say he

> > has " apraxic tendencies " but not apraxia. He doesn't have the

> > physical traits of apraxia and he can make most sounds, it's just

> > blending them with consanants.

> >

> > We tried Focalin which made him depressed. Now it's Ablilify. It

> > def. calms him. The one thing I noticed, other than his " early 2

> > bed, early 2 rise " is that he is more clingy. Maybe b/c we have been

> > home for 2 weeks since the hurricane. He used to play nicely with

> > his toys, all day. He's an only child so he is used to playing

> > alone. He has great imaginary play. He would play with his Dora

> > house and other toys for hours. Now, maybe 20 minutes and he's

> > on my lap nagging 4 me to take him somewhere. Back to Orlando,

> > wanting to sleep over his Dad's house, etc.

> > Now is this Typical behavior for a six year old? I dunno....... It

> > also seems to me that his mild OCD behaviors have increased or

> > should I say are more magnified....closing opened doors, having to

> > inspect every bathroom in every store,etc.

> >

> > So the only reason we are trying meds are to help him focus. Abilify

> > is our second medication that we have have tried. He's been on it

> > for four weeks today.

> >

> > Just fishing out there for feedback from other parents that have had

> > similar circumstances.

> > Ann in WPB

> >

> >

> >

> >

> >

> >

> > ________________________________________________________________________

> > ________________________________________________________________________

> >

> > Message: 2

> > Date: Mon, 7 Nov 2005 22:59:25 EST

> > From: LornaBerry@...

> > Subject: Re: medication changes

> >

> > We are using Tenex ( blood pressure med ) for impulse control, those

> > neuroleptics ( hope i spelled that right LOL ) are scary. We seem to have

good control

> > now, the only thing was CB got a little sleepy at first...now we are doing

> > fine.

> >

> > CB's Granny

> >

> >

> > [This message contained attachments]

> >

> >

> >

> > ________________________________________________________________________

> > ________________________________________________________________________

> >

> >

> >

> > ------------------------------------------------------------------------

> >

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The tenex made CB sleepy during the day at first. Its once a day for him half tab of 5mg. It is a used for him as a temporary tool in conjunction with a behavior plan and ABA therapy. CB was very aggressive in school and would pinch, kick and bite and run. We changed his school, ( Carousel ) which has been featured on 60 minutes ,tested him (skipped 2 grades) . That alone changed alot of behaviors. He is now extremely verbal 8 yr old in the 4th grade. The school is highly structured neuro typical. CB's teachers and his Dr's are ready to take him off the meds. For non verbal kids they use the rapid responce method with ASL.

CB also has a best friend , a social group of boys he plays with . The school taught him HOW . I really believe its not the medication that has brought us to this lovely place.

CB's Granny

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  • 1 month later...

Dear Barbara,

I have the same problem - I can't even stand up long enough to wash a sink full of dishes. It is VERY irritating. The choir at church stands throughout their performance, not sitting between songs. So they just use risers, or simply line us up onstage. But one can ALWAYS tell where my spot is, b/c there's a stool there. I MUST sit between & often during songs. They are pretty cool about it, but I hate it.

I, too, must use the grocery cart & pretty much keep moving. In big stores like Walmart, I use the motorized scooters, as I would end up fainting before I could get myself out of the store.

I know that sounds extreme, but has anyone else in here either fainted or vomited from the pain? Just curious.

Blessings,

Carla Kay

Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD, all the earth. Declare His glory among the nations, His marvelous deeds among all peoples. For great is the LORD and most worthy of praise...

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ly, I've come close.

>

> Dear Barbara,

>

> I have the same problem - I can't even stand up long enough to

wash a sink

> full of dishes. It is VERY irritating. The choir at church

stands throughout

> their performance, not sitting between songs. So they just use

risers, or

> simply line us up onstage. But one can ALWAYS tell where my spot

is, b/c there's

> a stool there. I MUST sit between & often during songs. They are

pretty cool

> about it, but I hate it.

>

> I, too, must use the grocery cart & pretty much keep moving. In

big stores

> like Walmart, I use the motorized scooters, as I would end up

fainting before I

> could get myself out of the store.

>

> I know that sounds extreme, but has anyone else in here either

fainted or

> vomited from the pain? Just curious.

>

> Blessings,

> Carla Kay

> Ps. 96:1,3, & 4a Sing to the LORD a new song; sing to the LORD,

all the

> earth. Declare His glory among the nations, His marvelous deeds

among all peoples.

> For great is the LORD and most worthy of praise...

>

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  • 2 months later...
Guest guest

In a message dated 3/31/2006 4:51:42 AM Central Standard Time, Joint Replacement writes:

From: "skyepyper" <skyepyper@...>Subject: Some questions

I am new and have been lurking, but just have to answer this question, I had my second hip replacement on Dec 28, am doing great, but am still on a walker, have a friend that had her second a week after me and was only on a walker and then cane for a few weeks. Yes, you may have a shorter or longer leg after the surgery, but my doctor has been great to get me the same length the first time, but this time my second leg is 4cm shorter than my other, but hey, shoe inserts work great and they don't cost an arm and leg. I would really advise you to go to a rehab for a couple of weeks with your first THR, I did and learned a lot and this time went straight home, but I had to have help. You really have to have help for several days or at least a week, not 24/7 but you need someone. I think my doctor told me there is a 30% chance of your hip coming out (my last one did) I never want that to happen again.

It happened a couple of weeks out. THR are fairly easy, mine went great. Never any pain after surgery at all (with the exception of my hip coming out) and never any since. Haven't had anything since Dec 27, not even a

tylenol. Good luck.

Helen

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Thanks Helen for the info! How did they get the dislocated hip back

in the socket? Did you need another operation? I guess I'll have to

hire someone to take me home and do errands at the store and house in

the beginning.

Dan

>

> In a message dated 3/31/2006 4:51:42 AM Central Standard Time,

> Joint Replacement writes:

> From: " skyepyper " <skyepyper@...>

> Subject: Some questions

> I am new and have been lurking, but just have to answer this

question, I had

> my second hip replacement on Dec 28, am doing great, but am still

on a walker,

> have a friend that had her second a week after me and was only on a

walker

> and then cane for a few weeks. Yes, you may have a shorter or

longer leg after

> the surgery, but my doctor has been great to get me the same length

the first

> time, but this time my second leg is 4cm shorter than my other, but

hey, shoe

> inserts work great and they don't cost an arm and leg. I would

really advise

> you to go to a rehab for a couple of weeks with your first THR, I

did and

> learned a lot and this time went straight home, but I had to have

help. You

> really have to have help for several days or at least a week, not

24/7 but you need

> someone. I think my doctor told me there is a 30% chance of your

hip coming

> out (my last one did) I never want that to happen again.

> It happened a couple of weeks out. THR are fairly easy, mine went

great.

> Never any pain after surgery at all (with the exception of my hip

coming out)

> and never any since. Haven't had anything since Dec 27, not even a

> tylenol. Good luck.

>

> Helen

>

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