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Yes, my hands sometimes " get stuck " in a sort of curled position and

I have to use my other hand to move the fingers - it seems to happen

more when I am doing something involving doing something small with

my hands.

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  • 1 month later...

In a message dated 12/30/2003 2:40:22 PM Central Standard Time,

dsheliko@... writes:

> Now my hands are getting troublesome. I wear hand

> spints at night, alternating right and left. I hope this

> will prevent the " clawing " that Mom had. Some days I feel a

> lot better than other days. Wish I knew why and could stick

> with the good days. I also wear AFOs. They are a godsend.

>

>

Joan:

I've been there too. My fingers are a lot like bird claws, but do not wok as

well. I've been wearing AFOs for thirty years.

I've fortunately never had burning or other pain with my CMT. I think my

nerves died peacefully while others fight for life.

Peace & comfort to all,

in the land of the Illini

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  • 9 months later...

Deb,

I believe that swelling of the hands can be a little bit of carpal tunnel and

CMT. I always heard that people w/ CMT have a greater chance of developing

carpal tunnel because the nerves are being pinched that reach the fingers. It's

difficult to distinguish between CTS and CMT affecting the hands. I don't have

CTS, but I do have CMT. I'm 25 and already have a difficult time wearing rings.

The only one that still fits comfortably is my wedding band. As for my Dad,

he's 51 and suffers from both CMT and CTS. He's had surgery in his right hand

twice, and left once for CTS. He can no longer wear his wedding band, due to

swelling. Just a little of what I know. Hope that helps.

A.

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Deb:

My feet are like walking arond on extremly painful over inflated balloons. My

hands feel swollen but do not look it. My hands are dead on the outside but

continually hurt to distraction.

I wish i could give the MD/CMT to someone for a day without meds to see how

much we have made the pain a normal part of life like eating and going to the

restroom.

good luck: michael

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