Re: wondering/symptoms of CMT

[Guest guest]

In a message dated 12/31/2003 7:06:21 PM Central Standard Time,

ret101983@... writes:

> I am still unsure I have CMT but the little I have heard on this list seem

> to strongly suggest a strong possibility.

>

Stan:

your symptoms do not match mine in the respect that the atrophy seems to have

progressed to the upper legs- evidently rapidly.

However CMT strikes its victim in different ways.

Mine began in early childhood, although many of my relatives developed

symptoms when they were 20-30 yrs. old. A cousin of mine, nearly 60, was

recently

diagnosed with CMT.

It seems to affect the feet & lower legs first then the fingers, hands &

wrists.I'd see another neurologist, especially one that's familiar with muscular

distrophy.

Bless you, and hopefully a better '04,

in the land of the Illini

[Guest guest]

Hello Stan,

Your symptoms seem like mine, except that I use one cane for walking and I

do not have diabetes. The only one of my large family that have symptoms

like mine is my younger brother. Mine had a late onset in life, started a

small unbalance when I was 20 years old then it progressed. In your case you

have to be careful with diabetes because it can cause a multitude of

neuropathies. If you check the health web sites there are a lot of

studies for curing diabetic neuropathies, in fact more that CMT. I guess you

have to be aggressive with your doctors in a nice manner about the medicines

that suit you. My rule is any medicine that makes my muscles soar or ach is

not the right medicine for me. I am not a doctor but take it easy and always

try to go out even if it is few steps a day, your feet would warm up after a

while, you burn fat, exercise your muscles and it is good for psyche as

well. More important that CMT is to keep your diabetes under control. Take

care:-)

Nidal

[Guest guest]

One of the many Drs. I have seen thru the past 15 years trying to get a

diagnosis of " what's up with my feet, " the first one that suggested CMT said it

CAN

go all the way up the thighs to the hips though not everyone usually

encounters that. Lately my upper legs feel weak. I take my Neurontin, Lexapro

and

Lodine so I don't feel any electrical type pain anymore. My suggestion is a

Neurologist who knows CMT issues and get a complete workup, the electrocution

test i

like to call it.

in OK

[Guest guest]

Hi ,

I am just wondering if you are the from the old times lol? CMT

chatroom? You have a CMT site?

Barbara

[Guest guest]

Thanks to all that have responded to my ramblings. It is curious that my legs

and feet, on ocassion, feel light and I am able to walk easily, although I do

have to use the cane's. My wonderful challenge, at the age of 50, and had

started a new career. I could not figure out what was causing the burningg feet

and eventually gave up the new career, since it required me to be on concrete

floors for more than 12 hours a day. That was when I first noticed a slight

redness on the great toe on the left foot. About a year later I had to go to the

ER for a rapidly fluttering heart. Looking back at some of the tests I found my

BG was at 178 and the doctors never diagnosed Diabetes. About the same time I

found I was unable to stand still and had to shuffle to maintain my balence.

That has since, 1990, progressed to the current state of affairs.

Stan

http://www.cmtworld.org

http://www.neurologychannel.com/charcot/