Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 << Does anyone else have a child getting close to puberty who has seen any signs of scoliosis creeping in? >> I know a woman who is an adult now who got mercury toxic and got it at puberty. She didn't figure out she was mercury toxic until recently, but the scoliosis came on shortly after 4 fillings were put in. The doc was sure she would end up in a wheelchair shorlty but the scoliosis " mysteriously " went away. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 << have you or has anyone else seen the IgE come down after chelation? >> I haven't seen it in children, but my personal IgE came down from 628 to 175 in 9 months following amalgam removal. I stopped testing it at that point. IgE of 628 is pretty miserable, too. Sulfur restriction and the anti-asthma drug accolate (which turns down allergies, I wasn't taking it for asthma) were extremely helpful in keeping it from being devastating instead of just miserable. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 We tested 's IgE when he was almost 3 and it was normal. He already was dx PDD. Any reason to think it would not elevate until he was older? I, however, have a moderate scoliosis. Heidi Re: [ ] Scoliosis > << have you or has anyone else seen the IgE come down after chelation? >> > > I haven't seen it in children, but my personal IgE came down from 628 to 175 > in 9 months following amalgam removal. I stopped testing it at that point. > > IgE of 628 is pretty miserable, too. Sulfur restriction and the anti-asthma > drug accolate (which turns down allergies, I wasn't taking it for asthma) > were extremely helpful in keeping it from being devastating instead of just > miserable. > > Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 << We tested 's IgE when he was almost 3 and it was normal. He already was dx PDD. Any reason to think it would not elevate until he was older? >> Ig E is supposed to be one of those things you either make or don't. I'd expect it to be high if he has problems with it. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 , My son, who is the same age as your daughter, had a minor amount of scoliosis. His doctor thought it is due to muscle imbalance. At one point he had marked left side weakness. It has gotten better with Physical Therapy and lots of swimming. We have worked very hard on this. Since January he has gone from not being able to do sit-ups to doing 30 or 40 every night.. I just took a look and his shoulders appear level now. He does have a bit of lordosis still though. Another interesting thing that happened when he regressed after his shots at 4 was that he switched to using his right hand (he was apparently left handed before). Some of the recent journal articles that I have read have shown that mercury in older kids causes right brain difficulties. I know that NLD (non-verbal learning disability) which is very similar to Aspergers is caused by right hemisphere dysfunction. We started chelation 2 months ago and my son's mitochondrial and muscle issues have started to melt away. Have a nice day ), Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 << My kids Ige are respectively 527 adn 780 Arrgh Kathy >> Yeah. Arrgh. Things that sometimes help: Reduce sulfur in diet and supplements (sulfate is OK, the rest isn't) Use the Rx drug accolate Use milk thistle Use fish and flax oil If they are NOT very sniffly/runny, give them more of the amino acid histidine plus give them antihistamines - more histamine signals the immune system to cool it in ways that antihistamines don't block. But H2 blockers (to reduce stomach acid) DO block the way that the immune system gets told to calm down by histamine. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 My kids Ige are respectively 527 adn 780 Arrgh Kathy Re: [ ] Scoliosis ><< have you or has anyone else seen the IgE come down after chelation? >> > >I haven't seen it in children, but my personal IgE came down from 628 to 175 >in 9 months following amalgam removal. I stopped testing it at that point. > >IgE of 628 is pretty miserable, too. Sulfur restriction and the anti-asthma >drug accolate (which turns down allergies, I wasn't taking it for asthma) >were extremely helpful in keeping it from being devastating instead of just >miserable. > >Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 In a message dated 7/28/00 2:46:15 PM, rochester@... writes: << Interesting. I have scoliosis, along with most of my family. Most in my family have really bad teeth, lots of amalgam, root canals, etc, and all of the mercury toxic symptoms to go with it. I, luckily, only have two fillings. Chiropractor got rid of my scoliosis, but I find this possible connection fascinating. None of my children have cavities or fillings in their teeth, and the scoliosis hasn't been passed to them either, but it has in their cousins who DO have fillings. Very interesting, indeed. >> Practically a controlled clinical trial there, ! You should write a highly politically incorrect medical paper on it. