Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 I have CMT1b. I do not feel at all guilty about my children because I did not know that I had it when they were born (I only recently was diagnosed). If I knew it then I think I would have tried anything available to prevent my child from getting the gene, but even if nothing were possible, I would still have children. Maybe it is easier for me to say this because I had a late diagnosis and have not been very disabled by it. I feel very, very sad when I think that perhaps my children will have the pain and problems and I feel even worse when I think that they may have children with it. I did not have any known signs as a child and have not known a child with CMT so I really do not know how hard that can be. I can very much empathize with people who feel that it is cruel to have a child who will be doomed with suffering. However, we never know what a child will be born with and there are so many things that can " go wrong. " Quote Link to comment Share on other sites More sharing options...
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