Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 , It is good that you are able to create your own CMT website. However, in my experience, I have seen so many websites with the same information reworded and it has almost become dull. I was diagnosed with CMT in 1959 and while I have a great life, I would much rather see the latest research work and I wish MORE people would put their funds behind either raising awareness or raising funds. 100 + years since the 'discovery' of CMT and what do we have? Yes, call me impatient - but since my diagnosis there are several generations STILL with CMT and I'd like to see some RESULTS!!! Gretchen, thank you for all you do here for . I can certainly relate to most all of what you share. I am so glad to see someone like you take the lead with awareness and fundraising. If anyone can pull off great things, it is YOU! Keep up the great work and if I can help in anyway, please let me know. Perhaps a small group of us affected since childhood can develop a comprehensive plan for 2004. Chris Quote Link to comment Share on other sites More sharing options...
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