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 I give them fish and flax and milk thistle (actually, started milk thistle today, small world), explain accolate Kathy Re: [ ] Scoliosis ><< My kids Ige are respectively 527 adn 780 >Arrgh >Kathy >> > >Yeah. Arrgh. > >Things that sometimes help: > >Reduce sulfur in diet and supplements (sulfate is OK, the rest isn't) > >Use the Rx drug accolate > >Use milk thistle > >Use fish and flax oil > >If they are NOT very sniffly/runny, give them more of the amino acid >histidine plus give them antihistamines - more histamine signals the immune >system to cool it in ways that antihistamines don't block. > >But H2 blockers (to reduce stomach acid) DO block the way that the immune >system gets told to calm down by histamine. > >Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 > I, however, have a moderate scoliosis. > Me, too. But I always thought it was from carrying a pile of books in the crook of my right arm, back in junior high in the pre-backpack days. (Back then, only German and Swiss tourists and Boy Scouts ever used backpacks. Girls wore skirts and, occasionally, boys offered to carry their books.) Lorilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2000 Report Share Posted July 28, 2000 Interesting. I have scoliosis, along with most of my family. Most in my family have really bad teeth, lots of amalgam, root canals, etc, and all of the mercury toxic symptoms to go with it. I, luckily, only have two fillings. Chiropractor got rid of my scoliosis, but I find this possible connection fascinating. None of my children have cavities or fillings in their teeth, and the scoliosis hasn't been passed to them either, but it has in their cousins who DO have fillings. Very interesting, indeed. rochester@... -------- " Most people, sometime in their lives, stumble across truth. Most jump up, brush themselves off, and hurry on about their business as if nothing had happened. " -- Winston Churchill -------- Re: [ ] Scoliosis > << Does anyone else have a child getting close to puberty who has seen any > signs of scoliosis creeping in? >> > > I know a woman who is an adult now who got mercury toxic and got it at > puberty. She didn't figure out she was mercury toxic until recently, but > the scoliosis came on shortly after 4 fillings were put in. The doc was sure > she would end up in a wheelchair shorlty but the scoliosis " mysteriously " > went away. > > Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 (Backthen, only German and Swiss tourists and Boy Scouts ever used backpacks.Girls wore skirts and, occasionally, boys offered to carry their books.)Lorilyn Gee, Lorilyn, you must be as old as I am then! <grin> (Cary, NC)persistentC@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 > But H2 blockers (to reduce stomach acid) DO block the way that the immune > system gets told to calm down by histamine. > > Andy If you have time, can you explain a little more for me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2000 Report Share Posted July 29, 2000 from Kansas here: I wonder if scoliosis is autoimmune in nature. I have fibro, my dad-rhuem. arthritis and diabetes, my mom-borderline diabetic, and my NT 16 year old has scoliosis. Bye-bye............from Di ;+) (Special Ed. teacher & Mom to 10 year ) " Reasonable people adapt themselves to the world. Unreasonable people attempt to adapt the world to themselves. All progress, therefore, depends on unreasonable people. " - Bernard Shaw, on Progress Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2000 Report Share Posted August 10, 2000 On Fri, 28 Jul 2000 16:44:40 -0500, egroups wrote: > Interesting. I have scoliosis, along with most of my family. Most in my > family have really bad teeth, lots of amalgam, root canals, etc, and all > of the mercury toxic symptoms to go with it. I, luckily, only have two > fillings. Chiropractor got rid of my scoliosis, but I find this possible > connection fascinating. None of my children have cavities or fillings in > their teeth, and the scoliosis hasn't been passed to them either, but it > has in their cousins who DO have fillings. Very interesting, indeed. > > > > rochester@... > -------- > " Most people, sometime in their lives, stumble across truth. Most jump up, > brush themselves off, and hurry on about their business as if nothing had > happened. " > -- Winston Churchill > -------- > > Re: [ ] Scoliosis > > > > << Does anyone else have a child getting close to puberty who has seen > any > > signs of scoliosis creeping in? >> > > > > I know a woman who is an adult now who got mercury toxic and got it at > > puberty. She didn't figure out she was mercury toxic until recently, > but > > the scoliosis came on shortly after 4 fillings were put in. The doc was > sure > > she would end up in a wheelchair shorlty but the scoliosis > " mysteriously " > > went away. > > > > Andy > > _______________________________________________________ Say Bye to Slow Internet! http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2000 Report Share Posted August 10, 2000 I'm guessing that mercury (and possibly other metals) affect the one's immune system and create the opportunity for these conditions, in addition to the mercury (from a variety of sources including prenatal multi-generational accumulation) interfering with the strength/quality of the calcium in bones and teeth... On Sat, 29 Jul 2000 01:14:50 -0500, egroups wrote: > > from Kansas here: > > I wonder if scoliosis is autoimmune in nature. I have fibro, my dad-rhuem. > arthritis and diabetes, my mom-borderline diabetic, and my NT 16 year old > has scoliosis. > > > Bye-bye............from Di ;+) > (Special Ed. teacher & Mom to 10 year ) > > " Reasonable people adapt themselves to the world. Unreasonable > people attempt to adapt the world to themselves. All progress, > therefore, depends on unreasonable people. " > - Bernard Shaw, on Progress > > _______________________________________________________ Say Bye to Slow Internet! http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2003 Report Share Posted December 30, 2003 In a message dated 12/30/2003 7:27:36 PM Central Standard Time, momphar1@... writes: > I was diagnosed with CMT after a pregnancy but I think I probably > had a few symptoms from a child. > > Barbara > Barbara: Here's hoping things will go well for you, Happy New Year, in the land of the Illini Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Barbara, you might find this interesting. Unfortunately, there is no date on this piece, but it was in one of the newsletters. ~ G Scoliosis in CMT Disease by Dr. Kamal Ibrahim MD, FRCS© Scoliosis is a side to side or lateral curve of the spine. Sometimes this side curve is very slight and can hardly be seen. In more severe cases, however, the spine begins to look like a letter S or a long C. The patient with true scoliosis may appear to slump or lean to one side. This should not be confused with poor posture which corrects easily when the patient simply stands up straight. When a patient with scoliosis stands as straight as possible, the back is still not straight. In Charcot-Marie-Tooth disease, there is a muscle imbalance due to an inherited condition affecting the nervous system. As a result of this muscle imbalance, scoliosis could develop and continue to progress. Very little is written in the literature about scoliosis and Charcot-Marie-Tooth disease, therefore this report is a result of review of the literature and my personal experience. The incidence of scoliosis occurring along with Charcot-Marie-Tooth disease is about 10 per cent. That is to say, out of 100 patientss, 10 may develop scoliosis. If the scoliosis occurs, it usually starts late in the first decade of life or in teenagers. Half of those patients with scoliosis and CMT will have a small to moderate degree of scoliosis which usually does not progress and will not need any significant treatment while the other half of the patients will have scoliosis which will progress quickly and may end up needing surgical correction. This course of the disease behaves somewhat similar to scoliosis in normal teenagers. Very little information is available in regard to scoliosis in adults with CMT. From my experience, I believe that it will not occur in adults de nouvelle, but usually it is a progression from adolescent scoliosis which was not treated and continued to progress to a very significant degree. KYPHOSIS ( " Round Back " ) If the backward or rounded curve in the upper spine when viewed from the side is too great (round shoulders or humped back, a condition called kyphosis is present. When the inward or forward curve in the lower back is too great the condition is called lordosis (swayback). Many patients with scoliosis have kyphosis and lordosis as well. Kyphosis or excessive round back, sometimes called Scheuermann's disease, is a common problem. It has to be distinguished from poor posture. It is best seen in the bending test. When the child with kyphosis bends forward there will be a sharp bend or angulation of the back instead of the expected smooth curve. DIAGNOSIS Children should