Re: Choosing a Primary Care Physician

[Guest guest]

Rob,

Not many internists or general MDs are going to know much about CMT.

What I would suggest for you, if you want a doctor who can help you with

fatigue, medications, etc., is to find a neurologist. Use AMA's Doctor

Finder, or better yet use AAN's Physican Search for a neurologist. Or

perhaps contact one of the CMT researchers who might know of a doctor

for you.

I constantly feed my internist CMT info - and in doing so, I am

educating him. This makes our relationship a 2 way street which works

very well for me. My spine surgeon was knowlegeable enough just by way

of his orthopedic/neurologic training, and our relationship is a good

one too. I had to learn who was open to education, who is not, who I

could trust, who I could not. Not many general practice doctors know

about CMT period.

I grew up in an era when doctors were gods/knew everything. Times change

and we change with them. This works for me.

~ Gretchen

[Guest guest]

Hi Rob,

I might know someone but need to know where you live because that makes a

big difference in order for you to be able to get there.

Mine are in Missouri.

Pam