Introduction

[Guest guest]

Hi, my name is Jeannie and I was told in 2000 that I

probably have CMT.

But...I took the DNA test done at Athena Lab and it came up

negative.

But, the doctor is pretty sure from my symptoms I have a form

of CMT that they just do not have a test for. She prescribed

AFOs with a hinge/spring at the ankle to help me walk better

as I have terrible foot drop. I also have severe flat feet

with bunions and crooked toes.

My little toe on both feet have just a nub for a nail and are

turned under the other toes. As a baby I wore corrective

braces (straight laced shoes with a bar between the shoes)

and corrective high top shoes until I was 6 years old.

Until I got my AFOs in 2000 I walked on my toes completely

with my heel never touching the floors. I wore out pretty

fact and suffered from cramps in my feet all the time, especially during the

winter.

The only problem I have right now is finding shoes to fit.

All the shoes I have found so far are too narrow in the toe

area. Does anyone know where I can find reasonally priced shoes that will fit?

BTW: I live in Texas.

Also, I am adopted and my records are sealed. I do know that

I have older siblings but I don't know their names or if they

too suffer from CMT.

I look forward to hearing from others with CMT.

Jeannie