be checked regularly every year, even by their parents. The child should be asked to stand straight and the observer should look at the child's back to notice any uneven shoulders or one shoulder blade being more prominent, or the space between the body and the arms are unequal, the hips may be uneven one appearing higher or more prominent than the other, or if the child has some difficulty in clothes fitting properly or having to adjust the hem of a skirt or slacks. When a person with mild scoliosis bends at the waist, the sideways curvature of the spine becomes more obvious and would appear as if there is a hump in the back. That is to say one side of the back is higher than the other side. If any of these findings are observed by the parents, then the child should be examined by a physician and X-rays should be taken and repeated every year or more frequently if the scoliosis shows progression and is getting worse. TREATMENT Treatment modalities in those patients and the result of treatment is again similar to those of normal children who have scoliosis. If the curve is very mild, then the child should be observed. If he does not show any progression, then no treatment is needed. Exercises have no rule in correcting scoliosis, although back exercises are generally good for the well-being of CMT patients. If the curve shows progression and it is of a moderate degree, then a brace can control the progression until the child matures which is around 14 years for girls and 16 years for boys. Brace treatment is successful to achieve these results about 80 per cent of the time. There are many kinds of braces used for scoliosis, but generally they are divided into two groups, braces which go all the way to the neck and braces which stop under the arm. Each type of brace is used according to the part of the spine that has the scoliosis. On the other hand if the scoliosis shows sudden and fast progression toward a significant curve above 40 degrees, or if the brace treatment is unsuccessful in controlling the scoliosis, then the advised treatment is surgical correction of the scoliosis with fusion of the part of the spine that is curving. The technique that is used now for this surgery involves inserting stainless steel rods in each side of the spine, hooked to the spine with multiple hooks. This way the curve can be corrected to a great extent and fused in that position so the scoliosis does not come back. This surgery is now performed with a great degree of safety using a state-of-the-art technique which is known by the name of Cotrel-Dubousset internal fixation. With this new technique patients usually leave the hospital after one week from surgery without any cast, brace or external support with great results and a high success rate. The same techniques of surgery can be used for adults with scoliosis to correct their curve and prevent further deterioration of the spine. In patients older than 50 years with very severe scoliosis, this surgery might be risky and full of complications. Their symptom, which is usually back pain, can be relieved with a body brace to work as an external support to decrease the range of motion of the back, this way the pain could be relieved. The complications of untreated, progressive scoliosis occur mainly in late adulthood and are back pain and problems with heart and lung functions. SUMMARY In summary, scoliosis in CMT should be detected early in children during the first and second decade of life and watched carefully. If it does progress, then treatment should be implied in form of bracing or surgical correction and fusion. For adults who have curves beyond surgical treatment, they can be helped with a body brace, and if they are using a wheelchair, then some scoliosis modification in the back of the chair would be advised to help provide more comfortable seating and prevent excessive back pain so that those patients will be able to deal with daily living activities. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2004 Report Share Posted January 1, 2004 I have a touch of scoli. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2004 Report Share Posted October 29, 2004 Hi : I am not sure what you are referring to, but I will give it a shot. Yes, I have scoliosis, and I have CMT. Sometime in the last couple of months, Gretchen posted an article about the misdiagnosis of CMT. It made particular mention of scoliosis. Apparently, 25% of people with scoliosis also have CMT. The context of the article was to inform doctors that if one of their patients has scoliosis, check for CMT as well. Kindest regards, Quote Link to comment Share on other sites More sharing options...
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