Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 My husband was diagnosed with hep-c in August of 99. He has cirrhosis too and may be put on transplant list after all the tests are done. He cannot be treated with the drug program. There are many here who can help you better than I for I am here for support and to learn as you, about all I can. I am sorry you are here but this is a great place to learn. Irish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Hi Carole Lynn, Even though I am sorry that you need to be here I want to welcome you to the group. I'm sorry to hear about your mom. My husband was diagnosed 4 years ago and has been through the interferon treatments and the combo treatments, but did not respond. He is not on the transplant waiting list, where he has been for 14 months. Several of the current members are going through the treatments right now so I will let you get the current information from them. Welcome. Jeanie --- barnes@... wrote: > Hello! I'm new to this group. I just found out that > my mother was > recently diagnosed with Hep C. She is in first stage > Cirrhossis > (sp?). She has a lot of questions. (She doesn't have > a computer, so I > will be her connection to this group.) She is > looking for information > about Interfuron (sp?) specifically, anyone who has > had experience on > this drug. Also, finding out about other drugs that > may help in > treatment. She also is very interested in knowing > about any effect > that diet may have on Cirrhossis. This is so new... > we have a lot to > learn! Your responses will be much appreciated! > > Carole Lynn > > > ------------------------------------------------------------------------ > Make new friends, find the old at Classmates.com: > 1/4052/10/_/96144/_/958268131/ > ------------------------------------------------------------------------ > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Hi... I'm a 57 yr old female with hepC for at least 15 years. Try the following two web sites for lots of very good and basic info. http://hepatitis-central.com/hcv/maintoc.html http://www.hepatitisneighborhood.com/ Hope these will help you.... Merril Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 Welcome to you and your mother, Carol Lynne. This is a very informed and caring group of people. I'm sure you will find the information you are looking for. My 50-yr old husband was diagnosed 4 years ago. He has some cirrhosis, but not at the stage where he is a candidate for a transplant. He takes 210 mg of Milk Thistle daily (you can order it from places like Vitamin World or any health food store). He decided against the interferon/ribovarin treatments when offered when he was first diagnosed because the side effects can be difficult and the results were not that promising. His doctor said he is receiving information about some progress that is being made with treatment that can even reverse liver damage. Once my husband gets through a back operation that is scheduled for 6/2, he plans to pursue this. How is your mother feeling? Tree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2000 Report Share Posted May 14, 2000 Good morning, Merrill, and happy Mother's Day if you're a mother. I'm feeling a mixture of relief and anxiety about the surgery, which I suppose is normal. Hearing the situations of some of our friends on this list, I feel so thankful that I have a " family friendly " workplace and can take off as long as I need to. I just hope this surgeon didn't get D's in med school! That sheepskin on the wall doesn't tell you " this one just made it through by the seat of his pants! " Tree (by the way, you wondered where we live--Burkittsville, land) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2000 Report Share Posted May 14, 2000 Tree... Glad the back surgery is scheduled. My thoughts will be with you... I am planning to go to Cleveland from May 31 - June 3. I can't remember where you live..... do you mind telling me?? Have a really great Sunday.... Merril Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2000 Report Share Posted May 14, 2000 Hi Carole Lynn - My husband was diagnosed in January, about 4 weeks after the birth of our second daughter. Sorry to hear about your mom, but you have found a group of wonderful and caring people to share the journey with. Merril mentioned great web sites. Another one I found helpful is http://home.texoma.net/~moreland/index.html. You might want to grab a copy of Living With Hepatitis C: A Survivor's Guide by Everson and/or The Hepatitis C handbook by Dolan. The Everson book includes a lot of personal anecdotes from people with hepC. The Dolan book gives a lot of info about alternative treatments (which can sometimes be more confusing than helpful). Warning - both start out with a lot of clinical info about the disease that will leave you really depressed if you aren't already. My husband's taking milk thistle and upping his anti-oxidants, in his 3rd week taking the combo (interferon & ribivirin). No alcohol is about all we can get his GI to say about diet, although you may want to look into Dr. Cabot's stuff on nutrition and the liver --her web site is http://www.liverdoctor.com/. Hope some of this helps! Hang in there, both of you. Belinda Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.