Guest guest Posted December 17, 2006 Report Share Posted December 17, 2006 Yep, I am a member of all of them. Thanks. J Tamarin From: Flu [mailto:Flu ] On Behalf Of Lee Sent: Sunday, December 17, 2006 5:08 AM Flu Subject: [Flu] Re: How to Make Yourself Heard in the Hospital Well, there are a few egroups out there. porphyria/ Porph/ porphgroup/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2006 Report Share Posted December 18, 2006 Alright, but have you checked for similar groups on UK and Italy, etc? Does the disease have different names in different languages? Have you searched for groups in those names? I used to belong to a few Italy egroups and found that some people could respond to my posts in English. Have you tried Australia? Look broadly. > > Yep, I am a member of all of them. Thanks. :-) Tamarin Quote Link to comment Share on other sites More sharing options...
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