Guest guest Posted December 27, 2006 Report Share Posted December 27, 2006 Oh yes. As a matter of fact, I have learned much more from international sources than American. Here we have no help. In Europe, South Africa, and Austrailia it is much better. My friends and I share all the new info we find on our . Wish we could find a doctor that would listen in the US but so far it is not happening. We just keep struggling forward and pressing on. Thanks! Tamarin From: Flu [mailto:Flu ] On Behalf Of Lee Sent: Tuesday, December 19, 2006 1:48 AM Flu Subject: [Flu] Re: OT Porphyria Alright, but have you checked for similar groups on UK and Italy, etc? Does the disease have different names in different languages? Have you searched for groups in those names? I used to belong to a few Italy egroups and found that some people could respond to my posts in English. Have you tried Australia? Look broadly. > > Yep, I am a member of all of them. Thanks. :-) Tamarin Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.